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Celiacs With Gall Bladder Disease


mjtropical

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Marybet Newbie

I was diagnosed 10/03. I am in to process of having my gall blatter tested due to ocasional pain. I'm having the blood test done today, ultra sound next week. I have experienced occasional pain and discomfort for years. Is this common?


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travelthomas Apprentice

Again, you might consider healing the problem instead of the quick way out. The pepermint does take a while, but cutting into the body seems kind of extreem, not to mention the scare tissue that never goes away. I personally like pepermint tea and have added it back into my diet.

Guest Nukapai

Update: had an ultrasound and there are no gall stones to be seen.

Pain is getting worse every week (now constant level is definitely high and I have occasional "peak" days when the pain just gets so bad I want to lie down in a curled up ball and whimper).

Have lost more weight. I'm losing about a pound a day and in the last week, I had a bit of an accelerated leap in weight loss where I suddenly dropped 4 pounds in 48 hours.

Doctor is treating this as an "urgent" case now and has referred me to a specialist. Next step will probably be Endo.

I've had more blood tests and a urine test today.

Doc prescribed some strong painkillers today - the dose is two capsules, each of which contains 500mg of paracetamol + 30mg codeine. They knocked me into orbit! I'm now a legal druggie. :blink:

wildones Apprentice

To those of you having biliary (liver, pancreatic and/or bile duct problems)- please ask your doctor to order an MRCP. It is an MRI of the biliary tract that will give much more information than an ultrasound. Especially if you have very pale colored stools. My son has short gut (75% of his small intestines, his ileocecal valve and part of his colon have been removed) and had to have his galbladder removed right before he turned 5 yrs old :( .He had a HUGE stone stuck in his common bile duct -an emergency surgery was needed-and he had to hve his galbladder removed after that. He has since had intermittent pain like you have described and @ 5 months ago had his 1st MRCP. They discovered more stones stuck in his common bile duct. He had an ERCP (an endoscopic procedure) to remove them. He then 4 weeks later had more stones discovered (MRCP) and another ERCP. He then had another set of stones discovered and a stent put in his common bile duct. He will have the stent removed in @ a month and is being referred to an out of town pediatric liver specialist. He already sees an excellent liver specialist (hepatologist) and GI dr here. I have seen a hepatologist too and had a liver biopsy that showed damaged that was from an unknown cause (then undiagnosed celiac ?)

It is important to get the most informative diagnostic tests done in order to know how to treat biliary problems. It is not unfortunately just a simple diet change needed and is important to follow up on. Good luck to all of you in finding the right dr to figure out how to help.

Queen Serenity Newbie

Hi, all!

I have just had my gall bladder removed in August. However, my situation is different from all of yours. You see, I have been living with Celiac's for almost 10 years. I have never had any problems with this organ until the birth of my third child in May. Then, the stones appeared and I became very ill. It just feels like my body has been through many changes since being diagnosed, so long ago. I also have hypothyroidism, which also has stemmed from the Celiac's. As to how I feel now that my gall bladder is out, well, I can eat without any pain or heavy amounts of gas build up. I am hoping that this is the last of health related issues for a while. I hope that all of you feel better as well. Good luck to everyone.

Vicki :)

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    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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