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Newly diagnosed - Very anxious

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C4Celiac Contributor
C4Celiac
Posted
26 minutes ago, sadfaceemoji said:

just wondering if anyone else continued to lose weight a short while after going gluten free? is this normal? i don't know if it is stress or that i've started eating a lot more fruit and veg or something else. im being as careful as possible & i know it may take a while to get my weight 'back to normal' but any advice / experiences with weight appreciated 

I lost about 10 pounds after going gluten free...   In the beginning before I was diagnosed and still eating gluten I only lost about 3 - 4 pounds.   After I changed my diet I lost a ton of weight..   another 7 pounds at least..

almost 2 years later I still haven't gained my normal weight back. I only gained about 3 pounds back...  My antibody level is still high but barely out of normal now ( 5 points away from normal ).. just weak positive level so i doubt it's the celiac anymore at this low level..   I think its the diet itself...  

I bet if I started eating gluten again for a month I'd gain all my weight back by the end of the month. There's no fat in this stupid gluten free diet..  

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trents Grand Master
trents
Posted
5 hours ago, sadfaceemoji said:

just wondering if anyone else continued to lose weight a short while after going gluten free? is this normal? i don't know if it is stress or that i've started eating a lot more fruit and veg or something else. im being as careful as possible & i know it may take a while to get my weight 'back to normal' but any advice / experiences with weight appreciated 

How many calories per day are you taking in? Realize that when we cut out gluten we typically eliminate a major source of calories in our diet. Have you been checked for SIBO and H. Pylori? Pain under the ribs might be gallbladder issues?

sadfaceemoji Rookie
sadfaceemoji
Posted
  • Author

I realise that maybe i am not taking in enough calories - I started tracking yesterday out of interest! I did not realise quite how little calories are in gluten-free alternatives. 

Also, i will look at tests for SIBO, H.Pylori and gallbladder. 

I have had full blood tests recently including most issues (first appointment with GI so he was eager to do this) which just indicated some borderline vit deficiencies. 

I am still struggling with on-and-off pain in my ribs which can either be in the left or right , sometimes worse after eating ANYTHING , sometimes random. Again, not sure if stress-related.  Also struggling with on-and-off loose or 'mushy' stools too (Sorry - TMI). Not sure if normal even after 2 months gluten-free? 

Thanks again for replying all.  

 

 

trents Grand Master
trents
Posted

Your stools should be firming up by now if you have been eating gluten free, unless the cause is some other medical condition or another food intolerance not gluten-related. Don't worry about "TMI". In this forum context, it is just necessary to talk straightforwardly about those things. If the pain under the ribs can be on either side then it's not gallbladder issues. Gas or gastritis maybe.

MADMOM Community Regular
MADMOM
Posted
2 hours ago, trents said:

Your stools should be firming up by now if you have been eating gluten free, unless the cause is some other medical condition or another food intolerance not gluten-related. Don't worry about "TMI". In this forum context, it is just necessary to talk straightforwardly about those things. If the pain under the ribs can be on either side then it's not gallbladder issues. Gas or gastritis maybe.

i had same on and off pains in first 8 months but actually gained weight that i needed but not to this extent - my dr says it’s a good sigh that im absorbing foods and vitamins but i also went through early menopause so it’s tough to lose  - watch what you eat keep track and take the correct supplements - you will see slowly but surely you will feel better 

  • 4 weeks later...
Arseling Newbie
Arseling
Posted

I’ve just been diagnosed myself. I’ve been fighting iron defficiency anemia for a lo g time. After 6 years and 5 doctors, I finally found a GI that knew his beans. After a double scoping (the freakin’ third, gonna start charging toll lol!), he found something that was concerning enough to have me get a blood test done. He had them test for celiac and lo and behold! There it was. 
It’s only been a couple weeks, but there is a noticable difference already. It’s nice being able to eat without my stomach hurting or running to the bathroom! I sleep a bit better now too. It’s going to be a long road, but I’m looking forward to trip! It’ll be a relief to feel better!

So if anyone has any suggestions, I’m all ears! Thanks!

trents Grand Master
trents
Posted

Welcome to the forum, Arseling!

Avoid eating out like the plague.

This also may be helpful: https://celiac.org/about-the-foundation/featured-news/2016/01/gluten-free-101-need-know/

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Wheatwacked Veteran
Wheatwacked
Posted

Here is the list of what I eat. They are all gluten free with little chance of cross contamination. To increase muscle mass eat more protein and less carbs.

  • Cottage Cheese 
  • Oranges
  • Waternellon
  • Meat
  • Bananas
  • Vegatables

Meal planning for athletes

"A growing body of research indicates that protein intakes well above the current Recommended Dietary Allowance help to promote healthy aging, appetite regulation, weight management, and goals aligned with athletic performance. "  Protein “requirements” beyond the RDA: implications for optimizing health 

Scott Adams Grand Master
Scott Adams
Posted
3 hours ago, Arseling said:

I’ve just been diagnosed myself. I’ve been fighting iron defficiency anemia for a lo g time. After 6 years and 5 doctors, I finally found a GI that knew his beans. After a double scoping (the freakin’ third, gonna start charging toll lol!), he found something that was concerning enough to have me get a blood test done. He had them test for celiac and lo and behold! There it was. 
It’s only been a couple weeks, but there is a noticable difference already. It’s nice being able to eat without my stomach hurting or running to the bathroom! I sleep a bit better now too. It’s going to be a long road, but I’m looking forward to trip! It’ll be a relief to feel better!

So if anyone has any suggestions, I’m all ears! Thanks!

This article may be helpful:

 

Arseling Newbie
Arseling
Posted
On 6/22/2022 at 1:23 PM, trents said:

Welcome to the forum, Arseling!

Avoid eating out like the plague.

This also may be helpful: https://celiac.org/about-the-foundation/featured-news/2016/01/gluten-free-101-need-know/

I do. Co-worker gave me a link that searches for gluten free places to eat. Or at least have gluten free items.

trents Grand Master
trents
Posted
3 minutes ago, Arseling said:

I do. Co-worker gave me a link that searches for gluten free places to eat. Or at least have gluten free items.

Ordering gluten free items, even from the gluten free section of a menu, avoids only part of the potential problem. It's what goes on in the kitchen with regard to preparation and handling that is more the problem in restaurants. Here are some cases in point. You order gluten free spaghetti but they may boils those gluten free noodles in the same pot as they do wheat noodles. Or, you order a hamburger without the bun. But they cook it on the same griddle as they do breaded fish sticks. Or you they offer sandwiches with gluten free bread. But they cut the sandwich with the same knife they used to cut the other customers' wheat bread sandwiches. Most people who are new to the celiac experience don't understand the danger of cross contamination and don't take it seriously. It's not a matter of just cutting out major sources of gluten. That's just a low gluten diet, not gluten free.

Arseling Newbie
Arseling
Posted
4 minutes ago, trents said:

Ordering gluten free items, even from the gluten free section of a menu, avoids only part of the potential problem. It's what goes on in the kitchen with regard to preparation and handling that is more the problem in restaurants. Here are some cases in point. You order gluten free spaghetti but they may boils those gluten free noodles in the same pot as they do wheat noodles. Or, you order a hamburger without the bun. But they cook it on the same griddle as they do breaded fish sticks. Or you they offer sandwiches with gluten free bread. But they cut the sandwich with the same knife they used to cut the other customers' wheat bread sandwiches. Most people who are new to the celiac experience don't understand the danger of cross contamination and don't take it seriously. It's not a matter of just cutting out major sources of gluten. That's just a low gluten diet, not gluten free.

Thank you! Didn’t think about that. DUH! The adjusting is difficult, but I’m getting used to it...slowly lol! They took away my 5 basic food groups...fried, greasy, bbq, chinese and beer! The bbq really hurt. But it needed to be done. One day at a time.

Arseling Newbie
Arseling
Posted

Thank you! Didn’t think about that. DUH! The adjusting is difficult, but I’m getting used to it...slowly lol! They took away my 5 basic food groups...fried, greasy, bbq, chinese and beer! The bbq really hurt. But it needed to be done. One day at a time.

Wheatwacked Veteran
Wheatwacked
Posted
27 minutes ago, Arseling said:

fried, greasy, bbq, chinese and beer!

Those were just diversions to keep you eating wheat which they add to these foods because wheat makes you want to eat more. Wheat is addictive.

You stopped eating fried. Did you get better?

You stopped eating bbq. Did it help anything?

Gave up Chinese and beer. Any better? Use Tamari instead of Soy Sauce.

I don't like beer but was addicted to Vodka untill I started GFD. My 30 year stint with alcoholism just ended that week.

Gave up gluten. AHA!

Just make sure the greasy, fried, Chinese bbg has no gluten added. Best, learn to make your own.

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