Pregnant, glutened and terrified

[LCArseneault]

I was diagnosed after my third miscarriage as part of recurrent pregnancy loss workup. I really didn’t have much in terms of GI symptoms at all and would have never guessed. I’ve been gluten free for 3 months now and am 7 weeks pregnant, and was told my nachos were gluten free but I looked at the ingredients and they very much are not - the multigrain Tostitos. I ate probably 3/4 of a bag over the course of a couple of days. I am petrified of miscarrying again. It seems from what I can read that the anti-TTg can damage the placenta. Anyone have any similar experiences they can share? 😩

[Wheatwacked]

37 minutes ago, LCArseneault said:

was told my nachos were gluten free but I looked

Hi @LCArseneault Welcome to the Forum. I am sorry to hear of your miscarriages. Congrats on the new pregnancy. My wife had three miscarriages before our son was born in 1976. He was diagnosed with Celiac as an infant when he was weaned. You would think that 42 years later there would be progress but there is still denial. It took a few months of Nutramagen baby formula exclusively followed by reweaning onto a gluten free diet tp recover and he grew up strong and healthy. At the time he was one of 13 children diagnosed in the country. It was suggested because I was a very colicky baby that I should see what a GFD does for me. I was 25 and had no digestive issues ( I did not consider underweight, and picky eater). Well in 2014 I finally tried it when I realized that at 63 I was the spitting image of my infant son with his bloated infant belly, unable to stand more than 5 minutes. Problems that had been blamed on alcohol cigarettes and age disappeared. I counted 18. Alcohol addiction (30 years) just went away. After a lifetime of being a mouth breather my nose works and the shortness of breath, blamed mostly on tobacco has completely resolved despite continuing to smoke a pack a day (not proud, just fact). The point here is get your husband on board with getting tested and regardless of the results, at least of month of GFD. The whole house being GFD will improve yours, your baby's and your husbands quality of life.

Nutritional deficiencies are comorbid with Celiac and these deficiencies will affect your pregnancy. Folate is well known for neural tube defects like spina bifida but choline works with folate. Estimate less than 10% eat the minimum recommended of choline.

Low choline levels in pregnant women raise babies' risk for brain and spinal-cord defects, study shows   "Choline, an essential nutrient found in egg yolks, soy, wheat germ and meats, was the only nutrient measured whose blood levels were linked to risk of neural tube defects."

Iodine and fertility: do we know enough?   "In this article, the metabolism of iodine and its potential role in fertility will be discussed, including the impact of both iodine deficiency and excess states and the importance of iodine in normal fetal development ...  Mills et al. (2018) conducted a study in over 500 women in the USA and found that those with lower urinary iodide levels had a 46% reduction in fertility. Moreover, women with low iodine levels also took longer to conceive, with 28% of the iodine deficient group failing to conceive at 12 months compared to only 12.5% in the iodine sufficient group. This suggests that iodine deficiency may contribute to a proportion of UI in developed countries (Mills et al., 2018). Another study in West Africa showed that women with iodine deficiency have twice the risk of reproductive failure and again, the risk of reproductive failure being directly proportional to the severity of iodine deficiency (Dillon and Milliez, 2000)."

Vitamin D and Pregnancy  A recent study found women taking 4,000 IU of vitamin D daily had the greatest benefits in preventing preterm labor/births and infections ...    The study confirmed vitamin D at this level is not only safe for you, but for your baby, and the researchers from this study now recommend this daily dosage of vitamin D for all pregnant women. The average prenatal vitamin only contains 400 IU of vitamin D, so additional supplementation should be taken daily.

[NNowak]

9 hours ago, LCArseneault said:

I was diagnosed after my third miscarriage as part of recurrent pregnancy loss workup. I really didn’t have much in terms of GI symptoms at all and would have never guessed. I’ve been gluten free for 3 months now and am 7 weeks pregnant, and was told my nachos were gluten free but I looked at the ingredients and they very much are not - the multigrain Tostitos. I ate probably 3/4 of a bag over the course of a couple of days. I am petrified of miscarrying again. It seems from what I can read that the anti-TTg can damage the placenta. Anyone have any similar experiences they can share? 😩

After diagnosis at age 24, I experienced infertility and three second term miscarriages. I also have 4 beautiful children- now ages 15-24. Ask your practitioner about progesterone. Methylated B complex prior to your pregnancy, and during, is essential. You may need choline as well - phosphatidylcholine. Check with your OB.

Right now detox with a lot of water and rest. Focus on what you can control by eating only what you’re familiar with. Please reduce your stress with this. I fully understand your anxiety about this - I’m sorry you are going through this. Hugs 💕

[Scott Adams]

Try to relax, as extra stress won't be able to turn back the clock. I think this unfortunate episode is unlikely to cause a miscarriage. I would, however, be extra vigilant about your gluten-free diet, and it sounds like you will be going forward. This article may help:

 

[Sabaarya]

On 5/23/2022 at 6:39 PM, NNowak said:

After diagnosis at age 24, I experienced infertility and three second term miscarriages. I also have 4 beautiful children- now ages 15-24. Ask your practitioner about progesterone. Methylated B complex prior to your pregnancy, and during, is essential. You may need choline as well - phosphatidylcholine. Check with your OB.

Right now detox with a lot of water and rest. Focus on what you can control by eating only what you’re familiar with. Please reduce your stress with this. I fully understand your anxiety about this - I’m sorry you are going through this. Hugs 💕

Hi. I had 2 miscarriages before my son. Well at that time I hadn’t  been diagnosed with celiac yet. My doctor put me on baby aspirin and progesterone for 3 months and I was able to carry my baby. I did have occasional spotting during my pregnancy and was so panicking but thank god was able to have my baby…