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Anyone In Brooklyn Or Nyc?

laurieb119

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laurieb119 Rookie
laurieb119
Posted

i am a veteran celiac but looking to meet other people who have celiac as well. I have not been to meetings for years, but keep up to date with info. Just looking to make some celiac friends. ANyone in NY or even NJ

LAURIE

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irish Contributor
irish
Posted

Hi Laurie,

I am from Yonkers but I work in New York and go to the city on my days off. I have not gone to any meetups. But I would like to.

You can e-mail me.

Loretta

  • 1 month later...
fanny Apprentice
fanny
Posted

Hi my name is Fanny, I live in queens new will celiac would live to meet people that i can relate to.

  • 2 weeks later...
laurichick Newbie
laurichick
Posted

Hey!

I live in suffolk county

the local Celiac group is having a vendor fair June 11th if anyone is interested! You can try new things!

Heres the info!:

Gluten Free Vendor Fair

Sunday June 11th 2006

11am-5pm

hosted by Comfy Cusine Open Original Shared Link

Vendors: (Just a partial List!!)

Comfy Cusine

Wild By Nature

Silly Yak Shirts

Sweet Karma Bakery

Buckwheat Distributers

Mamas Italian resuraunt

Everybody Eats

Whole foods market

Juice Plus

gluten-free living magazine

gluten-free naturals

Eart's Remidies

Good Eatz

Food Tek

MR. Ritts Bakery

Cornucopia

Celiac Chicks

Special Guest Rory Jones Co Author of "Celiac Disease: A hidden epidemic"

You will also be able to purchase gluten-free items all in one location with no S/H!

Everyone that attends will recieve their choice of one Entree and one Pizza from comfy cuisine just for visiting the fair!

also for anyone driving there, the owner of comfy cusine assured us that parking is NOT an issue (and that you may ignore the no parking signs!) Because this is an industrial area and the other local bussinesses are not there that day!

Plus I'll be there helping out!

If you have any questions or need any info you can email me at Open Original Shared Link

lushgreen Apprentice
lushgreen
Posted

Oh, I just saw this thread - never thought to look in this forum. I live in NYC! And would love to meet other people with gluten issues. Just got diagnosed.

lauriechick, Is the vendor fair accessible by public transport? No car!

jkmunchkin Rising Star
jkmunchkin
Posted

I live in Westchester (Tarrytown), and work in NYC. I've been to a couple meetings sponsored by the Westchester Celiac Group.

Guest arnelwendy
Guest arnelwendy
Posted
Oh, I just saw this thread - never thought to look in this forum. I live in NYC! And would love to meet other people with gluten issues. Just got diagnosed.

lauriechick, Is the vendor fair accessible by public transport? No car!

THERE IS A TRAIN INTO PINELAWN

tHE SUFFOLK GROUP WILL BE TRYING TO ARRANGE FOR PICK UP CONTACT THEM

MICHAEL THORN EVENT CORD 631 395 5071

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  • 2 years later...
Risa Johnson Newbie
Risa Johnson
Posted
i am a veteran celiac but looking to meet other people who have celiac as well. I have not been to meetings for years, but keep up to date with info. Just looking to make some celiac friends. ANyone in NY or even NJ

LAURIE

Risa Johnson Newbie
Risa Johnson
Posted

Myself since a baby and my 16 yr old son recently diagnosed. Have recently been adhering to diet,

have been symptom free or symptoms weren't obvious since childhood .Trying to figure out supplements

and other ingredients that aren't obvious is time consuming and often fruitless. Many manufacturers feign

ignorance.

Good luck,

frisa

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    • knitty kitty
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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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