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Celiac or food intolerances??


Caspara

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Caspara Newbie

I’m wondering if anyone have experienced anxiety, mood changes and panic attack when having celiac? So a few nights ago (I generally wake up at least once a night anyhow) I woke up in the middle of the night with a full on panic attack and heart palpitations and felt numb and weird several places all over my body. It was almost like I wanted to call a doctor but I eventually managed to do some deep breathing and relax myself. Over the past few months (or probably years) I have been eating gluten, not like a lot as I try to stay away but I have been recently. My dad has celiac disease and I am starting to wonder if I might have it as well and it’s making my anxiety worse! I often feel very gassy right after eating gluten or starch heavy stuff and I have been gluten free for a few days now (only eating whole foods, no dairy, organic) but I still get quite gassy after eating, is this normal? I’ve wanted to go take a celiac test but I heard you have to eat gluten for a while before going and now I’m scared to eat it as I don’t want side effects to worsen again! I also feel like I in general had intrusive negative thoughts a lot, but I’m hoping no gluten might help. Please has anyone experienced similar??🙂


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trents Grand Master

You really do need to get tested for celiac disease, even if that means suffering though eating gluten for about 3 months. A couple pieces of wheat bread per day shouild accomplish what you need for a valid test.

Celiac disease damages the lining (villi) of the small intestine which reduces the ability of your GI tract to absorb nutrients. Your mood changes could be related to vitamin and mineral deficiencies. But the mood changes could also be related to other medical problems so get things checked out.

Scott Adams Grand Master

Yes, such panic attacks can be a symptom.

GFinDC Veteran

You could go to a doctor and get your vitamin and mineral levels checked.  Celiac can cause malabsorption of nutrients so deficiencies are a possible symptom.  B-vitamins, Vitamin D and several minerals can be low.  Nutrient deficiencies can cause symptoms of various kinds.  You don't need to do a gluten challenge to get nutrient levels checked.  But deficiencies can be an indicator that you have a gluten problem.

Fasteddy Rookie

I have not been tested for celiac yet, am just suspicious that I have it. But I do have a severe nightshade vegetable allergy and the mood/panic attacks and anxiety is very much a symptom of that. Been fighting that most of my life (varying degrees of success), but have only been relatively free of it for the past month as I have eliminated nightshades from my diet.

As you can see from other posts, quite a variety of conditions that can cause these problems. What can be frustrating is how long it can take to work your way through the various tests and checking for food sensitivities. Foods are often something you can check out yourself by changing your diet and observing the results, but usually take several weeks to cycle round to get results (can be a bumpy ride too). Whereas medical testing is often quicker and subject to the diagnosis of your doctor unless you can point them in a definitive direction..

Sounds quite scary and disturbing, what you are going through. Certainly seems like it is worth the effort to see your doctor, and maybe play around with your diet, as long as one thing does not interfere with the other..

Good luck..!!

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    • knitty kitty
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    • Ginger38
      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
    • trents
      That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
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