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Results for 6 year old

Steph974
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Steph974 Rookie
Steph974
Posted

My son was recently screened for coeliac disease due to not having gained any weight in the past 6 months, occasional constipation and stomach aches. He is also irritable and has some enamel defects on his permanent front teeth that have come through this year. His results came back negative and are: 

Tissu transglutaminase IgA level <0.1U/ml

(Reference range 0.1-3.5U/ml)

IgA 0.51 g/L
(reference range 0.27-1.95g/L)

Do you think these definitely rule out coeliac disease or is there still a chance he could have it. I would really appreciate any opinions on this. Thank you

 

 

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trents Grand Master
trents
Posted

Yes, there is a chance he could still have celiac disease. A full celiac antibody panel was not run and that should have been done since children often do not develop antibody responses in the same pattern as adults. Really, only one celiac antibody test was done and that was the tTG-IGA. The other one is just a total antibody count to make sure the total count is not low, which can skew the other tests toward the negative range. Please read this: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. If you spend much time on this forum you will come to realize that most doctors are pretty ignorant about celiac disease. One of the common experiences of those in our forum community is that doctors fail to tell them they need to be eating regular amounts of gluten for 6-8 weeks before antibody testing in order for the tests to be valid. Many people are already experimenting with eliminating gluten from their diet by the time they seek medical attention.

Scott Adams Grand Master
Scott Adams
Posted

I just want to add that there is another condition called non-celiac gluten sensitivity that ~12% of people have for which there currently isn’t a way to test. If you end up not being able to get additional tests for celiac disease you may still want to try a gluten-free diet to see if it helps.

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    • trents
      Probably celiac but also confused

      By trents · Posted

      A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
    • terrymouse
      Probably celiac but also confused

      By terrymouse · Posted

      Thanks for clarifying! I'll put the gluten free thing on hold then. In late december last year I suddenly started having digestive issues I never had before. My stomach started feeling tight most of the time, I got full very quickly, little to no appetite, constipation, I started to feel ill after eating - sometimes a stomach ache, sometimes nauseous, or lightheaded, or heart beating fast. Some things worse than others, I started avoiding fatty foods in general because they made me throw up . I haven't had issues with food like this before, so this is all new to me. I started losing weight because eating was such a chore. I hadn't considered it could be celiac, but my GP added it to the list of things to test for and then referred me to the GI specialist when the results came back positive. They also found a large gallstone, which was causing me pain in the pit of my stomach, so I had my gallbladder removed in march. The pain is gone but otherwise everything else, the tightness and sensitivity and lack of appetite remains an issue, and I'm still losing weight. I was around 200 lb in december, right now I'm 152 lb. 
    • trents
      Virus, celiac disease or both?

      By trents · Posted

      @Shining My Light, I am not a doctor or a trained medical professional of any kind. However, I was a hospital chaplain for many years and sat in on countless numbers of medical team meetings with doctors and nurses discussing the medical issues of their patients as well as tests administered and interventions applied. What I can tell you is that many diseases can only be diagnosed by running a battery of tests coming at the problem from different angles. It is normal to not have all the tests give a positive confirmation for a given disease. But rather, a diagnosis is arrived at by looking at what the balance of the test results from all angles suggest. This may especially be true of autoimmune conditions. You need to also understand that the degree and number of vitamin and mineral deficiencies and symptomology depends on a number of factors. For instance: 1. How many "celiac genes" are involved? Homozygous or heterozygous? and which genes? DQ2?, DQ8? or both? 2. How long ago was the onset of the celiac disease? How long has it been acting on the body? 10 months or 10 years? That will make a huge difference. 3. How much gluten has the person been accustomed to consuming since onset of celiac disease? The more they consume, the more damage you would expect. 4. What is the age of the person? Younger people have bodies that are more resilient than older people and can fight against disease more effectively. 5. What other health conditions is their immune system being tasked to deal with? 6. What is their general state of vigor? Some people just have stronger constitutions than others.
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      @trents I do like the idea of the shake!  yes. I was expecting to have all my blood tests that were celiac related to be positive. I guess I’m confused about why they wouldn’t be. Nothing else in my blood work even gave a clue as to helping me either. All my vitamins were good other than D and that’s everyone in my state.    @RMJ how impressive to be able to make all those baked goods! I’ve been tasting some gluten free items. There is one thing I found that’s good and it’s Siete Cinnamon churro chips put over ice cream with chocolate syrup . Tastes like fried ice cream!  I’ve also noticed so many more things have a “gluten free” symbol on them. Restaurants mostly but also a lot of packaging. Maybe it’s always been there but obviously since my blood tests I’ve noticed.  I really hoped I would find someone who like me was sick a few weeks prior to getting their  TTG test and it was raised for a viral reason, or it’s a “fluke” or something else.      
    • RMJ
      Virus, celiac disease or both?

      By RMJ · Posted

      I can’t imagine eating 4-6 slices of bread per day, either.  You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digesting” small amounts of gluten contamination.  You would NOT want to take it while eating bread/cake/doughnuts in preparation for an endoscopy because it could make your body react less. I have finally figured out how to make a number of gluten free baked goods. Cakes, cream puffs . . . My neighbors know they are gluten free but say they would never guess otherwise.
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