Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

All over body swelling

SophieB333
 Share

Recommended Posts

SophieB333 Rookie
SophieB333
Posted

Hi guys,

I just want to see if anyone else experiences these symptoms. Basically, I can’t have an endoscopy/colonoscopy because I would have to eat gluten for how ever many weeks but I never feel good eating it anyway. So my doctor does think I’m celiac or some form of gluten intolerance. This is what happened..could someone let me know if this is common please. 
 

Thursday night I had a foot long whole meal from subway with chicken fillet. Basically, they had run out of gluten-free bread and I thought I’d see what happens if I do eat it. 
The next morning I had to go to the bathroom about 3 times. My gut felt sore/swollen and I had to sleep for an hour or so during the day because I was exhausted. Throughout the day my body just became more swollen like my arms, gut, legs etc. I just feel like a huge blimp. I only want to wear lose clothes and I’ve tried taking an anti inflammatory but it does nothing. 
 

My belly is definitely still sensitive and swollen. Is this quite a common story when eating gluten? 

I did not vomit or anything, I just had stomach pain and went to the bathroom a few times. Thank you for any help! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GodsGal Community Regular
GodsGal
Posted

Hi! I am not a medical professional. I think that your symptoms are pretty common for either a gluten intolerance or celiac. I would suggest that you talk with your doctor.

 

SophieB333 Rookie
SophieB333
Posted
  • Author
4 minutes ago, GodsGal said:

Hi! I am not a medical professional. I think that your symptoms are pretty common for either a gluten intolerance or celiac. I would suggest that you talk with your doctor.

 

Thank you. I’ve spoken to doctor but it’s hard to pin point if I don’t get the colonoscopy done. Have you had a flare that lasts days? It’s been 4 days and still stomach issues and swelling :(

GodsGal Community Regular
GodsGal
Posted

Hi! I am not a medical professional. I think that your symptoms are pretty common for either a gluten intolerance or celiac. I would suggest that you talk with your doctor.

 

GodsGal Community Regular
GodsGal
Posted
7 minutes ago, SophieB333 said:

Thank you. I’ve spoken to doctor but it’s hard to pin point if I don’t get the colonoscopy done. Have you had a flare that lasts days? It’s been 4 days and still stomach issues and swelling :(

Your symptoms sound a lot like what I experienced before diagnosis. I have not had any major flare ups since going gluten free. My understanding is that it can take quite awhile for symptoms to clear. Unfortunately, 4 days or longer is not uncommon. 😞

I would also suggest that you check for any potential sources of gluten that you may be getting into. Even check your medicines, cosmetics, and toothpaste. And, you might want to consider replacing your toothbrush.

I hope you start feeling better soon. Keep us posted!

SophieB333 Rookie
SophieB333
Posted
  • Author
4 minutes ago, GodsGal said:

Your symptoms sound a lot like what I experienced before diagnosis. I have not had any major flare ups since going gluten free. My understanding is that it can take quite awhile for symptoms to clear. Unfortunately, 4 days or longer is not uncommon. 😞

I would also suggest that you check for any potential sources of gluten that you may be getting into. Even check your medicines, cosmetics, and toothpaste. And, you might want to consider replacing your toothbrush.

I hope you start feeling better soon. Keep us posted!

Aww thank you so much for replying. I really appreciate it!! My poor little belly looks a little pregnant haha 😆 it’s just more annoying the body swelling coz I feel uncomfortable in my clothes 😞

I’ll definitely do what u said - I just got a new toothbrush so win! Good timing haha. Thanks again xx

Scott Adams Grand Master
Scott Adams
Posted

I think the fact that you could not eat gluten daily for a few weeks in order to get tested pretty much sums it up--you probably are gluten sensitive and no matter what the test results would indicate, you should go gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,007
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...