Symptoms after eating gluten

[celiac00]

Hi! 

I'm relatively new to celiac disease, and I still don't know how I react to gluten. I do eat gluten free, but I do eat out sometimes and I guess it is always a chance of having traces of gluten in gluten free foods at restaurants. I think one of my reactions could be itching on my face. Smetimes Ifeel some itching on the right side of my face, mainly near the jaw. Has anyone experienced this? Do you think it is gluten or something else? 

[Scott Adams]

It is certainly possible, and I eat out regularly as well, but I do take GliadinX (they are an advertiser here, but don't pay me to post about the product), which is an AN-PEP enzyme that has been shown in multiple studies to break down trace amounts of gluten/gliadin in the stomach, before it reaches your intestines. I used to get issues eating out, but after taking two of these before any meal outside my home, I no longer have any issues.

That said, of course the safest policy would be to never eat out, but for me that's not a possibility.

[celiac00]

44 minutes ago, Scott Adams said:

It is certainly possible, and I eat out regularly as well, but I do take GliadinX (they are an advertiser here, but don't pay me to post about the product), which is an AN-PEP enzyme that has been shown in multiple studies to break down trace amounts of gluten/gliadin in the stomach, before it reaches your intestines. I used to get issues eating out, but after taking two of these before any meal outside my home, I no longer have any issues.

That said, of course the safest policy would be to never eat out, but for me that's not a possibility.

Thank you so much for your answer Scott! For me, not eating out is not an option either, so thanks for the tips 😊

[Rogol72]

2 hours ago, Scott Adams said:

It is certainly possible, and I eat out regularly as well, but I do take GliadinX (they are an advertiser here, but don't pay me to post about the product), which is an AN-PEP enzyme that has been shown in multiple studies to break down trace amounts of gluten/gliadin in the stomach, before it reaches your intestines. I used to get issues eating out, but after taking two of these before any meal outside my home, I no longer have any issues.

That said, of course the safest policy would be to never eat out, but for me that's not a possibility.

I'm curious, how does that work for a three course meal in a restaurant spaced over a couple of hours? Is one pill sufficient for three courses?

[Scott Adams]

I would take 3, one right before each course. There seems to be no upper limit with how many you can take at once, within reason of course. I've been traveling and was in a place where they told me to forget about doing anything special with preparing my food (there was nothing else around for many miles), so I took 5 there (everything was cooked on the same large grill, pancakes, grilled sandwiches--right along with the hash browns and eggs I was ordering, etc. I did not have any issues from that meal, other than spending a bit extra money on the pills.

[MADMOM]

23 hours ago, celiac00 said:

Hi! 

I'm relatively new to celiac disease, and I still don't know how I react to gluten. I do eat gluten free, but I do eat out sometimes and I guess it is always a chance of having traces of gluten in gluten free foods at restaurants. I think one of my reactions could be itching on my face. Smetimes Ifeel some itching on the right side of my face, mainly near the jaw. Has anyone experienced this? Do you think it is gluten or something else? 

i just got that reaction the other day after being gluten-free for almost 2 years - i ate eggs and had tomatoes which generally never bothered me but i think i’ve grown allergic my face felt tingly and slightly numb by jaw on both sides -

[Kristy Bliss]

I react to eggs from our chickens if their feed is high proportion of wheat. I have to read the labels of their feed and pick the brand that uses more soy. Similarly I have heard of chicken owners who are allergic to soy avoiding that in the fowl feed to avoid having reactions.

[MADMOM]

do u experience similar symptoms ?  i had an itchy face across my lower part of face and jaw and a tingly feeling 

[Kristy Bliss]

My symptoms are consistently neurological.  

[MADMOM]

please describe if you can i get so nervous  i have been so good about eating clean 

[Scott Adams]

18 hours ago, Kristy Bliss said:

I react to eggs from our chickens if their feed is high proportion of wheat. I have to read the labels of their feed and pick the brand that uses more soy. Similarly I have heard of chicken owners who are allergic to soy avoiding that in the fowl feed to avoid having reactions.

This is very interesting and I wish I could test eggs from wheat-fed chickens with my Nima Sensor. I've heard that eggs are always safe, no matter what they eat, however, I've never seen any actual study or testing that has been done to verify this claim.

[sunflowers]

On 7/27/2022 at 3:19 PM, celiac00 said:

Hi! 

I'm relatively new to celiac disease, and I still don't know how I react to gluten. I do eat gluten free, but I do eat out sometimes and I guess it is always a chance of having traces of gluten in gluten free foods at restaurants. I think one of my reactions could be itching on my face. Smetimes Ifeel some itching on the right side of my face, mainly near the jaw. Has anyone experienced this? Do you think it is gluten or something else? 

I'm newly diagnosed so I'm still figuring out my non-GI symptoms, but I get really itchy on my arms. Like an unbearable itch that only loads of hydrocortisone can help. I also get itchy on my scalp and get sores. I think that's more DH, but I'm not sure. Sometimes my face and jaw get itchy, but for me it's mainly my arms and scalp. 

[Rogol72]

33 minutes ago, sunflowers said:

I'm newly diagnosed so I'm still figuring out my non-GI symptoms, but I get really itchy on my arms. Like an unbearable itch that only loads of hydrocortisone can help. I also get itchy on my scalp and get sores. I think that's more DH, but I'm not sure. Sometimes my face and jaw get itchy, but for me it's mainly my arms and scalp. 

Sounds like DH to me. It's the itch that won't go away, no matter how much you scratch! When I get glutened, I get what I can only describe as random pin pricks anywhere on the skin. Then the scalp becomes itchy first, I guess because it's got a large blood supply ... followed by the forearms and elbows.

[sunflowers]

5 minutes ago, Rogol72 said:

Sounds like DH to me. It's the itch that won't go away, no matter how much you scratch! When I get glutened, I get what I can only describe as random pin pricks anywhere on the skin. Then the scalp becomes itchy first, I guess because it's got a large blood supply ... followed by the forearms and elbows.

Exactly! It won't go away. Before I knew about DH or celiac, I would carry hand sanitizer around and when I got itchy I would pour sanitizer allll over my arms and that would kind of help. Maybe the alcohol in it? I'm sure I smelled lovely lol! 

[Sabaarya]

On 7/28/2022 at 5:54 PM, MADMOM said:

do u experience similar symptoms ?  i had an itchy face across my lower part of face and jaw and a tingly feeling 

Hi. Sometimes I get itchy tip of my nose. It started last year prior to my celiac diagnose and I was thinking maybe it’s some kind of allergy. I got it last week again,it’s not my whole nose just the tip of my nose. I was at birthday party last week and they had Mexican cuisine, I had rice with meat and I think I got glutened and had that itchy tip of nose again. Also I do have have problems with my feet and toes. Overall I feel much better than last year after my gluten-free diet but still some issues.

[Scott Adams]

For those with neurological issues I recommend taking a multi B-vitamin complex, and Benfotiamine:

Quote

"Benfotiamine is a lab-made version of vitamin B1, also called thiamine. Scientists are studying it to see if it might help conditions like diabetes-related nerve damage, Alzheimer's disease, and alcohol dependence. Early research into the potential benefits of benfotiamine has shown some promise"

Since my diagnosis in my mid-twenties I had ataxia issues in my feet, numbness and tingling, and in the last 5 years higher fasting blood glucose levels, just below the cut off range for diabetes. I always took a B-complex, but it wasn't until I started taking benfotiamine for 6 months or so that both issues went away. I recently did a fasting blood test where my glucose levels were in the normal range for the first time in many years, and I also have no more nerve issues with my feet. I suspect the two were related, and the higher glucose levels facilitated the nerve issues.

[River500]

On 7/27/2022 at 6:19 PM, celiac00 said:

Hi! 

I'm relatively new to celiac disease, and I still don't know how I react to gluten. I do eat gluten free, but I do eat out sometimes and I guess it is always a chance of having traces of gluten in gluten free foods at restaurants. I think one of my reactions could be itching on my face. Smetimes Ifeel some itching on the right side of my face, mainly near the jaw. Has anyone experienced this? Do you think it is gluten or something else? 

Yes, I get itchy when exposed to gluten.  It usually starts with hands, fingers and stomach.  Sometimes legs, face, etc…. Eating out is hard.  

[MADMOM]

On 7/28/2022 at 8:45 PM, Kristy Bliss said:

I react to eggs from our chickens if their feed is high proportion of wheat. I have to read the labels of their feed and pick the brand that uses more soy. Similarly I have heard of chicken owners who are allergic to soy avoiding that in the fowl feed to avoid having reactions.

i’ve been looking at the labels on the egg boxes but most only say vegetarian fed - nothing about wheat 

[Acacia Voynar]

On 8/1/2022 at 1:18 AM, Sabaarya said:

Hi. Sometimes I get itchy tip of my nose. It started last year prior to my celiac diagnose and I was thinking maybe it’s some kind of allergy. I got it last week again,it’s not my whole nose just the tip of my nose. I was at birthday party last week and they had Mexican cuisine, I had rice with meat and I think I got glutened and had that itchy tip of nose again. Also I do have have problems with my feet and toes. Overall I feel much better than last year after my gluten-free diet but still some issues.

I know this thread is over a year old, but I'm hoping you're still around. I am curious if the itchy tip of the nose you get happens immediately after your suspected glutening? I've been experiencing the same thing, and I'm trying to see if there is a way to pinpoint what the offending food may be (I don't eat outside of my own home, so I'm looking to identify the specific food).