Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly developed lactose intolerance


Cassied0174

Recommended Posts

Cassied0174 Newbie

I have had celiac disease for 18 years, diagnosed at the age of 15. There are many other medical issues that Ii deal with too. I have type one diabetes, diagnosed at 14 yrs old, epilepsy (complex partial seizures) diagnosed at 16 years old, and an allergy to polyester at 17 yrs old. I have been following the gluten diet very well and taking care of blood sugar levels 👌. But just this past 6 months I have started to react to lactose. I am not sure if it is due to celiac or to my second brain surgery that was this past October (2019). I show all signs of lactose intolerance. It is not celiac reactions, which was last seen about two months ago and that causes a seizure for me.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
(edited)
  • I am sorry that you are unwell.  
     

I would suspect that your celiac disease was activated two months ago or even earlier causing your lactose intolerance.  When was the last time you have celiac antibodies checked?  Have you had a repeat endoscopy? 

Symptoms for celiac disease can ebb and flow.  They can change too like a chameleon making it hard to determine active disease based on how you feel.  

It is possible that as you age, you can develop a lactose intolerance like any other non-celiac who is genetically predisposed to lactose intolerance.  My best guess would be that your celiac disease is active.  Get retested.  It will at least rule in or help rule out active celiac disease.  

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,100
    • Most Online (within 30 mins)
      7,748

    sweatingbad
    Newest Member
    sweatingbad
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.