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Other Digestive Issues While Intestines are Healing?

Ginger38
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Ginger38 Rising Star
Ginger38
Posted

During the intestinal healing phase and/or after healing, is it normal to have a change in the digestive system in general?

Do celiacs just have more tummy issues? Are there certain gluten free foods that you can no longer eat? Should I be sticking to a pretty bland diet for a good while ? 

Im having issues with reflux and just my stomach in general when I eat certain foods or certain types of foods 

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Rogol72 Community Regular
Rogol72
Posted
1 hour ago, Ginger38 said:

During the intestinal healing phase and/or after healing, is it normal to have a change in the digestive system in general?

Do celiacs just have more tummy issues? Are there certain gluten free foods that you can no longer eat? Should I be sticking to a pretty bland diet for a good while ? 

Im having issues with reflux and just my stomach in general when I eat certain foods or certain types of foods 

I've had issues with reflux having a HH. In my experience, any food or beverage item that will cause inflammation and/or bloating in the gut will cause reflux. Coeliacs are prone to developing IBS and SIBO which can cause reflux. I follow an AIP diet for the most part and take the supplements my body needs since fortified foods are off the menu. I've got it down to a fine art after much trial and error. I eat fruits and a lot of vegetables, mostly poultry and fresh fish and some red meat but not as much as I used to. It works for me.

Scott Adams Grand Master
Scott Adams
Posted

Although it sounds counter-intuitive, some research has shown that reflux can be caused by low stomach acid, rather than high stomach acid. Many doctors, almost reflexively now, prescribe PPI's for reflux, and in such cases this makes the issues worse. 

Posterboy Mentor
Posterboy
Posted
On 7/31/2022 at 3:02 AM, Rogol72 said:

I've had issues with reflux having a HH. In my experience, any food or beverage item that will cause inflammation and/or bloating in the gut will cause reflux. Coeliacs are prone to developing IBS and SIBO which can cause reflux. I follow an AIP diet for the most part and take the supplements my body needs since fortified foods are off the menu. I've got it down to a fine art after much trial and error. I eat fruits and a lot of vegetables, mostly poultry and fresh fish and some red meat but not as much as I used to. It works for me.

 

3 hours ago, Scott Adams said:

Although it sounds counter-intuitive, some research has shown that reflux can be caused by low stomach acid, rather than high stomach acid. Many doctors, almost reflexively now, prescribe PPI's for reflux, and in such cases this makes the issues worse. 

Rogol72,

If you are  not taking a PPI now.....then taking Niacinamide can help your GI upset....

See this abstract that shows why this is possible.

https://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm

About 20 years ago now Howard Hughes Medical Institute aka HHMI "Debunked" that GERD/Heartburn was caused by too high a stomach acid...

https://www.hhmi.org/news/excessive-growth-bacteria-may-also-be-major-cause-stomach-ulcers

But PPI use is as prominent as it has ever been......because It "Locks us in" to ever recovering from Low Stomach acid being misdiagnosed as high stomach acid instead....

I have written a blog post that might help you.

Here is another article that might help you as well....

https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/

And this one explains how to use baking soda to do a home test to see if your Stomach acid is really too low or too high?.....

https://drjockers.com/5-ways-test-stomach-acid-levels/

And I will give you a hint if you don't get a chane to read the whole posterboy blog post....it comes down to timeline....

Quoting

"Timeline is important in any diagnosis.

IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor

aka acid reducer’s or PPIs  for heartburn/GERD (medical name for heartburn) then eating food

(carbs, greasy things) wouldn’t bother you.

The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid.

BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn." etc. and the vicious cycle repeats!

I hope this is helpful but it is not medical advice.

Good luck on your continued journey!

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

Ginger38 Rising Star
Ginger38
Posted
  • Author
3 hours ago, Posterboy said:

 

Rogol72,

If you are  not taking a PPI now.....then taking Niacinamide can help your GI upset....

See this abstract that shows why this is possible.

https://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm

About 20 years ago now Howard Hughes Medical Institute aka HHMI "Debunked" that GERD/Heartburn was caused by too high a stomach acid...

https://www.hhmi.org/news/excessive-growth-bacteria-may-also-be-major-cause-stomach-ulcers

But PPI use is as prominent as it has ever been......because It "Locks us in" to ever recovering from Low Stomach acid being misdiagnosed as high stomach acid instead....

I have written a blog post that might help you.

Here is another article that might help you as well....

https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/

And this one explains how to use baking soda to do a home test to see if your Stomach acid is really too low or too high?.....

https://drjockers.com/5-ways-test-stomach-acid-levels/

And I will give you a hint if you don't get a chane to read the whole posterboy blog post....it comes down to timeline....

Quoting

"Timeline is important in any diagnosis.

IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor

aka acid reducer’s or PPIs  for heartburn/GERD (medical name for heartburn) then eating food

(carbs, greasy things) wouldn’t bother you.

The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid.

BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn." etc. and the vicious cycle repeats!

I hope this is helpful but it is not medical advice.

Good luck on your continued journey!

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

So if your acid is low greasy / fattening foods will cause heartburn? Like bacon, cream cheese in a dip etc? 

knitty kitty Grand Master
knitty kitty
Posted
16 hours ago, Ginger38 said:

So if your acid is low greasy / fattening foods will cause heartburn? Like bacon, cream cheese in a dip etc? 

Yes.  We need stomach acid (and bile from the gallbladder) to break fats apart.  

Posterboy Mentor
Posterboy
Posted
18 hours ago, Ginger38 said:

So if your acid is low greasy / fattening foods will cause heartburn? Like bacon, cream cheese in a dip etc? 

Ginger38,

I am afraid so....

See this Livestrong article that explains why this is so...

https://www.livestrong.com/article/467828-does-fat-slow-digestion/

It shows well how FAT delays stomach emptying…….combined with CARBs that ferment then you have the “Fire and gasoline” needed to trigger Heartburn/GERD etc….

Thinks of your many triggers……fatty or very sweet (chocolate etc.), bitter or acidic etc.

https://www.webmd.com/heartburn-gerd/features/top-10-heartburn-foods

Sweets (and/or CARBS) and Fats together is usually a bad combination for GERD etc.

Think Pizza.....fatty cheese, acid tomato sauce, carby crust etc......and that is something that routinely trigger GERD/Heartburn in people...

But if you separate your CARBS out and do either one or the other it will help you....

Or just go Low CARB for a while and you will see how it can help.

I hope this is helpful but it is not medical advice.

Posterboy,

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Ginger38 Rising Star
Ginger38
Posted
  • Author
4 hours ago, Posterboy said:

Ginger38,

I am afraid so....

See this Livestrong article that explains why this is so...

https://www.livestrong.com/article/467828-does-fat-slow-digestion/

It shows well how FAT delays stomach emptying…….combined with CARBs that ferment then you have the “Fire and gasoline” needed to trigger Heartburn/GERD etc….

Thinks of your many triggers……fatty or very sweet (chocolate etc.), bitter or acidic etc.

https://www.webmd.com/heartburn-gerd/features/top-10-heartburn-foods

Sweets (and/or CARBS) and Fats together is usually a bad combination for GERD etc.

Think Pizza.....fatty cheese, acid tomato sauce, carby crust etc......and that is something that routinely trigger GERD/Heartburn in people...

But if you separate your CARBS out and do either one or the other it will help you....

Or just go Low CARB for a while and you will see how it can help.

I hope this is helpful but it is not medical advice.

Posterboy,

I thought it was caused by tomato based foods, but I also have issues with bacon and I had a high fat low carb dip that caused me issues. So I thought this was interesting…. Trying to figure out my diet and what I can eat 

knitty kitty Grand Master
knitty kitty
Posted

Have you tried the Autoimmune Protocol Diet?  

It gave my tummy a break and I started feeling better quickly.  

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

And...

https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

Ginger38 Rising Star
Ginger38
Posted
  • Author
7 hours ago, knitty kitty said:

Have you tried the Autoimmune Protocol Diet?  

It gave my tummy a break and I started feeling better quickly.  

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

And...

https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

I have not, looks like there is not much to eat on that diet 

knitty kitty Grand Master
knitty kitty
Posted

@Ginger38,

I had to make a mental adjustment with Celiac Disease.  I had to learn how to eat to live, not live to eat.  

Hippocrates: “Let food be thy medicine and medicine be thy food."

The AIP diet is a bit sparse without carbohydrates from grains and starchy vegetables, but removing those gives the digestive system a rest from dealing with irritating plant lectins and glycoalkaloids that can cause continuing inflammation and Leaky Gut Syndrome.  Leaky Gut Syndrome is thought to be a factor in Celiac Disease activation.  (Gluten is able to slip through the leaking gut and travel in the circulatory system causing an autoimmune response.)  Cutting down on those carbohydrates also starves out "bad" bacteria in the gut.  These "bad" bacteria ferment undigested starches which can result in bloating, brain fog, and diarrhea or constipation and can spread from the large intestine where they belong into the small intestine where they are not supposed to be.  This is Small Intestinal Bacterial Overgrowth (SIBO).  Take away the carbohydrates and the bacteria feeding on them die off.  Beneficial bacteria will replace them.  Certain probiotics can be taken to help repopulate with beneficial bacteria after the die off.  

After this, carbohydrates can be reintroduced slowly.  With a rested and repaired digestive system and altered intestinal flora, the body is better able to cope with the carbs.

Allowing the intestines time to heal is essential.  Providing the nutrients, vitamins and minerals needed for repair by supplementing is beneficial while the digestive system heals.  

Yes, it can be a big mental change from thinking about eating for taste bud delight to thinking about eating for health.  

  • 2 months later...
Rogol72 Community Regular
Rogol72
Posted
On 8/4/2022 at 6:25 PM, knitty kitty said:

@Ginger38,

I had to make a mental adjustment with Celiac Disease.  I had to learn how to eat to live, not live to eat.  

Hippocrates: “Let food be thy medicine and medicine be thy food."

The AIP diet is a bit sparse without carbohydrates from grains and starchy vegetables, but removing those gives the digestive system a rest from dealing with irritating plant lectins and glycoalkaloids that can cause continuing inflammation and Leaky Gut Syndrome.  Leaky Gut Syndrome is thought to be a factor in Celiac Disease activation.  (Gluten is able to slip through the leaking gut and travel in the circulatory system causing an autoimmune response.)  Cutting down on those carbohydrates also starves out "bad" bacteria in the gut.  These "bad" bacteria ferment undigested starches which can result in bloating, brain fog, and diarrhea or constipation and can spread from the large intestine where they belong into the small intestine where they are not supposed to be.  This is Small Intestinal Bacterial Overgrowth (SIBO).  Take away the carbohydrates and the bacteria feeding on them die off.  Beneficial bacteria will replace them.  Certain probiotics can be taken to help repopulate with beneficial bacteria after the die off.  

After this, carbohydrates can be reintroduced slowly.  With a rested and repaired digestive system and altered intestinal flora, the body is better able to cope with the carbs.

Allowing the intestines time to heal is essential.  Providing the nutrients, vitamins and minerals needed for repair by supplementing is beneficial while the digestive system heals.  

Yes, it can be a big mental change from thinking about eating for taste bud delight to thinking about eating for health.  

How long did it take you to heal on the AIP diet? Were you ever able to introduce nightshades? I tried potato salad this week, it was a very unpleasant experience. 

knitty kitty Grand Master
knitty kitty
Posted
1 hour ago, Rogol72 said:

How long did it take you to heal on the AIP diet? Were you ever able to introduce nightshades? I tried potato salad this week, it was a very unpleasant experience. 

I had some bumps along the way, and severe nutritional deficiencies that needed attention and time to correct.  It wasn't a straight progression.  Some days it felt like "two steps forward and one step back", but I kept at it. Everyone is different. 

The longer I was on the AIP diet, the more my body "relaxed".  The inflammation left, the anxiety left.  I had to resist adding things back into my diet too quickly or too close together because I didn't want that inflammation back.  

I've tried adding nightshades back at various times.  Cherry tomatoes on a salad occasionally  are okay now, but spaghetti sauce is very scary.  So is eggplant.  Frozen or drive through French fries are a no go, but a baked potato is okay once in a while (no butter, no sour cream).  Peppers are not a good idea either.  I can do without jalapeno spicy.  

Oh, stay away from high fructose corn syrup.  Recently read an study from NIH that reported HFCS promotes SIBO by providing a substrate for bacteria to grow into the small intestine.  Really creepy.  

Mustard has been a problem for me.  Some potato salad has mustard in it.  Some has wheat added if you're buying prepared potato salad, so read the label.

Keep at it!  It will get better!

 

Rogol72 Community Regular
Rogol72
Posted
3 minutes ago, knitty kitty said:

I had some bumps along the way, and severe nutritional deficiencies that needed attention and time to correct.  It wasn't a straight progression.  Some days it felt like "two steps forward and one step back", but I kept at it. Everyone is different. 

The longer I was on the AIP diet, the more my body "relaxed".  The inflammation left, the anxiety left.  I had to resist adding things back into my diet too quickly or too close together because I didn't want that inflammation back.  

I've tried adding nightshades back at various times.  Cherry tomatoes on a salad occasionally  are okay now, but spaghetti sauce is very scary.  So is eggplant.  Frozen or drive through French fries are a no go, but a baked potato is okay once in a while (no butter, no sour cream).  Peppers are not a good idea either.  I can do without jalapeno spicy.  

Oh, stay away from high fructose corn syrup.  Recently read an study from NIH that reported HFCS promotes SIBO by providing a substrate for bacteria to grow into the small intestine.  Really creepy.  

Mustard has been a problem for me.  Some potato salad has mustard in it.  Some has wheat added if you're buying prepared potato salad, so read the label.

Keep at it!  It will get better!

 

Thanks for this! I was curious about other people's experience on AIP and yours sounds all too familiar to me. It was homemade potato salad with new potatoes (skins on and chopped) and Hellman's Mayonnaise which contains paprika extract. I've read that the skins on potatoes have the most alkaloids. Nightshades are just as evil if not more than gluten! They send me into a funk for a whole day after consumption. I had been doing great and have had some bumps recently that are really frustrating ... tamping down inflammation is the key. I have noticed that mustard in store made potato salad is problematic also. Mayonnaise I believe has HFCS. Thanks again.

Rogol72 Community Regular
Rogol72
Posted

@knitty kitty, One other question, I also tried some bacon rashers two days in a row for breakfast. Between watching histamine foods, avoiding excess iodine and not being able to handle gluten-free oats, it's hard to find something filling to eat for breakfast! Here's the ingredients ... 

Irish Pork (88%), Water, Salt, Preservatives (Sodium Nitrate, Sodium Nitrite), Antioxidant (Sodium Ascorbate)

Can the nitrates and nitrites cause similar problems as alkaloids? It was a scary trip of agitation and anxiety that lasted two days.

knitty kitty Grand Master
knitty kitty
Posted

I have problems with nitrates and nitrites.  Celiac people seem to produce more nitrites as part of the inflammation process anyway, so adding dietary nitrates and nitrites add to the load our bodies must cope with.

I usually get severe migraines after nitrite and nitrate exposure. 

Vitamin C is helpful.  Sodium ascorbate in the list of ingredients is Vitamin C.  

I found an article that explains more.

https://www.healthline.com/nutrition/are-nitrates-and-nitrites-harmful

 

Breakfast is a meal.  Think outside the box.  You can have other foods for breakfast.  You're not limited to bacon and eggs and oatmeal.

With Celiac Disease, you have carte blanche to eat hamburgers or steak for breakfast.  Whatever works for you.

There's the old adage...

Eat breakfast like a king, lunch like a prince or princess, and dine like a pauper.  

This philosophy fits in with fasting.  Fasting in the evening and overnight has been helpful for some Celiacs.  

You're doing great!  

Rogol72 Community Regular
Rogol72
Posted
44 minutes ago, knitty kitty said:

I have problems with nitrates and nitrites.  Celiac people seem to produce more nitrites as part of the inflammation process anyway, so adding dietary nitrates and nitrites add to the load our bodies must cope with.

I usually get severe migraines after nitrite and nitrate exposure. 

Vitamin C is helpful.  Sodium ascorbate in the list of ingredients is Vitamin C.  

I found an article that explains more.

https://www.healthline.com/nutrition/are-nitrates-and-nitrites-harmful

 

Breakfast is a meal.  Think outside the box.  You can have other foods for breakfast.  You're not limited to bacon and eggs and oatmeal.

With Celiac Disease, you have carte blanche to eat hamburgers or steak for breakfast.  Whatever works for you.

There's the old adage...

Eat breakfast like a king, lunch like a prince or princess, and dine like a pauper.  

This philosophy fits in with fasting.  Fasting in the evening and overnight has been helpful for some Celiacs.  

You're doing great!  

I've heard that adage before and it is true!! Thank you so much for the encouraging words. It's been a very frustrating week. I've been eating Beetroot and Radishes every evening in a salad which are high nitrate foods ... so I guess the nitrate load caught up with me, I'll try something else.

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      how much gluten do I need to eat before blood tests?

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    • trents
      how much gluten do I need to eat before blood tests?

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
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