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Celiacs With Gall Bladder Disease


mjtropical

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Marybet Newbie

I was diagnosed 10/03. I am in to process of having my gall blatter tested due to ocasional pain. I'm having the blood test done today, ultra sound next week. I have experienced occasional pain and discomfort for years. Is this common?


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travelthomas Apprentice

Again, you might consider healing the problem instead of the quick way out. The pepermint does take a while, but cutting into the body seems kind of extreem, not to mention the scare tissue that never goes away. I personally like pepermint tea and have added it back into my diet.

Guest Nukapai

Update: had an ultrasound and there are no gall stones to be seen.

Pain is getting worse every week (now constant level is definitely high and I have occasional "peak" days when the pain just gets so bad I want to lie down in a curled up ball and whimper).

Have lost more weight. I'm losing about a pound a day and in the last week, I had a bit of an accelerated leap in weight loss where I suddenly dropped 4 pounds in 48 hours.

Doctor is treating this as an "urgent" case now and has referred me to a specialist. Next step will probably be Endo.

I've had more blood tests and a urine test today.

Doc prescribed some strong painkillers today - the dose is two capsules, each of which contains 500mg of paracetamol + 30mg codeine. They knocked me into orbit! I'm now a legal druggie. :blink:

wildones Apprentice

To those of you having biliary (liver, pancreatic and/or bile duct problems)- please ask your doctor to order an MRCP. It is an MRI of the biliary tract that will give much more information than an ultrasound. Especially if you have very pale colored stools. My son has short gut (75% of his small intestines, his ileocecal valve and part of his colon have been removed) and had to have his galbladder removed right before he turned 5 yrs old :( .He had a HUGE stone stuck in his common bile duct -an emergency surgery was needed-and he had to hve his galbladder removed after that. He has since had intermittent pain like you have described and @ 5 months ago had his 1st MRCP. They discovered more stones stuck in his common bile duct. He had an ERCP (an endoscopic procedure) to remove them. He then 4 weeks later had more stones discovered (MRCP) and another ERCP. He then had another set of stones discovered and a stent put in his common bile duct. He will have the stent removed in @ a month and is being referred to an out of town pediatric liver specialist. He already sees an excellent liver specialist (hepatologist) and GI dr here. I have seen a hepatologist too and had a liver biopsy that showed damaged that was from an unknown cause (then undiagnosed celiac ?)

It is important to get the most informative diagnostic tests done in order to know how to treat biliary problems. It is not unfortunately just a simple diet change needed and is important to follow up on. Good luck to all of you in finding the right dr to figure out how to help.

Queen Serenity Newbie

Hi, all!

I have just had my gall bladder removed in August. However, my situation is different from all of yours. You see, I have been living with Celiac's for almost 10 years. I have never had any problems with this organ until the birth of my third child in May. Then, the stones appeared and I became very ill. It just feels like my body has been through many changes since being diagnosed, so long ago. I also have hypothyroidism, which also has stemmed from the Celiac's. As to how I feel now that my gall bladder is out, well, I can eat without any pain or heavy amounts of gas build up. I am hoping that this is the last of health related issues for a while. I hope that all of you feel better as well. Good luck to everyone.

Vicki :)

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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