Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Update

Danijela

Recommended Posts

Danijela Contributor
Danijela
Posted

:D Hey everyone!!!

Its been soo long since ive been on... I've been really busy and my computer had some viruses so I couldn't access the internet for awhile there...

Anyways I had my appointment with an allergist on Jan 11th he ran all the usual enviornmental tests and for pets as well... then he asked me if I wanted anything special... I told him I was questioning Celiac so he decided to test me for wheat, white flour, milk and yeast..

well within seconds I was having a reacion to YEAST! he said this was quite suprising to him...

all he said was not to eat bread baked goods and doughnuts!! I thought that was funny that he specifically mentioned doughnuts lol I felt like saying do I look like i've consumed alot of em' <_<

so I cut out all yeast gluten and dairy. I've found recently that when I eat dairy products I get a stabbing pain in my stomach and the gas is unbearable I't makes me feel like I can't breath properly at times.... I've lost 16.5 pounds since I started the diet....

I've been feeling alot better however my problems with my throat and blood sugar still remain...

I believe I have some sort of insulin problem after I eat anything sweet my hands and feet go really cold I feel really hungry, jittery and aggitated... this also happens if I wait too long between meals...

My throat is killing me as well... its not really my throat it doesn't hurt when I swallow like strep or anything its more my neck below my chin it swells and hurts when I talk... it feels like a pressure is in there and its rubbing together and raw or something... its getting worse in the morning and at night when I drink it feels like its not passing throught almost like its just sitting there... its really botersome to me.

I don't know if there is any connection but i'm always cold as well my skin is actually cold to the touch all the time. I've recently started sleeping with 2 pairs of socks, pants, a shirt and sweater and a hat... because I wake up freezing and shaking in the middle of the night....

anyway if anyone can offer me any advice i'd greatly appreciate it

thank you sooo much for you time

:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

Hypoglycemia is likely the cause of the jittery, hungry, aggitated feeling. I have had it all my life and since going gluten free, it is gone. The symptoms come back only when I'm glutened. You can try only eating carbs that are digeted slowly - check out www.glycemicindex.com. Hopefully, after you have been gluten-free for a while it will get better.

I am also always cold all the time. I've been taking my temperature for baby making reasons and I am always 97. something. I did read a thread that there are many people like this. When I'm watching tv I keep a heating pad on me and it really warms me up. I love in Florida, and it will be 85 today and I will still be cold if I'm not in the sun.

I don't know about the throat thing. My mom gets a rash on the outside of her throat when she eats gluten and she feels like her throat is closing. I get reflux when I eat gluten and I feel it mostly in my throat. I don't know if either of those is your problem, but I would think that eating gluen could affect your throat.

Stick to your diet and hopefully you will feel better.

Danijela Contributor
Danijela
Posted
  • Author
Hypoglycemia is likely the cause of the jittery, hungry, aggitated feeling. I have had it all my life and since going gluten free, it is gone. The symptoms come back only when I'm glutened. You can try only eating carbs that are digeted slowly - check out www.glycemicindex.com. Hopefully, after you have been gluten-free for a while it will get better.

I am also always cold all the time. I've been taking my temperature for baby making reasons and I am always 97. something. I did read a thread that there are many people like this. When I'm watching tv I keep a heating pad on me and it really warms me up. I love in Florida, and it will be 85 today and I will still be cold if I'm not in the sun.

I don't know about the throat thing. My mom gets a rash on the outside of her throat when she eats gluten and she feels like her throat is closing. I get reflux when I eat gluten and I feel it mostly in my throat. I don't know if either of those is your problem, but I would think that eating gluen could affect your throat.

Stick to your diet and hopefully you will feel better.

It kinda feels like my throat is closing at times, and when I swallow liquids especially it feel like it is stuck in my throat for a few mins....

does anyone know if this could have anything to do with my thyroid???

my gp said my throat is really red inside... he is sending me to a new endocrinologist (sp?) I just hope he can help not like the last one!

thanks for your reply:)

kabowman Explorer
kabowman
Posted

Have you noticed a pattern to the throat thing? There is yeast in vinegar so I would watch that since you have an actual allergy. That means no dressings, sauces, marinades, condiments, etc. unless you make your own and work around the need for vinegar.

Danijela Contributor
Danijela
Posted
  • Author
Have you noticed a pattern to the throat thing? There is yeast in vinegar so I would watch that since you have an actual allergy. That means no dressings, sauces, marinades, condiments, etc. unless you make your own and work around the need for vinegar.

Ya there is a pattern actually it flares up in the morning and in the evening and if I talk alot it really hurt my voice changes it goes hoarse it becomes hard to talk and things don't really come out right...

The pain is in my neck below my chin... thats why i was wondering if it could be my thyroid.. there is a pressure there all the time.... i don't know if anyone can relate but its kinda like when you cry and you sort of get a feeling like there is a lump in your throat <_< (don't know if anyone knows what i mean)I can actually feel thats its swollen it will be larger on one side once in a while... and it bothers me more when i drink cold or hot drinks.... so i stick to room temp and really small sips.

I had no idea there was yeast in vineger I have vineger on salads on a weekly basis..... it doesn't say anything about it on the bottle....

I'm completly lost with this yeast thing:(

key Contributor
key
Posted

I had something with my throat when I was pregnant with my first son and then 8 months after while breastfeeding. It was I believe my thyroid. I think it was swollen and would be worse sometimes during the day. Usually at the end of the day. IF felt like you said, that you had cried along time. It was VERY annoying. I even quit nursing my baby early to see if it would go away. It actually did. I think hormones did something to my thyroid. It was visibly swollen during pregnancy, but it did go away. That was 5 years ago and it didn't return with the next two pregnancies, thank goodness. No one could find anything wrong with me and it was very frustrating.

You should probably have something checked though. My voice never changed. Not to alarm you and this probably isn't your problem, but my cousin's wife had some rare throat cancer. It did change her voice though and I don't think she ever had relief during the day at any point. It sounds like it might be your thyroid. If you are cold, that is another symptom of thyroid problems.

Hope you figure it all out.

Monica

mommida Enthusiast
mommida
Posted

You should get your thyroid checked, by an endocronologist. The thyroid could be enlarged or it could have nodules.

Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Danijela Contributor
Danijela
Posted
  • Author

hey!

I just noticed yesterday that the skin in the centre of my neck has changed texture and colour just in one spot.... does any one know what this is? and should i be alarmed???

I'm still waiting to hear back about my appointment with the new endocronologist

thanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,550
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.