Off topic

[Bill1991]

Hi this is a little bit of topic, I was wondering wether anyone could help or that had been through the same. I had elbow surgery in December 2021, the op failed so had my elbow re operated on July 1st 2022. I have been diagnosed with crps due to the injury and second time round has made it worse. The surgeon said it's like someone has put a grenade on your elbow smashed it to pieces bones ligaments tendons. 
 

i have extreme pain in my elbow when I try to move it. It is so stiff and in my hand I have numbness, burning , pins and needles and loss of sensations in some of my fingers this is constant 24/7 pain , pregabalin 550mg a day oxycodone, fentanyl done nothing to help with the nerve pain. I cannot touch stuff as it really hurts cold water if freezing hot water is burning. I have crps and perhaps the nerves are damaged to ? I've been booked in to see pain management but the waiting list is as long as your arm. 
 

does anyone know if any vitamins can help repair nerves or any information on crps or Peripheral neuropathy that can calm it down.

 

 

I've done loads of research on crps but I think it's better talking to people and there experiences.

Any help  would be appreciated 

 

I thought I'd throw this in there to

 in February 2022 I was tested for celiac  and my blood test was 262

reference 1-10   ( 40 considered really high) 

Had a blood test other day as the gastro wanted to test for my vitamins.

and blood test result 82 

so I've dropped 180 points which I think is good? Or does 82 mean I'm still consuming gluten somewhere or that I'm on the mend ? 

many thanks 

Edited August 3, 2022 by Bill1991

[Posterboy]

10 minutes ago, Bill1991 said:

does anyone know if any vitamins can help repair nerves or any information on crps or Peripheral neuropathy that can calm it down.

Bill1991,

Neuropathy can be a sign of a Thiamine deficiency.

Here is some research about it.

https://www.researchgate.net/publication/7409967_Benfotiamine_relieves_inflammatory_and_neuropathic_pain_in_rats

Magnesium is also good for Pain Management.....

Here is an article on it where Magnesium has been used in Pain Management.

Entitled "The role of magnesium in pain"

https://www.ncbi.nlm.nih.gov/books/NBK507245/

I hope this is helpful but it is not medical advice.

Posterboy,

[Tracy414]

For background, I’m a nurse practitioner and have worked in palliative care for 6.5 years. We do a lot of pain management. What you’re describing is absolutely nerve pain and I would assume damage from the injury/surgery. Some people find acupuncture helpful. Also wondering if you’ve ever been on gabapentin (some people have luck with that vs pregablin and vice versa). Are you working with PT?  Did the surgeon give you a sense of wether or not the nerve damage is permanent or is there potential for healing (at least the surgical part). If there isn’t any improvement with healing after surgery, etc. a nerve block may be helpful for your pain. I hope you get some relief, soon. 

[Bill1991]

1 hour ago, Posterboy said:

Bill1991,

Neuropathy can be a sign of a Thiamine deficiency.

Here is some research about it.

https://www.researchgate.net/publication/7409967_Benfotiamine_relieves_inflammatory_and_neuropathic_pain_in_rats

Magnesium is also good for Pain Management.....

Here is an article on it where Magnesium has been used in Pain Management.

Entitled "The role of magnesium in pain"

https://www.ncbi.nlm.nih.gov/books/NBK507245/

I hope this is helpful but it is not medical advice.

Posterboy,

Hi thanks for the reply some useful articles there I will take note and take some vitamins to see if I benefit no harm in doing so thanks 

[Bill1991]

17 minutes ago, Tracy414 said:

For background, I’m a nurse practitioner and have worked in palliative care for 6.5 years. We do a lot of pain management. What you’re describing is absolutely nerve pain and I would assume damage from the injury/surgery. Some people find acupuncture helpful. Also wondering if you’ve ever been on gabapentin (some people have luck with that vs pregablin and vice versa). Are you working with PT?  Did the surgeon give you a sense of wether or not the nerve damage is permanent or is there potential for healing (at least the surgical part). If there isn’t any improvement with healing after surgery, etc. a nerve block may be helpful for your pain. I hope you get some relief, soon. 

Hi thanks for your reply I will defiantly give acupuncture a go. No I have not tried gabapentin but I will defiantly bring this up with my doc as I've been on pregabalin favour 6 weeks now and they keep upping the dose with no effect. When I see the surgeon my arm was like a balloon it was huge so I thought the pain in the hand was just part of the surgery process. But 4 weeks on swelling has gone down and the pain is excruciating to the point where I would rather my hand get amputated. I did Ring his secretary the other day and mentioned it their gonna do a nerve conduction test.  Thanks for your comments I will bring this up with him once I see him many thanks 

[knitty kitty]

@Bill1991,

I had nerve pain, peripheral neuropathy.  What works for me is Benfotiamine, B Complex, B12 Cobalamine, B6 Pyridoxine, Tryptophan, and Vitamin C.

I was surprised to find Vitamin C has a link to CRPS.  

"Other rare clinical signs of scurvy include skeletal muscle degeneration, complex regional pain syndrome (CRPS), cardiac hypertrophy, pulmonary hypertension, diminished adrenal and bone marrow function, psychological changes, poor postoperative wound healing, edema, and alopecia."

Scurvy in pediatric age group – A disease often forgotten?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4411344/

And...

Vitamin C Could Prevent Complex Regional Pain Syndrome Type I in Trauma and Orthopedic Care? A Systematic Review of the Literature and Current Findings

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8298085/

Hope this helps!

[Kate333]

I recommend trying acupuncture.  I had really terrible "tennis elbow" tendonitis several years ago.  Tried PT, braces, ice, meds, steroid shots.  Nothing really worked.  After all that failed, ortho was really gung-ho about surgery.  Elbow is such a complex joint I wanted to at least try AC before I let him cut me up.  Although I was squeamish about needles and skeptical about "alternative medicine," I decided to try it.  Chinese medicine doctor did only 2 sessions of AC with heated needles.  Much to my (pleasant) shock, pain was COMPLETELY gone!   That was about 10 years ago.  To date, pain has never returned.  

Also, stress can magnify/sharpen pain receptors/nerve and manifest in physical symptoms, so perhaps you could benefit from a low-dose antianxiety/antidepressant and also referral for counseling.  There are many free online resources.  My favorites are anxietycentre.com and youtube meditation videos.  

[AJS3849]

On 8/3/2022 at 4:10 PM, Bill1991 said:

Hi thanks for your reply I will defiantly give acupuncture a go. No I have not tried gabapentin but I will defiantly bring this up with my doc as I've been on pregabalin favour 6 weeks now and they keep upping the dose with no effect. When I see the surgeon my arm was like a balloon it was huge so I thought the pain in the hand was just part of the surgery process. But 4 weeks on swelling has gone down and the pain is excruciating to the point where I would rather my hand g

On 8/3/2022 at 3:47 PM, Tracy414 said:

For background, I’m a nurse practitioner and have worked in palliative care for 6.5 years. We do a lot of pain management. What you’re describing is absolutely nerve pain and I would assume damage from the injury/surgery. Some people find acupuncture helpful. Also wondering if you’ve ever been on gabapentin (some people have luck with that vs pregablin and vice versa). Are you working with PT?  Did the surgeon give you a sense of wether or not the nerve damage is permanent or is there potential for healing (at least the surgical part). If there isn’t any improvement with healing after surgery, etc. a nerve block may be helpful for your pain. I hope you get some relief, soon. 

et amputated. I did Ring his secretary the other day and mentioned it their gonna do a nerve conduction test.  Thanks for your comments I will bring this up with him once I see him many thanks 

[AJS3849]

On 8/3/2022 at 4:10 PM, Bill1991 said:

Hi thanks for your reply I will defiantly give acupuncture a go. No I have not tried gabapentin but I will defiantly bring this up with my doc as I've been on pregabalin favour 6 weeks now and they keep upping the dose with no effect. When I see the surgeon my arm was like a balloon it was huge so I thought the pain in the hand was just part of the surgery process. But 4 weeks on swelling has gone down and the pain is excruciating to the point where I would rather my hand get amputated. I did Ring his secretary the other day and mentioned it their gonna do a nerve conduction test.  Thanks for your comments I will bring this up with him once I see him many thanks 

You might try microelectric stimulation therapy - usually available through a sports medicine specialist or, sometimes, a physical therapist.  I had a similar situation following surgery for a broken wrist and subsequent nerve entrapment that resulted in a second surgery on my wrist and carpal tunnel surgery.  Those surgeries released the nerve, but it had sustained severe damage and the pain was excruciating (I described it as someone poking an ice pick into the tips of my fingers while fire ants chewed on the rest of my hand.)  Medications did absolutely no good other than knock me out for a few hours until the pain woke me up again. The surgeon told me it would likely take 12-18 months to heal.  I consulted a naturopathic doctor about acupuncture and he suggested microelectric therapy as an alternative because he was concerned about using needles given the degree of nerve damage.  The day after the first treatment was the worst pain I had yet experienced, but by the second day, it was considerably better.  He said that meant that even the low setting he had used was too high and he dialed it down further.  From there on, it was steady improvement and the pain was almost entirely gone by the end of the eighth treatment. We stopped the treatments at that point and it continued to improve until the pain was finally gone. I am completely sold on this therapy. I hope it will help you as well.