Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have I Messed Up My Test?

Adr61
 Share

Recommended Posts

Adr61 Newbie
Adr61
Posted

Hello and hopefully anyone who reads this is doing well. I've had various health issues with no confirmed cause yet. I had covid in Feb that kind of started it all. Not too long after I ended up with colitis and the stomach pain never really went away. I ended up going to my doctor after a few months and we just really pinpointed gluten as a possible cause, this week I will be getting a blood test to confirm Celiac Disease. I had no clue what this was to be honest. Getting to the point as I have rambled, I didn't realize I needed to continue eating gluten before the test. I was only really gluten free for about 1 week. I have my blood work on Thursday. My doctor said to continue eating it and I should be okay for the test. I'm concerned I blew it though, if this test also comes back inconclusive I have no clue what comes next for me. I've lost 20lbs (bmi of 16.4 currently) and functioning normally can be tough. I'm rambling again, I can't help but worry if that one week off would be enough to cause the test to not be as accurate. My Dr. didn't seem all that concerned but she also said she doesn't have to do this test very often. I ordered a pizza today, it was great but I already feel like garbage.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum Adr64!

It is likely that the week off gluten will have a slight impact on the antibody test scores but unless they are very borderline positive it should not effect the big picture. To put this in perspective, when someone has been gluten free for a long time and wants to be tested to confirm their assumption of celiac disease then the "pretest gluten challenge" guidelines from the Mayo Clinic are the daily consumption of 2 slices of wheat bread for 6-8 weeks. 

It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which has many of he same symptoms as celiac disease but does not produce antibodies or damage the villi of the small bowel. So, there is no test for NCGS yet but it is 10x more likely than celiac disease.

trents Grand Master
trents
Posted

Also, ask your physician to order these tests: Total Serum IGA, tTG-IGA, Deamidated gliadin peptide (DGP IgA and IgG). 

Many physicians are fairly ignorant about celiac disease and testing and so will only order the tTG-IGA. Some people's immune systems react atypically so these other tests may catch what the tTG-IGA might miss.

Adr61 Newbie
Adr61
Posted
  • Author

Thanks so much for the reply and information! Would NCGS be able to cause colitis of the cecum? This is more of a curiosity for me. A few weeks after I got covid, I got colitis that put me in the hospital. The doctors still don't know what cause that but I still feel the pain in that spot of my stomach. I'm feeling absolutely awful after eating gluten. Again, thank you so much for the jnfo and just being there. I've had a tough 5 months and it's been hard getting to this point. 

trents Grand Master
trents
Posted

What I can tell you is that other bowel diseases are more common in the celiac population than in the general population. I don't think there is necessarily a cause and effect but more likely a genetic connection as, in general, autoimmune diseases tend to cluster. But, I really can't give a definitive answer to your question in regard to NCGS. We know much less about NCGS than we do about celiac disease. We aren't even sure what is the immune system pathway engaged by NCGS.

Adr61 Newbie
Adr61
Posted
  • Author

Interesting... Thanks for the advice, I'll have to call the office tomorrow and see if I can get ahold of the Dr before my test. No clue what tests I'm doing and no clue if she will have free time to get back to me before my test on Thursday. Thanks so much! Hopefully my tests will give me some answer to what's going on. 

trents Grand Master
trents
Posted

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

The link above will take you to a primer for celiac disease antibody testing.

Some experts believe NCGS may be a precursor to celiac disease.

Keep us posted.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Oliverg
      - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar. 2 hours later I was throwing up violently on my hands and knees over the loo. .horrendous stomach pains, My hair was wet fro...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

      Yes, do take your B Complex with Benfotiamine or Thiamax. Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day. Taking them too close to bedtime can keep you too energetic to go to sleep. The Life Extension Benfotiamine with Thiamine is Benfotiamine and...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
    4. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    5. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,762
    • Most Online (within 30 mins)
      7,748
    Nana 75
    Newest Member
    Nana 75
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Oliverg
      Glutened

      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.