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2 skin biopsies?

Ram

By Ram
in Dermatitis Herpetiformis

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Ram Rookie
Ram
Posted

Blood work negative, endoscopy negative. Dermatologist convinced it’s DH. I am convinced as well since I have stomach problems forever and this rash forever for which no one ever knew the reason. Typical nasty DH perfectly symmetrical (picture below). My dermatologist for some reason took 2 biopsies, 1 from the lesion and 1 from an intact area near the lesion. Is this common or normal? I am tired of doctors turning me into a lab guinea pig.  

84E5B7B6-9A64-408A-BC44-88D25CAD8F07.webp

B0CF3CB3-3033-4D67-A724-CDB12437A509.webp

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Scott Adams Grand Master
Scott Adams
Posted

I believe it is normal to take the biopsies the way your doctor did, and it sounds like you have an official diagnosis. This means you need to be 100% gluten-free. If you are not yet gluten-free perhaps ask your doctor to do a follow up blood test for celiac disease as well. 

DH is difficult because even the smallest amount of gluten can trigger it for days or weeks. Avoiding all gluten will be critical for you to recover.

Dee21 Apprentice
Dee21
Posted
On 11/15/2020 at 11:11 AM, Ram said:

Blood work negative, endoscopy negative. Dermatologist convinced it’s DH. I am convinced as well since I have stomach problems forever and this rash forever for which no one ever knew the reason. Typical nasty DH perfectly symmetrical (picture below). My dermatologist for some reason took 2 biopsies, 1 from the lesion and 1 from an intact area near the lesion. Is this common or normal? I am tired of doctors turning me into a lab guinea pig.  

84E5B7B6-9A64-408A-BC44-88D25CAD8F07.webp

B0CF3CB3-3033-4D67-A724-CDB12437A509.webp

Just had my biopsy and my derm took 2 samples too, one from the lesion and the other directly next to it.

Scott Adams Grand Master
Scott Adams
Posted

Let us know what you find out. Also, you mentioned you had a blood test that was negative. Can you share those results? I wonder if your gluten antibodies were elevated at all. DH is the skin manifestation of celiac disease, so if you were eating gluten daily before the blood tests it would surprise me if none of the panels were elevated.

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