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Celiacs With Gall Bladder Disease


mjtropical

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Marybet Newbie

I was diagnosed 10/03. I am in to process of having my gall blatter tested due to ocasional pain. I'm having the blood test done today, ultra sound next week. I have experienced occasional pain and discomfort for years. Is this common?


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travelthomas Apprentice

Again, you might consider healing the problem instead of the quick way out. The pepermint does take a while, but cutting into the body seems kind of extreem, not to mention the scare tissue that never goes away. I personally like pepermint tea and have added it back into my diet.

Guest Nukapai

Update: had an ultrasound and there are no gall stones to be seen.

Pain is getting worse every week (now constant level is definitely high and I have occasional "peak" days when the pain just gets so bad I want to lie down in a curled up ball and whimper).

Have lost more weight. I'm losing about a pound a day and in the last week, I had a bit of an accelerated leap in weight loss where I suddenly dropped 4 pounds in 48 hours.

Doctor is treating this as an "urgent" case now and has referred me to a specialist. Next step will probably be Endo.

I've had more blood tests and a urine test today.

Doc prescribed some strong painkillers today - the dose is two capsules, each of which contains 500mg of paracetamol + 30mg codeine. They knocked me into orbit! I'm now a legal druggie. :blink:

wildones Apprentice

To those of you having biliary (liver, pancreatic and/or bile duct problems)- please ask your doctor to order an MRCP. It is an MRI of the biliary tract that will give much more information than an ultrasound. Especially if you have very pale colored stools. My son has short gut (75% of his small intestines, his ileocecal valve and part of his colon have been removed) and had to have his galbladder removed right before he turned 5 yrs old :( .He had a HUGE stone stuck in his common bile duct -an emergency surgery was needed-and he had to hve his galbladder removed after that. He has since had intermittent pain like you have described and @ 5 months ago had his 1st MRCP. They discovered more stones stuck in his common bile duct. He had an ERCP (an endoscopic procedure) to remove them. He then 4 weeks later had more stones discovered (MRCP) and another ERCP. He then had another set of stones discovered and a stent put in his common bile duct. He will have the stent removed in @ a month and is being referred to an out of town pediatric liver specialist. He already sees an excellent liver specialist (hepatologist) and GI dr here. I have seen a hepatologist too and had a liver biopsy that showed damaged that was from an unknown cause (then undiagnosed celiac ?)

It is important to get the most informative diagnostic tests done in order to know how to treat biliary problems. It is not unfortunately just a simple diet change needed and is important to follow up on. Good luck to all of you in finding the right dr to figure out how to help.

Queen Serenity Newbie

Hi, all!

I have just had my gall bladder removed in August. However, my situation is different from all of yours. You see, I have been living with Celiac's for almost 10 years. I have never had any problems with this organ until the birth of my third child in May. Then, the stones appeared and I became very ill. It just feels like my body has been through many changes since being diagnosed, so long ago. I also have hypothyroidism, which also has stemmed from the Celiac's. As to how I feel now that my gall bladder is out, well, I can eat without any pain or heavy amounts of gas build up. I am hoping that this is the last of health related issues for a while. I hope that all of you feel better as well. Good luck to everyone.

Vicki :)

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      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
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