Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired All The Time...

Elizabeth-Elindel

Recommended Posts

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted

This past month I've found myself very tired physcally after a little bit of hard work. I can especally tell thsn when I'm romping with kids - after about an hour and a half or so I'm dead. LOL. I've been gluten-free (mostly!) for about three months now. When I say "mostly" I mean that sometimes I do accidently eat small amounts of gluten... but nothing that I can tell that would make my body act like this.

Anyone else have this problem? I've thought that I'm maybe missing some vitimans I should be taking? If I should be taking vitimans, what brands are gluten-free?

Thanks so much, peoples! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

You could very well be anemic or have a thyroid problem, you schould get a CBC blood test and a thyroid screening.

kristing Newbie
kristing
Posted

make sure you're getting enough vitamins and minerals! it's tough to do sometimes with a gluten-free diet. i'm in a nutrition class right now and we had to do a diet analysis. i found that i'd been getting less than half of alot of vitamins and other nutrients i need. i got new vitamins to take daily, but you should check with your doctor first to make sure you're taking the right stuff!

jerseyangel Proficient
jerseyangel
Posted

Getting tested for anemia and thyroid is a good idea. Barring either of those, I find that the fatigue is one of the symptoms that takes a long time to get better. I am 9 months gluten-free, and the fatigue has improved, but I still get tired easily and am ready to go to bed at 7:30! I take a multivitamin and am very careful about gluten. I am hoping that, in time, this will continue to improve.

Canadian Karen Community Regular
Canadian Karen
Posted

I SOOOO hear ya!

Yesterday, after I took the kids to school, I came back, laid down on the couch, and next thing I knew, it was 2 p.m.!!!! I am tired ALL THE TIME! But I already know the reason: I am severely anemic. My family doctor is recommending IV systemic iron. I can't absorb iron if my life depended on it! (Which, of course, it does!)

Hugs.

Karen

Linda352 Rookie
Linda352
Posted

Living here in New Jersey is very drab at this time of the year. It seems that when the sun doesn't shine I don't shine either and I have no energy whatsoever. Every year during these dreary months..Jan, Feb, March....I think that there must be something wrong with me. Last year I actually went and had a physical and all was fine. Come to think of it I don't get as much exercise either so I'm sure that plays a part of my problem. Have you thought of this possibility? Also if you aren't getting a good nights sleep, considering you have little ones that may get you up, these are all possible factors. Hope your exhaustion will be short lived.........

Linda

tarnalberry Community Regular
tarnalberry
Posted

a LOT of things can cause general fatigue. some of the ones I believe have affected me: testosterone deficiency, possible vitamin deficiency, sub-chronic viral infection, sub-chronic asthma flare, seasonal affective disorder, dysthymia, insufficient exercise, and stress. it's well worth talking to your doctor, but it can be tricky to get a doctor to take 'fatigue' seriously, and it's vital that you make it very clear to him/her that it is having a *severe* negative impact on your quality of life, even when you cut back on your own expectations.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


McDougall Apprentice
McDougall
Posted
This past month I've found myself very tired physcally after a little bit of hard work. I can especally tell thsn when I'm romping with kids - after about an hour and a half or so I'm dead. LOL. I've been gluten-free (mostly!) for about three months now. When I say "mostly" I mean that sometimes I do accidently eat small amounts of gluten... but nothing that I can tell that would make my body act like this.

Anyone else have this problem? I've thought that I'm maybe missing some vitimans I should be taking? If I should be taking vitimans, what brands are gluten-free?

Thanks so much, peoples! :)

McDougall Apprentice
McDougall
Posted
This past month I've found myself very tired physcally after a little bit of hard work. I can especally tell thsn when I'm romping with kids - after about an hour and a half or so I'm dead. LOL. I've been gluten-free (mostly!) for about three months now. When I say "mostly" I mean that sometimes I do accidently eat small amounts of gluten... but nothing that I can tell that would make my body act like this.

Anyone else have this problem? I've thought that I'm maybe missing some vitimans I should be taking? If I should be taking vitimans, what brands are gluten-free?

Thanks so much, peoples! :)

If I have a "minor" gluten accident, like my roomate used the same spoon for her food and mine for instance I'm wrecked for a few weeks. This is after 16 months "gluten free" with many such accidents. When I steer clear of any accidents (which is not easy I know) I feel better and better with each passing hour. I suggest being more careful about the accidents. I know little about vitiman supplements but take a complex/complete supplement and a calcium complex regularly, I won't suggest a brand but highly recommend you be sure it is glutten free and says so on label before you take it. Many brands do some cost more but it is worth it IMO. After 3 months I was still feeling God awful though better FWIW, 16 months later I'm a million times better but the accidents are very noticable,and I do mean very. The tiredness (FOR ME) got alot better around the 6 month period. I'm still nowhere near what I remeber of myself but it's gets better everyday as long as I don't have an accident. From my experiences I can't recommend highly enough staying away from those accidents no matter what that takes. For me that means preparing all my own food and only eating what I am 100% (not 99.9999999%) sure is gluten free.

nikki-uk Enthusiast
nikki-uk
Posted
I SOOOO hear ya!

Yesterday, after I took the kids to school, I came back, laid down on the couch, and next thing I knew, it was 2 p.m.!!!! I am tired ALL THE TIME! But I already know the reason: I am severely anemic. My family doctor is recommending IV systemic iron. I can't absorb iron if my life depended on it! (Which, of course, it does!)

Hugs.

Karen

That's exactly what my hubbie does at the moment-nods off after taking kids to school,wakes up around 3o clock when they come home.

He's been doing this for around 4 weeks now.We all went down with a flu type virus back then,but whereas the rest of the family is back to normal,the virus seems to have left him foggy and fatigued :unsure:

Guest nini
Guest nini
Posted

it could be a viral infection that is hanging on. I think that is what is going on with me. I have been gluten-free for 3 years now and am hyper vigilant although my husband is not gluten-free and therefore sometimes I'm sure I get some cross contamination in the kitchen... He's really really bad about putting his pizzas or toast right on the rack and using my cutting board to cut his pizza on... (I hid my pizza stone)

Anyway, the fatigues is overwhelming at times. I get home from work, get my daughter home from school and I pass out til dinner time (this is from about 2:30 - 7:00) then I turn around and go back to bed at 9:30... I can barely stay awake at work.

I do have fibromyalgia which is linked to chronic fatigue syndrome, but I had thought that was getting better. And I take supplements and multi vitamins so I'm pretty sure this is from a lingering viral infection.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. YoshiLuckyJackpotWinner888
      - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If...
    2. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, ...
    3. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2...
    4. Scott Adams
      - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from ...
    5. Scott Adams
      - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,571
    • Most Online (within 30 mins)
      7,748
    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      Water filters are a potential problem for Celiac Disease

      By YoshiLuckyJackpotWinner888 · Posted

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      Yeast extract

      By Scott Adams · Posted

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Scott Adams · Posted

      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      Water filters are a potential problem for Celiac Disease

      By Scott Adams · Posted

      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.