Covid caused reoccurrence of DH without eating gluten

[CDFAMILY]

Hi, it has been years since I posted.  I think I was posting back when it first started sometime around 2003 or so???  It was so helpful and a wonderful site to find help with all the questions we had early on!

I probably had Celiac most of my life but was not Dx until 2005.  I first was diagnosed with Celiac and then had a DH breakout a few months later...so I have both.  I had Covid last April and recovered quickly and then I got covid again right after Christmas this year.  I lost my smell and taste both times.  This second time I also woke up about 3 days after onset with the horrible DH rash on both sides of my back and was wondering if this has happened to anyone else.  Our entire family including husband and 3 children have been dx with celiac so we never have gluten in the house.  I take lots of vitamins that are definitely gluten free and eat only organic/NonGMO and unprocessed foods.

Has anyone else experienced this?  My brother-in-law also experienced the same thing in November of this year.  He is also dx with DH.

[CDFAMILY]

5 minutes ago, CDFAMILY said:

Hi, it has been years since I posted.  I think I was posting back when it first started sometime around 2003 or so???  It was so helpful and a wonderful site to find help with all the questions we had early on!

I probably had Celiac most of my life but was not Dx until 2005.  I first was diagnosed with Celiac and then had a DH breakout a few months later...so I have both.  I had Covid last April and recovered quickly and then I got covid again right after Christmas this year.  I lost my smell and taste both times.  This second time I also woke up about 3 days after onset with the horrible DH rash on both sides of my back and was wondering if this has happened to anyone else.  Our entire family including husband and 3 children have been dx with celiac so we never have gluten in the house.  I take lots of vitamins that are definitely gluten free and eat only organic/NonGMO and unprocessed foods.

Has anyone else experienced this?  My brother-in-law also experienced the same thing in November of this year.  He is also dx with DH.

Also, I have not been vaccinated.

[Scott Adams]

It's never too late to get vaccinated...that is, until it's too late! 🙂

And, welcome back! 

Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into your diet, but who knows? It will be interesting to see if this has happened to others.

[CDFAMILY]

On 1/25/2022 at 1:40 PM, Scott Adams said:

It's never too late to get vaccinated...that is, until it's too late! 🙂

And, welcome back! 

Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into your diet, but who knows? It will be interesting to see if this has happened to others.

LOL, well, I have low Platelets/ITP/Thrombocytopenia and Low white counts so my Drs. advised me not to take the vaccines.  The first part of the covid Dec 28...was the typical flu with fever and headache that lasted less than 3 days.  I think the rash started then.  I thought wow this was easy but the next day the mucousy cough started that lasted about a week.  I lost my taste, but it is almost back now.  I did use Ivermectin and hydroxycloroquine.  Plus a lot of vitamins!  I did not get major fatigue.  My husband on the other had had a mild fever 102 and severe back pain at night and used IBpro. which he never uses...ever!  He also was better in about 3 days with this....but he then started the difficulty breathing and major fatigue...we had an oxymeter so we kept close watch and had a couple scary days but he finally turned the corner and is back to the gym.  What is interesting is, this probably came from a Xmas eve visit by my neighbors for 15 or so minutes...no one was sick but a few days later we got the call the mom and dad tested positive.  So, I had the same symptoms as the mom fever and mucousy cough and my husband had the same symptoms as the father.  The father was dx with pneumonia which we recently found out.

The possibility of gluten in my house is zero to none lol!  No one is allowed to bring gluten into my house and we hadn't been anywhere or eaten anyone else's food.

The strange thing is by brother-in-law who we also haven't seen in months had the same symptoms as my husband and also had breathing issues and itchy red rash on his back...he was dx last year with DH.

 

 

[ravenwoodglass]

16 hours ago, CDFAMILY said:

  I did use Ivermectin and hydroxycloroquine. 

.

 

 

Likely one or the other or both of these drugs were not gluten free.

[Jacki Espo]

This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.