Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Normal?


Ginger38

Recommended Posts

Ginger38 Rising Star

I feel physically and mentally absolutely terrible. My muscles are tender to touch. Im extremely exhausted. I can’t focus or work. Yesterday I was in the bathroom all day. Is this a normal reaction to gluten consumption even if it’s not a huge amount?  If so how long does this last? Ive been in tears I feel so poorly and I’m scared I’m not going to get back to my normal. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks.

This may be a bit late, but this article may be helpful:

 

Ginger38 Rising Star
On 5/2/2022 at 1:29 PM, Scott Adams said:

People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks.

This may be a bit late, but this article may be helpful:

 

Thank you. This makes sense 

C4Celiac Contributor

Are you eating at Restaurants off Gluten free menus?

Or eating packaged foods that are not labeled "Certified Gluten Free"

Ginger38 Rising Star
11 hours ago, C4Celiac said:

Are you eating at Restaurants off Gluten free menus?

Or eating packaged foods that are not labeled "Certified Gluten Free"

Yes I’ve been doing both 

C4Celiac Contributor

Then you're eating gluten from Restaurants. You can't eat from gluten free menus from Restaurants regularly. You will eventually be eating Gluten. 

 

Ginger38 Rising Star
38 minutes ago, C4Celiac said:

Then you're eating gluten from Restaurants. You can't eat from gluten free menus from Restaurants regularly. You will eventually be eating Gluten. 

 

So you feel like these physical symptoms are a reaction to gluten? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



C4Celiac Contributor

Probably if you have Celiac.

I haven't been eating gluten for 1 year and 9 months and still don't feel 100% yet.   And I never eat at restaurants... 

What's your anti body levels..

Stop eating at restaurants from gluten free menus.

Don't eat anything packaged that isn't certified gluten free.

Ginger38 Rising Star
16 hours ago, C4Celiac said:

Probably if you have Celiac.

I haven't been eating gluten for 1 year and 9 months and still don't feel 100% yet.   And I never eat at restaurants... 

What's your anti body levels..

Stop eating at restaurants from gluten free menus.

Don't eat anything packaged that isn't certified gluten free.

My antibody levels are a weak positive 

C4Celiac Contributor
6 hours ago, Ginger38 said:

My antibody levels are a weak positive 

then you have celiac

Ginger38 Rising Star
4 hours ago, C4Celiac said:

then you have celiac

Thank you so much, this is what I have been trying to clarify. Talking to you made it very simple. Thanks again 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,247
    • Most Online (within 30 mins)
      7,748

    Noisette
    Newest Member
    Noisette
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.