Long haul covid from celiac disease

[Georgeann]

Hi I’m new but I have been gluten-free for a few years now . I have Lyme and mold illness and I’m celiac positive . I read that people with celiac are more prone to long haul covid due to the virus going through the holes in the small intestine to other parts of the body . I ended up with severe insomnia and phantom smells due to brain Inflammation from long haul . Just wondering if this happened to anyone else and did you get better . My celiac is more neurological symptoms. I don’t have gut pain . I do have terrible malabsorption of vitamins and minerals  . Thanks Georgeann 

[Wheatwacked]

Hi @Georgeann, Welcome to the forum. 

Do you have test results, celiac, vitamins, minerals, that you can share with range? After two years of gluten free you should be mostly healed and absorbing most of what you eat. You might redo the Celiac panal to see if you are truly gluten free. Or follow a diet to eliminate trace gluten for a while. Trace gluten contamination may play a role in mucosal and clinical recovery in a subgroup of diet-adherent non-responsive celiac disease patients You might be deficient in some because of your diet. Along with gluten you give up the vitamins and minerals that grains are fortified with. In addition Vitamin D, B1, choline and iodine and potasium are commonly deficient. You might try something like Geritol Multivitamin and additional vitamin D, choline and B1. Zinc is an antiviral. Eat more food with potassium, the DV is 4.7 grams. 

Did you get a penicillan shot for the lyme? Lyme is like syphillis, a spirochete, and  Penicillan G is the best at killing spirocetes. Many of your syptoms are seen in both. Mold also can have neurotoxins. Start with what you can fix. Much vitamins. Is the mold environmental? Increasing vitamin intake across the board will help your body do its job. Could be Celiac, could be Lyme or just simply vitamin D and Thiamine deficiencies, or others. It depends on what you eat. Any way step one is to deal with your vitamin and mineral deficiencies, even the best medications won't fix you if you don't.

Quote

Penicillin G is sometimes used off-label to treat prosthetic joint infections, Lyme disease, and leptospirosis.10 Penicillin V is occasionally used off-label to treat Lyme disease https://www.verywellhealth.com/whats-pencillin-1124178

 

Edited July 11, 2022 by Wheatwacked

[Scott Adams]

Welcome to the forum.

Celiac.com has summarized all the major research that has been done on covid-19 and celiac disease, and, so far at least, the research indicates that people with celiac disease are not at a higher risk of getting covid-19 or severe covid-19 compared to those without celiac disease. Of course, the amount of research done in this area is fairly limited so far, and more information may come out later, but it may be possible that you just had bad luck and are one of those who end up with long covid. 

Here is a recent study:

and here are all of our summaries on this:

https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles

[Georgeann]

12 hours ago, Wheatwacked said:

Hi @Georgeann, Welcome to the forum. 

Do you have test results, celiac, vitamins, minerals, that you can share with range? After two years of gluten free you should be mostly healed and absorbing most of what you eat. You might redo the Celiac panal to see if you are truly gluten free. Or follow a diet to eliminate trace gluten for a while. Trace gluten contamination may play a role in mucosal and clinical recovery in a subgroup of diet-adherent non-responsive celiac disease patients You might be deficient in some because of your diet. Along with gluten you give up the vitamins and minerals that grains are fortified with. In addition Vitamin D, B1, choline and iodine and potasium are commonly deficient. You might try something like Geritol Multivitamin and additional vitamin D, choline and B1. Zinc is an antiviral. Eat more food with potassium, the DV is 4.7 grams. 

Did you get a penicillan shot for the lyme? Lyme is like syphillis, a spirochete, and  Penicillan G is the best at killing spirocetes. Many of your syptoms are seen in both. Mold also can have neurotoxins. Start with what you can fix. Much vitamins. Is the mold environmental? Increasing vitamin intake across the board will help your body do its job. Could be Celiac, could be Lyme or just simply vitamin D and Thiamine deficiencies, or others. It depends on what you eat. Any way step one is to deal with your vitamin and mineral deficiencies, even the best medications won't fix you if you don't.

 

Yes I have a celiac positive blood test . I had mineral and vit test done . Low iodine , zinc , C and omegas . I’ve been doing the vitamins for many years now . I was is 7 years of strong ( 2 diff antibiotic at a time) for 7 years  then switched doctors and treated with herbal medicine . Had treatment for mold mycotoxin illness too ( 3 diff toxins) . I have all the blood work plus organic acid test done twice . Thanks 

[Wheatwacked]

100% Grassfed milk has about a 1 to 1 ratio of omega 6 : omega 3.Organic milk is about 3:1 and regular milk is 5:1.

 Modern American diets typically boast an omega-6 to omega-3 ratio around 10 to 1, sometimes as high as 30 to 1 while the optimal ratio for health is 4 to 1.   https://riverview.org/blog/uncategorized/get-an-oil-change-improving-your-omega-6-to-omega-3-ratio/

I eat sushi Nori, certified organic for iodine. I tear off pieces and wash it down with my morning coffee. One 2.5 gram sheet has 42 mcg iodine the safe upper toleration in the US is 1100 mcg. Lugol solution is another option but not as simple.

Wernicke’s Encephalopathy:  Role of Thiamine Wernicke’s encephalopathy (WE) is an acute neuropsychiatric disorder which arises as the result of an inadequate supply of thiamine to the brain. It can occur in the context of inadequate dietary intake, and is also seen in a number of medical conditions associated with excessive loss of thiamine from the body, or impaired absorption of thiamine from the intestinal tract... WE is not diagnosed prior to autopsy in 80% of cases. Clinicians fail to diagnose the syndrome, perhaps in the belief that it occurs less commonly than it does