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recovery


MADMOM

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MADMOM Community Regular

sorry i’m all out of sorts / i am

also curious to see how much anybody’s levels have dropped in a 3 month period? i have to go followup bloodwork beginning of April and my doc was looking for a 50 point drop!  anybody have a hopeful story to tell me?  also have you followed up with an endoscopy after time of healing?  and how long after id appreciate any feedback 


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Scott Adams Grand Master

It sounds like your antibody levels did not go down as much as your doctor expected. It can take a while for some people, but one thing that can really slow this process down, or prevent if from happening at all, is how vigilant you are being with your gluten-free diet. Do you eat outside your home? Have you looked carefully at everything in your diet?

The usual recommendation for celiacs with villi damage is to get a second biopsy done after one year on a gluten-free diet.

This article might be helpful:

 

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    • cristiana
      Thank you for the update @Rejoicephd it is good to know that you may have some answers.  Keep up the good work with your diet, and do let us know if you do get a firm diagnosis.  I took so long to feel better and for my TTG levels to normalise,  but got there in the end, so also bear in mind it does take longer for some of us.
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    • Celiacpartner
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