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Persistent Symptoms

mikemcm22
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mikemcm22 Explorer
mikemcm22
Posted

Hey all, 

So I have been diagnosed with celiac and 110% gluten free for almost two years. I still have pretty much all the same symptoms - mainly bloating and lower left abdominal pain. 

There are no questions in my diet in regards to cross contamination. My follow up endoscopy a year later showed the villi all returned and my gut looks "healthy" on paper. I can't figure out why I continue to have symptoms. 

I do have multiple positive hydrogen breathe tests (most likley sibo - small intestinal bacterial overgorwth) but every treatment/diet I have tried has made little to no difference (paleo, autoimmune paleo, elemental, antoibiotics, herbal antibiotics) etc. I am starting to wonder if the SIBO is just a side effect of something else. 

I am always bloated - sometimes hours after meals (carbs feeding bacteria aka SIBO) and sometimes right after (not sure). Sometimes I wake up in the middle of the night because the bloating is so bad the pain startles me awake. A low carb diet is the only thing that allows me to function on a daily basis. I mostly eat vegetables and meat - completely eliminated dairy. Also had to eliminate fruit (or fructose) foods because I can't handle those well either. 

Anyone have a similar situation? I am going on my fifth GI doc. and honestly the first four missed the celiac and said I just had GERD so I don't feel too hopeful. 

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BuddhaBar Collaborator
BuddhaBar
Posted

How much and what type of vegetables do you eat? Some people are sensitive to a high fiber intake, especially after being on a gluten free fiber lacking diet for a while. Bloating is the main symptom. 

Sorry you have to exclude all those foods from your diet. Being on a gluten free diet is boring enough.

Scott Adams Grand Master
Scott Adams
Posted

Also, do you include oats in your diet? About 10% of celiacs can't tolerate gluten-free oats.

mikemcm22 Explorer
mikemcm22
Posted
  • Author

BuddhaBar - I stay away from gasey ones and I actually eat a lower fiber diet that what I should most days. 

Scott Adams - I stay away from anything even potentially harmful - including oats, dairy etc... 

 

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