Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I cannot stop eating gluten

Emily199

By Emily199
in Coping with Celiac Disease

 Share

Recommended Posts

Emily199 Newbie
Emily199
Posted

I recently found out I have IBS triggered by anxiety. I also realized that every time I eat food containing gluten I feel horrible. I bloat and look like I’m pregnant and I sleep all day. I always say I have to stop but I’m never home and eating out is a problem as they rarely have gluten free options 😞 I don’t know what to do I just can’t understand why I’m feeling so sick and tired all the time because I rarely eat gluten now

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted
(edited)

Emily, have you been tested for celiac disease? If you have celiac disease, please realize it can often take two weeks to recover from a glutening episode.

Edited by trents
captaincrab55 Collaborator
captaincrab55
Posted
36 minutes ago, Emily199 said:

I recently found out I have IBS triggered by anxiety. I also realized that every time I eat food containing gluten I feel horrible. I bloat and look like I’m pregnant and I sleep all day. I always say I have to stop but I’m never home and eating out is a problem as they rarely have gluten free options 😞 I don’t know what to do I just can’t understand why I’m feeling so sick and tired all the time because I rarely eat gluten now

Emily199, You have the power to control what you eat.   Most places offer a few gluten free options.   It's up to you to order food that's safe for you.    Hopefully you can get this under control, before your body starts rejecting other foods.   Remember, you have the power!   Good Luck

trents Grand Master
trents
Posted
3 minutes ago, captaincrab55 said:

Emily199, You have the power to control what you eat.   Most places offer a few gluten free options.   It's up to you to order food that's safe for you.    Hopefully you can get this under control, before your body starts rejecting other foods.   Remember, you have the power!   Good Luck

Ordering gluten free food items when in restaurants is only part of the issue. The more difficult part is not knowing how careful they are back in the kitchen during cooking and preparation. So, you may order gluten free spaghetti and the noodles may be made from rice, corn or potatoes but they boil them on the same pot that they have been boiling wheat noodles. Or, they toast your gluten free bread in the same  toaster they use for wheat bread. Or, they fry your ground beef patty on the same grill they just made French toast on. Or, they cut your gluten-free sandwich with the same knife they used to cut someone else's wheat bread sandwich. This is known as cross contamination.

captaincrab55 Collaborator
captaincrab55
Posted

Emily199,   Many of us here aren't newbies, including me.    Eating out does have a risk factor involved and one needs to learn to question how the gluten-free foods are prepared.   Many places have a web site with contact info and you need to use it to inquire as to your concerns.   Some of us here have DH as well as celiac disease.   I can't have bananas, corn, dairy, nuts, onions or strawberries.   After suffering undiagnosed for 56 years, it made sense to catch on fast and feel better.    The longer you fight it, the better the chances of developing other gluten related issues.   Remember, you have the power.   Good Luck

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,792
    • Most Online (within 30 mins)
      7,748
    Neca
    Newest Member
    Neca
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Confused about my results

      By Russ H · Posted

      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
×
×
  • Create New...