Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

*D* for over a month - normal colonoscopy


Fit4Life410

Recommended Posts

Fit4Life410 Newbie

Hi there. New here. I’ve had diarrhea every single day, multiple times a day, since Oct. 9. At first, dr dx me w gastritis. When it persisted, I did a stool sample, and it came back normal. Pain in my lower left quadrant got really bad and I ended up going to the ER. I was dx w colitis and put on 2 abx. I got REALLY sick after that. Referred to GI. Did a colonoscopy. It was normal. Another stool test. Normal. I’m so uncomfortable. My stomach hurts so bad. I still have pain on my left side. I get bad cramping, almost like menstrual cramps daily. And still the diarrhea. I have an endoscopy on the 30th. She mentioned ruling out Celiac. At this point, I’m HOPING for it bc I can’t live like this much longer. I also have a hx of migraines and seizures. 
 

Can anyone relate? I’m a healthy, active 42yo mother of 2 teens. I can not live the life I usually lead right now. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Have you had a blood screening for celiac disease yet? This would be the normal first step, before an endoscopy. If so, please share your results, if not, you may want to ask your doctor why this hasn't been done yet.

Certainly diarrhea is a symptom, as well as well headaches and seizures...here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ 

 

Fit4Life410 Newbie

Thanks for the reply. I asked if she would do a blood test, and she said “I’m not against it. We can do that next after I see what this shows.” I think she was convinced I had something called microscopic ulcerative colitis and when the colonoscopy didn’t show that, she was definitely surprised. I am a bit frustrated, but will follow whatever steps I need to. 
 

Look forward to reading those articles. Thx so much. 

Scott Adams Grand Master

Be sure to continue eating gluten daily until all tests are completed. I would request the blood test before the biopsy, as they are more accurate for diagnosis.

DJFL77I Experienced

what kind of seizures?

Fit4Life410 Newbie
3 minutes ago, DJFL77I said:

what kind of seizures?

Grand mal

DJFL77I Experienced

Celiac can cause neurological problems..   not sure about seizures though.. wouldn't be surprised though


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Yes, celiac disease can indeed cause seizures, and here are some articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ 

How this happens seems to be nerve damage, and here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/

This article in particular is very interesting:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,740
    • Most Online (within 30 mins)
      7,748

    PamF
    Newest Member
    PamF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Has anyone had any feeling in the throat like Phlegm , thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
    • nanny marley
      Has anyone had any feeling in the throat like plemb, thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
    • knitty kitty
      If you're more comfortable starting slow, that's fine, but do increase your dose to 500 mg per day as quickly as possible.  The World Health Organization recommends 500 mg thiamine HCl per day when deficiency is suspected.  Dr. Lonsdale had researched high dose thiamine for decades, and he has used higher doses, 1 to 3 grams in some cases.   Like I explained above, it's at that 500 mg level or higher that passive diffusion happens and thiamine can get into cells.  Inside the cells, thiamine turns the mitochondria back on.  Mitochondria produce energy the cells use to function.  I had been taking a multivitamin containing thiamine HCl regularly and still had become deficient.  Malabsorption of celiac disease really affects vitamin absorption.  I bought a bottle of thiamine HCl.  I was skeptical, too. I thought it couldn't be that easy.  I took 500 mg all at once.  I had improvement within minutes.  I couldn't believe the sensation of energy spreading to all parts of my body.  My brain felt like it was lifted out of a sub-sub-basement by an elevator and lights were coming on, floor by floor, of a skyscraper.  It was mental improvement, mental clarity.  Thiamine is needed for nerves to transmit electrical impulses, so the more nerves transmitting electrical impulses, the more my brain started working better.  The better my brain started working, the better I felt physically.  My muscles had more energy.  I wanted to get up and do stuff.   P.S. Questions are welcome.  "there's no poverty like ignorance, no wealth like knowledge". Keep learning!
    • badastronaut
      Thanks! I think I'll start slow. See what happens. Should I notice the thiamine working almost straight away if I'm really deficient? What kinda of difference did you notice? More mental? Of also physical in the sense of more energy?    Sorry for all the questions! 
    • knitty kitty
      Absolutely no danger of overdosing on the stuff.  Thiamine is nontoxic, and safe.  I had gotten to 1000 mg of Thiamine HCl a day at one point.   Do continue taking the multivitamin with the other B vitamins.  You may want to add a magnesium supplement because magnesium and thiamine make enzymes together.  I like Magnesium l-Threonate (Neuro-Mag by life extension).  You may want to add a B Complex in addition to the multivitamin (take them at different times).  All the B vitamins are water soluble.   With Thiamine HCl, there's a "magic moment" about 500 mg, where sufficient thiamine can get into the cells by passive diffusion, and the difference is amazing.  In thiamine insufficiency, the thiamine transporters (special gates into the cell) shut down.  Thiamine cannot get into the cells until there's a higher concentration outside of the cell.  Once that happens, the  thiamine can get through and go to work inside the cells.   If you're brave, start with 300 mg at one meal and 200 mg at the next meal.  Increase as you feel comfortable.  You may want to stay at one amount for a few days before increasing again.  Just keep adding another 100 mg as long as you keep feeling improvement.  If you feel uncomfortable, skip the next dose.  Thiamine HCL is water soluble and excess is easily excreted.  Don't take thiamine close to bedtime because you may feel too energized to sleep.   Thiamine HCl may feel like riding in the back of a pick up truck on a gravel road.  Benfotiamine feels like you're in a chauffeur driven Rolls Royce.  TTFD feels like you're driving a Lamborghini.  You'll get there no matter what kind of thiamine is taking you there.  Just keep taking it.  The health improvements can be very subtle, but you'll notice in the long run.   I started with 500 mg of Thiamine HCl, to see what would happen and had amazing improvement within an hour.  I took 300 mg with each of two meals and 100 mg with snacks.  I eventually added in Benfotiamine (250 mg  a couple of times a day) and reduced the thiamine HCl.  Later I added in TTFD (50 mg) several times a day.  Just experiment and see what feels right for you. Everyone is different and has a different level of deficiency.   I kept having additional improvement with each type of thiamine.  I've taken thiamine for almost fifteen years now.  I still take all three kinds on maintenance doses.  You have to experiment and see which ones work best for you in which combination.   I'm right here if you need anything.   You'll be fine.
×
×
  • Create New...