Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can coffee trigger symptoms in some people?


Aaron275

Recommended Posts

Aaron275 Enthusiast

Hi,

I recently noticed that I seem to be reacting to foods at certain times of the day and not at other times. For example, I seem to react to eggs if I eat them for breakfast, but not if I eat them for dinner. I noticed the same thing with green beans, cauliflower and broccoli. I tried eating these for lunch and I reacted to them (I'm not sure if it was all of them or just one). I eat green beans for dinner regularly and never react to them at that time of day. I eat cauliflower and broccoli less regularly, but I still don't react to them when eaten for dinner.

I've been racking my brain trying to find out why this is happening, and I think I might have an answer. I usually drink coffee in the morning and then stop around lunch time. Could coffee be causing this to happen? I don't notice any negative effect when drinking the coffee itself, but I know that the reaction doesn't always show up immediately. It makes sense that I'm having these reactions to foods at the time of day that I drink coffee, and then I'm able to tolerate those foods again later in the day when the coffee is mostly out of my system.

Has anyone had something like this happen? I know the obvious thing to try is to stop drinking coffee, but the last time I tried to give up caffeine the withdrawal symptoms were so bad. I didn't even make it to the end of the first day. So I am very hesitant to try again. I do want to give up caffeine at some point, but I'm wondering if there might be another caffeinated drink that I could switch to for the time being that might not give me this reaction? If this is even what is happening.

Your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aaron275 Enthusiast

I just noticed that caffeinated tea is allowed on the AIP diet. I'm going to try switching to that then and see if it helps.

I could probably give up caffeine if I absolutely had to, but I'd prefer not to go through the withdrawal right now.

Aaron275 Enthusiast

I'm also interested if anyone has any suggestions for what else could cause someone to react to foods at certain times of the day and not at other times. I can't really think of anything else it could be because the coffee is the only thing that is different.

Aaron275 Enthusiast

Sorry to keep replying to myself, but I just found an interesting study which shows that coffee and caffeine can increase IBS symptoms in some people:

https://www.frontiersin.org/articles/10.3389/fnut.2021.632469/full

Maybe I do need to give it up then.

Scott Adams Grand Master

Welcome to the forum!

Some people claim that coffee is a "cross-reactor" to gluten, and celiacs should avoid it. It's unclear what "cross-reactor" is meant, and I am skeptical about coffee causing issues with celiac, as it is gluten-free. However, if you were recently diagnosed and your gut is still not healed, then many foods, including coffee, might trigger IBS-like issues, and this may be due to the leaky gut state you are in. 

For me there were around 10 foods that I had to eliminate for months to a couple of years, before I could eat them again, including things like chicken eggs, garlic, tomatoes, casein/cow's milk, etc. After my gut healed I was able to add most back.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.