Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Train On #2


kirst4588

Recommended Posts

kirst4588 Apprentice

My son Justin will be four at the end of July. He was diagnosed with Celiac when he was 1 1/2. He has been dry through the night since he was just two, and has no trouble holding, controlling urinating on the toilet. The issue we have is with bowel movements. I've had people tell me that training is harder with boys than with girls - and that may or may not be true - but my eldest son was completely trained just after turning two, so I know there are exceptions. I also know that he is the only child in his class of approx 20 kids, who is not trained. But again, the problem isn't "accidents" - I think it is ability. I don't think he is able to control it. He can hold it if we're in the car and he needs to pee-pee, but he doesn't seem to be able to control #2. It's become such an emotional issue too. I've tried everything - punishment - bribary - discussions - heck...I've even put a tv in the bathroom so he would be comfortable and could sit for a long while and not need to get up and run off. He has gone ONCE on the toilet, and that is because I caught him just about to start, and put him on before he could push. I just can't stare at him 23X7 and do that though. So I'm stuck.

And so now I'm truely wondering if it's medical - ie his celiac. Is training harder for celiac kids?

Any feedback would be much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katerinvon Rookie

Could be he's just not ready yet. I have a friend of mine whose daughter, # 4 of six kids, was slow to train. No celiac disease in her family, but some of the kids are lactose intolerant. Anyway, she finally gave up diapers right around her fourth birthday. Her mother was begining to think she'd be in diapers forever!

Maybe it's time just to relax from potty training for a while. I stressed hard with my first one, and she had accidents until four or later. I was real relaxed with the second, and she trained easily right after her third birthday. Haven't even started with my third yet, age 2, my gluten intolerant one. I'm thinking about starting some gentle potty training with her this summer, when she has fewer clothes to deal with.

But definately the less stress, the better! Give him some controll of the situation. Let him know it's OK to procede at his pace. Talk to his caregivers at school. Surely the have delt with this before. Take some of the pressure off, and he may just surprise you. :D

Good Luck!

Karen S.

kirst4588 Apprentice

Karen,

I know you're right about taking the pressure off the poor little guy.

Thanks for your advice.

~Kirsten

taweavmo3 Enthusiast

I have to agree.....I would just wait it out a bit. My daughter wasn't trained until she was about 3 1/2. Everyone in our family was giving me a hard time about it, like it was something "I" had done wrong. I think one of the problems with BM training was that it came on so quick, even after being gluten free for months, that she really had no control.

I just waited until she took the initiative and showed some interest. If it was a battle, I just let it go. Finally, out of the blue, she pretty much just went on the potty all by herself without even letting me know! I guess she was just ready, plain and simple.

I'm all for waiting it out, I figure we have enough battles to deal with. And in my experience, unless they are truly ready, no amount of training will work. I've heard of this new PT method that supposedly has babies trained from very early on...like before 12 months. This seems so crazy to me! First of all, who has the free time to do this? And second, I actually kind of like diapers for the first couple of years. Call me crazy, but diapers are way easier when you are out, rather than searching for a decent bathroom!

Good luck to you, I'm sure it will happen soon, and it will probably be when you least expect it. At least summer is almost here, and that is usually the easiest time to potty time.

katerinvon Rookie
My son Justin will be four at the end of July. He was diagnosed with Celiac when he was 1 1/2. He has been dry through the night since he was just two, and has no trouble holding, controlling urinating on the toilet. The issue we have is with bowel movements. I've had people tell me that training is harder with boys than with girls - and that may or may not be true - but my eldest son was completely trained just after turning two, so I know there are exceptions. I also know that he is the only child in his class of approx 20 kids, who is not trained. But again, the problem isn't "accidents" - I think it is ability. I don't think he is able to control it. He can hold it if we're in the car and he needs to pee-pee, but he doesn't seem to be able to control #2. It's become such an emotional issue too. I've tried everything - punishment - bribary - discussions - heck...I've even put a tv in the bathroom so he would be comfortable and could sit for a long while and not need to get up and run off. He has gone ONCE on the toilet, and that is because I caught him just about to start, and put him on before he could push. I just can't stare at him 23X7 and do that though. So I'm stuck.

And so now I'm truely wondering if it's medical - ie his celiac. Is training harder for celiac kids?

Any feedback would be much appreciated.

One thing I didn't ask last night. Does he have normal BM's or loose stools? That would make a big difference in his controll ability. If his diet is out of wack and he's having loose stools, get that under control first. Then low stress poty training should work.

Again, good luck!

Karen S.

Guest nini

my daughter wasn't dx with Celiac until she was 3 1/2 so I think that played a factor in her late potty training... (I hate that word!) anyway, she too learned #1 pretty easy, but it took a long time with #2, I think because it hurt her so much she was afraid of it.

I agree take the pressure off the little guy, let him proceed at his own pace, try to figure out WHY he is resistant, and when he acts ready, encourage him but don't punish if he doesn't get it... it takes time.

jerseyangel Proficient

My sons are 21 and 24, but they were very different when it came to all aspects of development. My younger son was a late walker (17 months) and didn't completely toilet train until about age 4. He had no physical problems. I feel very strongly in letting children develop in their own time frame. I put no pressure on him, and he was just fine. Once he deceided it was time, he walked, talked and went to the bathroom like a pro. I would relax and enjoy him--everything will work out the way it is meant to. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

My son was also a late walker - 16 mos. Potty training was a mystical fairy tale I had heard about until a couple months into the diet. He was just 3 when we started the diet in January and he was potty trained 2 weeks ago!!!!!!! I did the happy happy joy joy dance!!!! There was no way we could expect him to go to the potty when he had D 6 + times a day. Once the D was under control, we started him in big boy underwear. He loves Nemo, so we got Nemo underwear and told him that Nemo would be upset if he went to the bathroom on him. :blink: He had a lot of "accidents" at first. One day he was asking for a birthday cake, so I told him we could make one, any color if he wanted if he would poop in the potty. This went on for about a week and finally he decided to go! As soon as he was finished we all had to gather around the toilet to view his accomplishment while he went "TA DA!". :lol: It was hilarious. We then proceeded to bake a birthday cake with yellow icing and a big smiley face on top. He's gone ever since. I guess he just decided it was time. He's only had one accident after an accidental glutening, but he was trying to get to the bathroom then.

Hang in there! I was starting to think I was going to have to send mine to kindergarden in diapers, but he finally came through.

Nic Collaborator

My celiac son potty trained early, 2 and a half. But once his symptoms got bad, he started having trouble with bowel movements. Either he couldn't go at all, or he would be so loaded with stool softeners that he would be having accidents. Now that his symptoms are under control, he still has the constipation trouble and my ped gi and my regular ped suggested what they called toilet training. They said that I should pick a time, preferably after breakfast if possible for him to sit on the toilet for 10 minutes. They said not to let his feet dangle, put a stool under them. Sometimes we sit an read a book. But if he really fights it, I don't force the issue. Anyway, they said this should help his body learn to relax and go around a certain time each day rather than running back and forth to the bathroom throughout the day. I know this is a different problem than yours but thought it might be helpful.

Nicole

kirst4588 Apprentice

It really varies - it used to be for the longest time, he never had a solid one - so I didn't even try pushing him on the potty (but then, we were eating McDonalds regularly) - he's had no loose stools since we found out about the fries, and stopped eating them. Now he has even been a bit consipated - but I really think he was holding it.

I think waitin it out and saying a little prayer is all I will be able to do.

thanks

One thing I didn't ask last night. Does he have normal BM's or loose stools? That would make a big difference in his controll ability. If his diet is out of wack and he's having loose stools, get that under control first. Then low stress poty training should work.

Again, good luck!

Karen S.

hilaryw Newbie

My daughter was 4 and 1/2 and it was like a four month long process!! First we had to get her to sit on the potty and go in a pull up on the potty. Then, gradually, cut away at pull up, with bribes all the way, then, she was going through a whole in the pull up which by this time was like a skirt. Then, it happened. For us it was definitely related to constipation which I think is related to her celiac. Good luck!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.