Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very pale face compared to body?


DutchCeliac

Recommended Posts

DutchCeliac Newbie

Hello all, I am curious if there are people here who recognize themselves in the situation I am about to describe. I was diagnosed with celiac disease almost a year ago and have never eaten gluten on purpose except for 2 times (this is months ago). I never had problems with my stomach, but I did suffer from constipation, brain fog and some other vague complaints. All those complaints have disappeared almost immediately or after max 6 months, I feel very good. But I've always suffered from pale skin, I also have blond hair, so I won't get very brown. Only the weird thing is that my legs, arms and body do get a visible tan after exposure to the sun. Only my face has always been extremely pale, since I eat gluten-free, I have gotten a lot more color (less gray and pale) on my face. But I had also hoped that my face would tan in the summer, because that pale does not seem healthy to me. Especially if the rest of my body is coloring. It does seem to be getting a little better but still a huge difference with my arms and legs, also seems to be getting better periodically and then back off again. Is this just because my intestines are still recovering, or do people have experience with this, and will this always be the case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran
(edited)

 

Hello DutchCeliac

Welcome to the forum.

I have not read anything similar on the forum before but I hope someone else might come forward and be able to help.  Could you be suffering from anemia and your paleness be due, not to a lack of melanin, but to iron deficiency?

Cristiana

 

Edited by cristiana
DutchCeliac Newbie
11 minutes ago, cristiana said:

 

Hello DutchCeliac

Welcome to the forum.

I have not read anything similar on the forum before but I hope someone else might come forward and be able to help.  Could you be suffering from anemia and your paleness be due, not to a lack of melanin, but to iron deficiency?

Cristiana

 

Hey Cristiana,

No my Iron level was perfect before diagnosis, i did have an accident where i lost blood in february. But my Iron is now back to normal.

cristiana Veteran

Is the paleness uniform, or are there patches of skin which are lighter than others?

 

trents Grand Master

Perhaps you just have less melanin in the skin of your face than you do elsewhere.

cristiana Veteran

I wonder if, historically, as a child, your face was more protected from the sun than the rest of your body with sunscreen or a hat etc?  For years I hardly ever went out without either tights, a long skirt, trousers, etc  and to this day my legs just don't seem to react to the sun as quickly as my arms and face which have always regularly been exposed to the elements.  I have to put artificial tanning on my legs if I want them to match the rest of me!

knitty kitty Grand Master

@DutchCeliac,

Welcome to the forum!

Have you had your Vitamin D level checked?  

I found an interesting article about Vitamin D and pigmentation...

A Dermatologist's Perspective on Vitamin D

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3498088/

And...

https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/

 Getting your Vitamin D level up to 80 ng/mol is beneficial because Vitamin D helps regulate the immune system.

Hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DutchCeliac Newbie
3 hours ago, cristiana said:

Is the paleness uniform, or are there patches of skin which are lighter than others?

 

It is uniform on my head, maybe a little bit red on the cheeks

3 hours ago, trents said:

Perhaps you just have less melanin in the skin of your face than you do elsewhere.

Maybe, but normally there is more melanin in the face, because that part sees the sun more.

DutchCeliac Newbie
3 hours ago, cristiana said:

I wonder if, historically, as a child, your face was more protected from the sun than the rest of your body with sunscreen or a hat etc?  For years I hardly ever went out without either tights, a long skirt, trousers, etc  and to this day my legs just don't seem to react to the sun as quickly as my arms and face which have always regularly been exposed to the elements.  I have to put artificial tanning on my legs if I want them to match the rest of me!

No i never did wear a hat or use sunscreen as a kid as far as i know.

DutchCeliac Newbie
3 hours ago, knitty kitty said:

@DutchCeliac,

Welcome to the forum!

Have you had your Vitamin D level checked?  

I found an interesting article about Vitamin D and pigmentation...

A Dermatologist's Perspective on Vitamin D

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3498088/

And...

https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/

 Getting your Vitamin D level up to 80 ng/mol is beneficial because Vitamin D helps regulate the immune system.

Hope this helps!

Thank you! My blood test in december last year vitamine D was 41, a month ago it was 48. Apparently it's enough but i see many respectable sources that say for my age 50-75 is oke. And i'm also tall (1,93 cm) and heavy (87 kg), so maybe even more? I am going to take supplements for a while, and i will keep you updated if i see improvement.

itarachiu Enthusiast

I use to have pale face like all day untill I got diagnosticated and eliminated gluten from my diet, I still get pale face and nausea when I get gluneted from time to time by eating something fast without reading the ingredients. I was undiagnosticated for more than 10 years and people use to actually tell me that my face is to pale... well I was always felt sick, however after gluten free diet I start to get more brown skin, my skin is very white but now it does get brown more faster and it stays more brown if I do get exposed to sun. My friends also noticed, they told me all the time specially in the summer that they never seen me so brown so I believe the lack of vitamins can cause pale skin.

Another reason for my skin getting more brown is also because I do eat carrots now which I believe they help with the skin.

knitty kitty Grand Master

I found some interesting articles that describe Copper deficiency as having a role in pale skin.  

Copper is needed to make melanin (the pigment in skin, hair and eyes)! 

Pale skin and other symptoms could be a sign of insufficient copper.  

See if your symptoms match...

https://www.healthline.com/nutrition/copper-deficiency-symptoms

And...

https://www.healthline.com/health/copper-deficiency

And....

https://ods.od.nih.gov/factsheets/Copper-HealthProfessional/

And...

https://www.healthline.com/nutrition/foods-high-in-copper

Hope this helps!

trents Grand Master

But the issue OP is asking about is not pale skin per se but the uneven distribution of it on her exposed areas. 

knitty kitty Grand Master

She's asking about the paleness of her face.  

trents Grand Master
7 hours ago, knitty kitty said:

She's asking about the paleness of her face.  

From her first post: Only the weird thing is that my legs, arms and body do get a visible tan after exposure to the sun. Only my face has always been extremely pale, since I eat gluten-free, I have gotten a lot more color (less gray and pale) on my face. But I had also hoped that my face would tan in the summer, because that pale does not seem healthy to me. Especially if the rest of my body is coloring. It does seem to be getting a little better but still a huge difference with my arms and legs, also seems to be getting better periodically and then back off again.

knitty kitty Grand Master

Yes, but it's not like vitiligo.  Facial skin is finer and naturally won't get as dark as arms or legs.

Another possibility would be low blood pressure as in POTS (postural orthostatic tachycardia syndrome) but she's not mentioned those symptoms.  

It's a mystery!

knitty kitty Grand Master
On 7/26/2022 at 1:34 PM, DutchCeliac said:

Thank you! My blood test in december last year vitamine D was 41, a month ago it was 48. Apparently it's enough but i see many respectable sources that say for my age 50-75 is oke. And i'm also tall (1,93 cm) and heavy (87 kg), so maybe even more? I am going to take supplements for a while, and i will keep you updated if i see improvement.

Vitamin D does its best work when it gets around 80 nmol/l, at which level Vitamin D acts like a hormone and can regulate the immune system. 

I started feeling much better when I got my Vitamin D level up.  I was extremely deficient in Vitamin D and other vitamins and minerals as well.  It's very difficult to correct a deficiency by diet alone.  Extended vitamin deficiencies can cause health problems. 

Getting checked for vitamin and mineral deficiencies is part of proper follow up care for Celiac people.  Discuss the benefits of supplementing with vitamins, especially the eight essential B vitamins, and minerals while your intestines are healing with your doctor.  

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.