Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help interpreting blood test results


Mamaof21985

Recommended Posts

Mamaof21985 Newbie

I’ve been having stomach issues for years and just kept it to myself and dealt with it. I finally went to the dr a week and a half ago and he suggested we test for celiac. He was conflicted between celiac and Crohn’s disease. We did bloodwork that morning.  After my appointment I went home and started a gluten free diet just to see what would happen. After about 3 days I was feeling quite a difference. My stomach bloating was even mostly gone. Then 5 days into this, we went to a family members birthday party where they had pizza. I wasn’t going to eat it but I thought it would also be a good test so I ate the pizza. By that evening I was miserable and the next day my stomach looked like I was 6 months pregnant. It has now been 3 days since then and I am just now starting to feel a little better since not having anymore gluten. 
Yesterday, my dr emailed me saying one of my blood tests came back elevated and that he wants to refer me to a gastro dr to possibly do a colonoscopy. I emailed him back asking that he send me a copy of the labs. I also decided to hold off for now on the other dr. I want to try completely gluten free for a month and see how much improvement I actually have and if I’m still having problems then I will go to the other dr. 
I have learned through researching that to continue testing you have to be consuming gluten so I am aware of that but at this point if gluten makes me feel this horrible then I would just rather not have it. 
I am a little confused by my blood test results though so maybe someone here can help me understand?

Atypical pANCA - negative

Saccharomyces cerevisiae, IgG 76.6

     (Range 0.0-24.9)

tTG/DGP Screen - negative 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Your doctor failed to order the most important antibody test for celiac disease, the tTG-IGA which is the centerpiece of the celiac antibody panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

You should be on regular amounts of gluten (defined as daily consumption of gluten in the equivalent of two slices of wheat bread) for 6-8 weeks preceding the antibody testing and for at least two weeks prior to the endoscopy/biopsy. Those are Mayo's guidelines. By goin gluten free before testing you risk invalidating the tests and injecting uncertainty into the diagnosis.

Scott Adams Grand Master

Welcome to the forum. I agree that your doctor should have ordered the tTG-IGA test. If your goal is to get a formal diagnosis that would help you stay gluten-free for life, then yes, you should keep eating gluten daily until all tests are done. However, ~10x more people have non-celiac gluten sensitivity than celiac disease, and for that there is currently no test available. To me it sounds, at the very least, like you have NCGS, and would likely need to go gluten-free either way, but this is for you to decide. If your symptoms are that bad, and go away when you exclude gluten, do you need any further confirmation?

RMJ Mentor
7 hours ago, Mamaof21985 said:

Atypical pANCA - negative

Saccharomyces cerevisiae, IgG 76.6

     (Range 0.0-24.9)

tTG/DGP Screen - negative 

It is difficult to tell exactly which celiac tests were done.  tTG/DGP does include both types of tests, but it doesn’t say whether it was IgA or IgG and doesn’t give numbers so one can’t tell if it is very negative or just under the cutoff for positive.

Saccharomyces is a type of yeast, and having antibodies to it as you do is a possible indicator of inflammatory bowel disease, thus the recommendation for a colonoscopy. (For celiac disease doctors do an endoscopy not a colonoscopy).

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Rebeccaj's topic in Super Sensitive People
      5

      symptoms.

    2. - trents replied to Rebeccaj's topic in Super Sensitive People
      5

      symptoms.

    3. - knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly Diagnosed

    4. - knitty kitty replied to Rebeccaj's topic in Super Sensitive People
      5

      symptoms.

    5. - Rebeccaj replied to Rebeccaj's topic in Super Sensitive People
      5

      symptoms.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,520
    • Most Online (within 30 mins)
      7,748

    Janice Smith
    Newest Member
    Janice Smith
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies.  Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine.  Vitamins are needed to break down histamine released from immune cells like mast cells that get over stimulated and produce histamine at the least provocation as part of the immune response to gluten. This can last even after gluten exposure is ended.  Thiamine supplementation helps calm the mast cells.  Vitamin D helps calm the immune system.  Other B vitamins and minerals are needed to correct the nutritional deficiencies that developed while the villi were damaged and not able to absorb nutrients.  The villi need vitamins and minerals to repair themselves and grow new villi. Focus on eating a nutritional dense, low inflammation diet, like the Autoimmune Protocol Diet, and supplementing to correct dietary deficiencies.  Once your body has the vitamins and minerals needed, the body can begin healing itself.  You can have nutritional deficiencies even if blood tests say you have "normal" blood levels of vitamins.  Blood is a transport system carrying vitamins from the digestive system to organs and tissues.  Vitamins are used inside cells where they cannot be measured.   Please discuss with your doctor and dietician supplementing vitamins and minerals while trying to heal.  
    • trents
      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
×
×
  • Create New...