Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining weight?


DJFL77I

Recommended Posts

DJFL77I Experienced

I have been gluten free now for about 6 months. Antibody levels dropped from over 100 to 12. 12 was still marked as being high and 0 to 3 as normal. So like nine points from normal..  

Haven't gained any weight yet since being on the gluten-free diet. Not sure if I'm just not eating enough calories since I've only been eating basically fresh foods or because Celiac was still technically active at 12?

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Can you clarify which antibody test you are giving results for here? 

To me the fact that your levels dropped so far is a very good sign, and the average time to recovery for celiacs is two years:

 To be sure you are on the right track it might be a good idea to look closely at your diet to make sure you're not getting cross-contamination. If you eat outside your home, especially in restaurants, it's likely that you're not 100% gluten-free, which can prolong or prevent recovery.

DJFL77I Experienced

tTg IgA

Scott Adams Grand Master

There is some evidence that a dairy intolerance can keep ttg levels high, as was shown in the case of this child:

 

  • 4 weeks later...
MADMOM Community Regular
On 1/29/2021 at 5:19 AM, JamesDelaney said:

I have been gluten free now for about 6 months. Antibody levels dropped from over 100 to 12. 12 was still marked as being high and 0 to 3 as normal. So like nine points from normal..  

Haven't gained any weight yet since being on the gluten-free diet. Not sure if I'm just not eating enough calories since I've only been eating basically fresh foods or because Celiac was still technically active at 12?

 

 

 

omg that’s so great!  i was gonna ask if and how long it takes for levels to drop - i’m going for bloodwork in another month just to see where my levels are at i’ve only been gluten free 5 weeks but dr wants to see how it’s going!  i’m hopeful that mine will drop ❤️🙏🏻

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,580
    • Most Online (within 30 mins)
      7,748

    Megsy61
    Newest Member
    Megsy61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing.   Some people unconsciously reduce the amount of gluten in their diet because the feel unwell.  Three grams of gluten per day is sufficient to produce symptoms.  Only at ten grams or more is the immune system provoked to raise the antibody production high enough so that the antibodies leave the digestive tract and enter the blood stream where they can be measured.   Read the comments below the article...  
    • Wamedh Taj-Aldeen
      Thanks for your response and thoughts. Total IgA is normal. HLA DQ2/DQ8 came as heterozygous and the interpretation of the lab that the risk of coeliac disease is mild to moderate. Thyroid function test is normal. I agree that the best way is to repeat tTG antibodies in 6 months time as the result was not massively high.  
    • knitty kitty
      Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid?   You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo.  TTg IgA can be high in both hyperthyroidism and hypothyroidism.  tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism.   Thanks for visiting!  Keep us posted!
    • knitty kitty
      Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back.  The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction.   Keep us posted on your progress!
    • knitty kitty
      Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already.  Deficiencies in iron and thiamine affect your body's ability to make antibodies.  Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene,  I'm suspecting you do have Celiac disease.   Can you consult a gastroenterologist?  Or ask your doctor to do so.   Gluten Sensitivity can be a precursor of Celiac disease in people with Celiac genes.  Since you've already got symptoms of Celiac disease and evidence malabsorption, an endoscopy with biopsies would be beneficial.   It's can be so frustrating getting a diagnosis because doctors are not familiar with Celiac disease.  Sending you encouragement! Keep us posted on your progress!  
×
×
  • Create New...