Can I have Non-Celiac Gluten Sensitivity since babyhood?

[roleye]

Hello everyone,

first of all sorry for my english, I tried my best. I'm writing this topic because this January I visited my doctor, with 16 bmi at age 28 (male) which bothered me in my whole life. I had a pretty hard babyhood and childhood aswell, I had a lot of surgeries and illnesses until like 16 or 18. I had cow's milk and soy allergy, what I outgrown. I never could get weight, doesn't matter how much I tried, I remained at the same weight. When I decided to eat healthy and like 5-6 times a day (like 2 times in my life), the same has happened both times: I could go up to MAXIMUM 50 kg (last time I tried to get weight, I was 43, could go up to 50,2 MAXIMUM in 6 months, while eating 5-6 times a day, mixing gluten and gluten free foods, consuming around 2500-3000 chalories each day).

While I was on this diet last year, I could go up until 49 kg "easily" (it's always hard for me to eat, since I get full very quickly most of the times and I often not hungry) and at this point, my weight just didn't grow more, my development stopped. Someone suggested me that because I have this low bmi I don't really have to eat these kind of foods (like chicken, rice, oat flakes, etc.), because I can get weight by eating "normal" (like everything) foods. Due to this, I went back eating mostly gluten foods. Things just gotten worse, my weight started to drop slowly, even if I consumed the same amount of chalories. 

So I went to my doctor with these symptoms, the first thing he said: "this can be because of a lot of things, like "gluten sensitivity". He sent me to a gastroenterologist, I had my first gastroscopy and the results were chronic gastritis and Reflux. I don't have celiac disease, but since my doctor told me I'm checking the symtoms every day and I'm like: "oh my god, how didn't I notice these faster?!". To be honest, I felt everything but didn't even think these should connected to each other, there were a LOT (like the abdominal pains 30-60 mins after eating gluten). But since I was on this diet, the symtpoms are a LOT stronger. 

When I was 1 year old, I had diagnosed with anemia just like the last time by the gastroenterologist. I have higher eosinophil level for who knows since when, got diagnosed with dermatitis and so on and I think I also have b12 vitamin malabsorption too. Searching on the internet and reading the symptoms of NCGS (the gastroenterologist told me that my cow's allergy could be because I already had NCGS) I felt 99% of the symptoms of what I read. 

This is pretty hard to get over for me mentally right now, because if I see it correctly, I could've diagnosed a lot earlier...

My question would be: can I have NCGS since babyhood?

Thank you,

Roland

[trents]

Short answer: Yes.

Did the doctor who did the endoscopy take a biopsy of the small bowel lining and get it tested? I'm just wondering what caused him to tell you don't have celiac disease. The biopsies of the small bowel then need to be sent off to a lab and looked at under a microscope for damaged villi, the proof of celiac disease.

[roleye]

Thank you for the answer!

The doctor took biopsy from duodenum, antrum and corpus. The problem is, in the duodenum they mentioned a small part of the villi "damaged" - he used a bit strange word here in my language too - but the doctor said it could be from any reason and he doesn't think I have celiac and in the diagnosis the duodenal part was normal. I then had blood test to celiac which was negative. But this "one part of the villi is damaged - or some similar word he used - is still bothering me a bit to be honest because I had this diet last year, I think some part of the villi "improved", went back to normal, or I don't really know.