Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chilblains, Raynaud's Syndrome, Cold Hands & Feet

Russ H

By Russ H
in Related Issues & Disorders

 Share

Recommended Posts

Russ H Community Regular
Russ H
Posted

I have always suffered from cold hands and feet and had a mild Raynaud's type condition where my fingers would go white and numb. About 10 years ago, I began to get chilblains in winter. I haven't had a any chilblains this winter after going gluten-free. I also no longer suffer from cold hands and feet. Has anyone else had a similar experience?

There is a case report here:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7357047/

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

It's interesting that this appears to have been a symptom of your gluten sensitivity, and I also wonder how many others have this symptom. I ran a search of our site and got 230 hits, so it seems to be fairly common:

https://www.celiac.com/search/?q="cold hands"&quick=1&updated_after=any&sortby=relevancy

Russ H Community Regular
Russ H
Posted
  • Author

I couldn't find much on autoimmune disease and chilblains apart from lupus. I found a study investigating COVID toes (that are similar to chilblains) and the sufferers had raised IgA autoantibodies. Coeliac disease does seem to be associated with vasculitis, so maybe it can cause chilblains.

Russ H Community Regular
Russ H
Posted
  • Author

I just found an old paper, more of case study - 4 coeliac patients with cryoglobulinaemia. A condition were immunoglobulins reversibly precipitate out of the blood at low temperatures and cause vasculitis and skin lesions.

https://gut.bmj.com/content/13/2/112

More on cryoglobulinaemia in this link. I suppose for coeliac disease, it would be from IgA and so mixed type II/III cryoglobulinaemia.

https://www.autoimmuneregistry.org/essential-mixed-cryoglobulinemia

knitty kitty Grand Master
knitty kitty
Posted
(edited)

I found this article...

Raynaud's phenomenon and vitamin D

https://pubmed.ncbi.nlm.nih.gov/22580932/

And...

Chilblains in Turkey: a case-control study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3938353/

 

Many Celiacs are underweight and have Vitamin D deficiency.

Edited by knitty kitty
Typo
Russ H Community Regular
Russ H
Posted
  • Author

Yes, it could be malnutrition. However, coeliac disease is associated with vasculitis, and I suspect this goes beyond nutritional deficiency and is related to inmmunoglobulins.

knitty kitty Grand Master
knitty kitty
Posted

Vasculitis IS associated with Vitamin D Deficiency.

"Vitamin D Levels in Patients With Small and Medium Vessel Vasculitis"

https://pubmed.ncbi.nlm.nih.gov/33454206/

"Conclusion: Vitamin D deficiency and insufficiency are more frequent in patients with systemic small and medium vessel vasculitis and RA"

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Russ H Community Regular
Russ H
Posted
  • Author

Chilblains are associated with anorexia and bariatric surgery, so there is certainly a nutritional factor involved. The thing about vitamin D is that it serves as a proxy for being housebound or bedbound i.e. poor general health, so low vitamin D status ends up being associated with numerous conditions even when it is not the cause.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,738
    • Most Online (within 30 mins)
      7,748
    Jenn.mnc
    Newest Member
    Jenn.mnc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lizzie42
      Help figuring out stomach pain

      By lizzie42 · Posted

      Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone?  We cut out oats and it didn't make any difference. She doesn't drink milk, though she has cheese. It doesn't seem to coincide with the cheese. She says it hurts when she wakes and then other random times during the day.  We are SO strict with her food. We don't eat out, out whole house is gluten-free. I make everything from scratch. She eats very healthy. She's not picky and we do tons of fruit, veggies, meat, etc. we don't do a lot of processed food. 
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Ok so I couldn't find the thiamine you suggested but I was able to buy a bottle of 'standard' thiamine (100 mg). Should I just try half a tablet to see if I notice any difference? If it turns out it does have effect I can always buy the more expensive stuff. Or is that not a smart idea?
    • knitty kitty
      Ectopic heartbeats - any relation to digestive issues?

      By knitty kitty · Posted

      @cristiana, Yes, I found high carbohydrate meals would trigger mine as well.  I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine.  Heart palpitations are a symptom of thiamine insufficiency.  Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy.  The more carbs one eats, the more Thiamine is required to process the additional calories.  500 mg more Thiamine is required for every additional one thousand calories.  This is named "High Calorie Malnutrition."  Sufficient calories are being consumed, but not enough of thiamine to burn the carbs for energy.  Instead to ration out the small supply of thiamine, the additional calories are stored as fat.  It takes less thiamine to burn fat than to burn carbs.    Do read Dr. Lonsdale' article here... Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine.  The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain.  Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins.  It should tell you what form of thiamine is in it.  If it says thiamine mononitrate, you're probably not getting sufficient thiamine.  Thiamine Mononitrate is a form used in vitamin supplements and foods because it is shelf stable.  Shelf stable means it won't break down when exposed to heat and light sitting on a shelf waiting to be bought in a store or warehouse.  It also is very difficult for the body to break it down and utilize it.  Only about thirty percent of the amount of thiamine mononitrate on the label is absorbed.   Do take a look at Dr. Lonsdale and Dr. Marrs' website hormonesmatter.com.  Dr. Lonsdale has done much research on Thiamine.   Keep us posted on your progress!
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14 The Spectracell Test for Micronutrient Deficiencies tests  intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream.  This still is not reflective of current stored vitamin levels inside organs.   The genetic MTHFR mutation does occur frequently with Celiac Disease.  Taking the methylated (activated) forms of the B vitamins is necessary.   A good multivitamin may not be sufficient to correct deficiencies.  Malabsorption due to the intestinal damage of Celiac Disease may prolong deficiency states.  Vitamin deficiencies need to be corrected quickly to prevent long-term problems.  Taking a B Complex twice a day increases absorption.  Taking a multivitamin as well is fine as multivitamins usually also contain some necessary minerals.
×
×
  • Create New...