*D* for over a month - normal colonoscopy

[Fit4Life410]

Hi there. New here. I’ve had diarrhea every single day, multiple times a day, since Oct. 9. At first, dr dx me w gastritis. When it persisted, I did a stool sample, and it came back normal. Pain in my lower left quadrant got really bad and I ended up going to the ER. I was dx w colitis and put on 2 abx. I got REALLY sick after that. Referred to GI. Did a colonoscopy. It was normal. Another stool test. Normal. I’m so uncomfortable. My stomach hurts so bad. I still have pain on my left side. I get bad cramping, almost like menstrual cramps daily. And still the diarrhea. I have an endoscopy on the 30th. She mentioned ruling out Celiac. At this point, I’m HOPING for it bc I can’t live like this much longer. I also have a hx of migraines and seizures. 
 

Can anyone relate? I’m a healthy, active 42yo mother of 2 teens. I can not live the life I usually lead right now. 

[Scott Adams]

Have you had a blood screening for celiac disease yet? This would be the normal first step, before an endoscopy. If so, please share your results, if not, you may want to ask your doctor why this hasn't been done yet.

Certainly diarrhea is a symptom, as well as well headaches and seizures...here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ 

 

[Fit4Life410]

Thanks for the reply. I asked if she would do a blood test, and she said “I’m not against it. We can do that next after I see what this shows.” I think she was convinced I had something called microscopic ulcerative colitis and when the colonoscopy didn’t show that, she was definitely surprised. I am a bit frustrated, but will follow whatever steps I need to. 
 

Look forward to reading those articles. Thx so much. 

[Scott Adams]

Be sure to continue eating gluten daily until all tests are completed. I would request the blood test before the biopsy, as they are more accurate for diagnosis.

[DJFL77I]

what kind of seizures?

[Fit4Life410]

3 minutes ago, DJFL77I said:

what kind of seizures?

Grand mal

[DJFL77I]

Celiac can cause neurological problems..   not sure about seizures though.. wouldn't be surprised though

[Scott Adams]

Yes, celiac disease can indeed cause seizures, and here are some articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ 

How this happens seems to be nerve damage, and here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/

This article in particular is very interesting: