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CMCM Rising Star

This is a really good video on Gluten Sensitivity, Gluten Allergy, how Celiac disease fits in, and so on.  All the explanations will really clear up confusion that someone new to this might wonder about.  

https://www.glutenfreesociety.org/questions/is-there-a-test-for-gluten-sensitivity/

 


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Scott Adams Grand Master

I have issues with many of the claims made on their site...as I recall, and correct me if I am wrong, but that site claims celiac can't eat corn.

CMCM Rising Star

I watched some of Osborne's videos and liked them enough that I'm now reading his book "No Grain, no Pain", and it synthesizes an enormous amount of information in a beautifully organized way that is easy to grasp.  I've absorbed bits and pieces of some of the same information from multiple other sources I've read lately, which is why I see that this book brings it all together so perfectly for ME.  In fact, after all the reading I've done the last two months (at least 10 books, tons of online things) in my current endeavor to bring myself as up to speed as I can be in 2021 on gluten sensitivity/celiac disease, Osborne's book is the very best I've come across in terms of possibly resolving my own health issues, which of course, will obviously be different those of any other person.  

Osborne takes things a step farther with his conclusion that while the usual gluten grains have been studied and proven to be problematic over the last 50 years, the other grains haven't been studied nearly as much in terms of potential sensitivity and possibly contributing to similar damage as wheat/rye/barley gluten.  This book is resonating with me in terms of corn is because I have a terrible time with corn, always have.  Since birth I've also had issues with dairy and a few other things.  My reactions to dairy and corn are more immediate, whereas it seems that my gluten reactions are more insidious and hidden until a certain tipping point, at which time I pull back from gluten for a time.  But while I don't eat a lot of the alternative grains (sorghum or rice to give one example), the descriptions of the various grasses and their growth, composition, glutens, and all the general similarities common to all grains make a lot of sense to me as being potentially problematic as well.  Worth testing out, at the very least. And I already know corn is a big problem for me:  for decades I've know I will pay for eating it in the following day or two.  Same with dairy.  Not so with rice.  And oddly, I could eat gluten and not necessarily get sick, at least not immediately, but that was not true of corn.

BTW, I don't remember him saying celiacs CAN'T eat corn.  He did suggest it might be problematic in similar ways as wheat for SOME celiacs as well as others with gluten sensitivity, and if corn clearly presents digestive problems to a person, one should take that into consideration as a possibility.  After all, corn is a grain and corn also has gluten of its own type.

Ultimately, what I'm taking away from the information I'm reading is that virtually ALL grains have POTENTIAL to be problematic for SOME people, but the precise effects of the other grains is as yet weakly understood and not really studied well, and therefore no incriminating conclusions have been drawn for them as offenders.  So I'm reading and evaluating what he says in terms of my own experience, and I find that a lot of it possibly provides missing pieces of the puzzle to my own particular situation.  

Another thing he talks a lot about is how those with celiac and also gluten sensitivity can give up gluten and eat lots of the gluten free products out there now...the breads, pastries, donuts, cookies etc.  They get better from eliminating gluten, but still don't completely recover, and in fact, quite a large percentage don't entirely recover.  I was actually surprised to read this.   He believes the offending ingredients are things like rice and corn flours and all the numerous starches that are used in these products to produce a good facsimile of the similar wheat products.  These products are extremely difficult for me to digest, and actually give me worse immediate and day-after reactions than eating the gluten product did.  If I eat gluten-free ANYTHING I get digestive woes either very soon, that night, or the next day.  I always wondered why, and now through Osborne's discussions I have a better idea of why I don't digest them well and why I might be better off eliminating them, at least while in healing mode. 

Therefore, my current strategy and one that I've never tried yet is a diet of zero grains of any kind, zero dairy, zero sugar, and that also means zero gluten free foods.  I just stick to eating eggs, meats, limited mostly green vegetables, a few berries and occasional orange or banana or something like that. This is an experiment for me, and  I'll see how it goes and re-evaluate after about 6 months on this type of diet.  I'm only a week in, but so far so good.  Prior to starting this a week ago, I had eliminated gluten for 8 weeks but still had a fair amount of digestive upset, and for those 8 weeks I was getting very small amounts of dairy (mostly in the form of whipped half and half in a cappuccino each morning), I was eating occasional rice and sometimes cream of rice for breakfast, and occasional corn.  That was enough that I still had problems.  I can already say that just one week without those things and I already feel a LOT better suddenly.  

For ME, there's something to all this.  Of course, what we all know is that every single one of us is different in terms of our sensitivities and reactions, and as they say, YMMV (your mileage may vary).  

I still think the book might be a good read for the relatively unformed as it's extremely readable in its approach and it provides a lot of good information.  He also cites a lot of very interesting patient histories, too, some of which are quite astounding in their recoveries. 

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    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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