Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long To Feel Better After Going gluten-free?


Sandyo

Recommended Posts

Sandyo Apprentice

My blood test was neg and I'm getting a copy from the Doctor today. I thought I had this figured out despite the neg test results....but after going gluten-free for about 1 1/2 weeks now, I'm starting to feel bad again. Even though I'm not eating gluten, I still get naucis every time I eat gluten-free or gluten-free free. My stomach just churns and I have a strange sensation in my chest like my heart is beating differently. I'm also tired and just feel yucky. I'm fine in the morning and can run 13 miles no problem. But as soon as I eat, I feel bad. It just feels like my stomach is raw.

Is this normal? Will I feel better, than worse, then better after going gluten-free? If gluten is my problem then why does my stomach feel yucky even when I don't eat it?

I just ordered my Enterolab Stool test on Sat night. I wasn't going to because I thought I was having a positive dietary reaction. But now I just don't know anymore.

How long should I stay gluten-free to know if that's my problem? The only thing I eat in question over the weekend was jello and cool whip. Is there gluten in either of those that I'm not aware of? I'm so new, it's hard to know where the hidden gluten is.

Oh, and is there a list of foods that we shouldn't eat that have hidden gluten? And how do you know what kinda starch it is if it says modified food starch?

Thanks for any comments you might have to help me know which direction to go.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

I have been trying to stay gluten-free for about 1-1/2 now. the only time that I get a reaction is if I go out to eat and they Gluten me. I never feel good, but I do feel better if I dont eat. the only time that I feel good is if I dont have any food in my stomach. It is so frustraing because I dont need to loose anymore weight and plus I am hungry. But since I get such negitive results from eating I hate doing it.

I am really sorry that you feel this way, I can totally understand.

As for the modified food starch, my rule is that if it does not state it then I will call. I dont want to take a risk.

I wish you the best of luck

Amanda NY

StrongerToday Enthusiast

You might want to stick with a bland, starchy diet for a while. Are you eating dairy or soy - some people are very sensitive to other things too.

jenvan Collaborator

Sandyo-- Go here to see safe and forbidden ingredient lists--very helpful when shopping: https://www.celiac.com/st_main.html?p_catid=12

It is hard to say on your question--some folks experience immediate improvements, some of us do get worse for a bit, myself included...and for me it has took several months to notice any initial improvement. What lead you to think you had Celiac or gluten intolerance initially?

hungryforlife Apprentice

Sandyo ~

When I went gluten free (for a week like you) I noticed that simple carbs and sugars made me really ill. Dizzy, neaseated, etc. All of my CBC blood test came back normal except my blood sugar which has been gradually rising since I started eating oatmeal three years ago. My colestorol went down by 57 points though! Now, I notice if I don't eat regularly, or I have simple carbs (or high glycemic foods) that I still get dizzy and nausea. I started adding orange juice to my morning routine to balance out the blood sugar, and then maybe adding some more protein to your diet (especially in the morning) will level out the blood sugars further. Gluten-free (especially prepared products) can be higher in sugar than regular gluten breads products.

Hope you feel better soon.

erin24 Explorer

Sandyo,

I am in the same boat as you...negative blood tests and I have just begun the gluten-free diet. I have only been gluten-free for 3 days but there has been absolutetly no improvement. I know it takes a while so I shouldn't really be expecting results so soon but it's hard not to get too excited.

Let me know how it goes for you and I will keep you informed about me too that way we can use each other as an indicator for one another.

Sandyo Apprentice
Sandyo,

I am in the same boat as you...negative blood tests and I have just begun the gluten-free diet. I have only been gluten-free for 3 days but there has been absolutetly no improvement. I know it takes a while so I shouldn't really be expecting results so soon but it's hard not to get too excited.

Let me know how it goes for you and I will keep you informed about me too that way we can use each other as an indicator for one another.

Will do. I got so depressed last night that I had a piece of a desert I made my son with Angel Food Cake in it. It just got to me. All these things I can't eat, special trips to the health food store and $90 each time. Making gluten-free bread and a whole seperate shelf in my pantry....and I still feel like crap!! Of course 1/2 hour after I ate it, I felt worse!!! Guess I had a little tantrum! :)

I'm being good today and feel a little better. Still some dizzyness. I'm also trying to eat less each time I eat. I think that will help. I'm going to look into the blood sugar comments above. That's kinda ringin a bell with me.

I hope you start feeling better soon.

Sandyo ~

When I went gluten free (for a week like you) I noticed that simple carbs and sugars made me really ill. Dizzy, neaseated, etc. All of my CBC blood test came back normal except my blood sugar which has been gradually rising since I started eating oatmeal three years ago. My colestorol went down by 57 points though! Now, I notice if I don't eat regularly, or I have simple carbs (or high glycemic foods) that I still get dizzy and nausea. I started adding orange juice to my morning routine to balance out the blood sugar, and then maybe adding some more protein to your diet (especially in the morning) will level out the blood sugars further. Gluten-free (especially prepared products) can be higher in sugar than regular gluten breads products.

Hope you feel better soon.

You might be on to something here. Know that you mention it....I do feel worse and dizzy after eating sugar. I started boiling some eggs to eat after my morning workout. I'll ad in the OJ and see if that makes any difference. I did eat meat and potatoes the other night and no sugary stuff and I felt fine!. Maybe reducing the sugar and increase protein will help. I've been worried I haven't been getting enough protein (cause I'm a runner and need it after a hard run) that's why I started with the boiled eggs. I used to eat oatmeal everymorning and protein shakes and raisin bran cereal....but I think my increase in grains is what triggered this intolerance response. Thanks for your help. I'll look in this direction. Appreciate it very much!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

It is normal to good and then bad and then good again. It can take a long time for your digestive system

to get better. Also you could be having withdrawal symptoms. I was nauseous in the beginning to. Make sure all your cosmetics and toiletries are gluten free also.

jenvan Collaborator

I also had to adjust my eating post gluten-free on blood sugar... Absorbing more has changed some of the foods I like. I used to love candy, now I have no desire for it--too sweet and gives me a headache! So listen to your body--absorbing and healing does change how it reacts to foods.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.