Waiting Biopsy Results For DH

[Kim K]

After 10 months of unexplained outbreaks of bumps, blisters, extreme itching, numerous doctor visits, allergy strip tests my dermatologist just sent a biopsy off for DH testing. From what I’ve read, DH makes perfect sense, I experience a tingling or burning sensation then a red bump will appear which more times than not will blister and the itching is so intense that there seems to be no relief.

My breakouts are on my torso and scalp mainly around my hairline. DH also makes sense since most of the medications I’ve been prescribed haven’t helped and wouldn’t have helped since I was still consuming gluten.  I also know that if positive for DH I will have to see a gastroenterologist for more testing.

My best friend has Celiac so I know what she goes through with gluten free diet, cross contamination and many other complications from it.  She will be my best resource but I also know that some things that might work for me but not work for her since she has other allergies that I don’t. 

My question for you fine folks is how are you affected?  Consuming, touching or even airborne?  I have read only by consumption of gluten but I know my friend will break out if she uses products such as shampoo that contains gluten and will get sick if she is in a room where flour for example is being used. 

I have already started gluten free diet just in case but what have you found to be your best resource for personal care products such as shampoos, conditioners and deodorant? I have downloaded the free Gluten Free app but 90% of what I’ve scanned comes back with no results/not in database.  TIA

[Scott Adams]

It can be difficult to make sure your diet and everything else is gluten-free, and the article below may be helpful, but if you have DH it's critical to do so.

Some people have mentioned that you can buy 5% Lidocaine creams over the counter, which can help with the itching. We don't have a single listing of gluten-free personal care products, but throughout our forum you can find them. There are threads here on gluten-free makeups, as well as articles we've done on them.

 

 

[L.P.]

On 2/2/2022 at 1:23 PM, Scott Adams said:

Hi @L.P., welcome! Are you currently gluten-free, and did you get a blood screening for celiac disease?

Yes. Blood screening and colonoscopy and  endoscopy 2013, 2021.  Major celiac diagnosis.. 2021 showed gluten-free diet is working well.  Extreme diverticulosis diagnosed in 2021.   Learning how to navigate your forum.  

[Scott Adams]

These links may be helpful:

 

 

[Anniehall]

On 2/10/2022 at 11:55 AM, Scott Adams said:

These links may be helpful:

 

 

I don't react to gluten externally that I notice but my skin is sensitive and most soap either makes me break out itch or have scalp sores. The only soap I can use is Burts Bees baby soap.