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Went To New Gastro

whitelacegal

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whitelacegal Contributor
whitelacegal
Posted

After 1 month of being with a gastro doctor who wont help me out i decided to go to someone else, this new gastro order blood test for Celiac, but i was diagnosed 1 month ago by biopsy and am on the gluten free diet, will the blood tests show if i have been not eating any wheat products? I have bad diarrhea even after being gluetin free for 1 month and losing alot of weight, how can i keep my weight steadyor not lose anymore, im eating alot but nothing stays in my body.

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Guest jhmom
Guest jhmom
Posted

Why would your new Gastro doc run Celiac blood test if you have already been dx through a biopsy?

To answer your question, yes being gluten-free for a month will affect your blood test, they will not be accurate.

I hope you feel better soon!

whitelacegal Contributor
whitelacegal
Posted
  • Author

The old gastro i went to never did run blood test for celiac all they did was the biopsy of the small intestine and colon, i know that dont make sense! I dont know why this new gastro would run this test when i have been on the gluentin free diet for 1 month! makes me mad!

Guest jhmom
Guest jhmom
Posted

If it were me I would have the doc check out the other symptoms you are having and inform him that you are on a gluten-free diet and if you are WILLING or NOT WILLING to go back on gluten to satisfy his needs to test you again.

I would also go to your old Gastro and get a copy of your biopsy results and any other tests he ran and take with you to the new Gastro doc, so that he can see what he been done.

I wish you luck and do hope you feel better soon! Take care :D

lovegrov Collaborator
lovegrov
Posted

I would consider the possibility of bacterial overgrowth, which can give you cleiac-type symptoms. Recent research showed that a large percentage of people who go gluten-free and still have symptoms also have bacterial overgrowth. You can ask your doctor about it but I would just start taking a probiotic like Culturelle. It won't hurt you and it might solve the problem.

PS -- If you try this and it does the trick it does NOT mean you don't have celiac disease. I would say that with positive biopsy you have celiac disease.

richard

whitelacegal Contributor
whitelacegal
Posted
  • Author

I will ask my new gastro about bacterial overgrowth when i go back there in 2 weeks, i allready gave him copies of my biopsy of my small intestine and colon. If i would have bacterial overgrowth of my intestine how would they be able to find this out does anyone know?

lovegrov Collaborator
lovegrov
Posted

Here's froma medical web site. I just did a google search for "bacterial overgrowth +diagnosing" and got lots.

"Identifying the cause of small bowel bacterial overgrowth, and even diagnosing it as the cause of the patient

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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