Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold turkey due to Migraines

TWilson1120
 Share

Recommended Posts

TWilson1120 Newbie
TWilson1120
Posted

Been suffering with chronic debilitating migraines for years. Thought they were sinus related... Had balloon sinuplasty and still had migraines. My sister stopped gluten for migraines 4 years ago... Never did I suspect the same thing for me. 

I had to stop eating dairy...(not just lactose)6 months ago due to my intolerance from childhood back in full force. 

Now migraines...headaches that last days..weeks ...months... Going from a scale of 3-10+++ and not knowing what was causing them. 

I started looking up gluten/wheat allergies... I am already, on a scale from 1-4,  a 4 allergic to all grasses. Why not wheat grass? I've had eczema my entire life as well as asthma... On top of the dairy intolerance... Stopping gluten just made sense. 

So instead of wasting money on test results... I jumped in head first and just went cold turkey. 

2-3 days later... I couldn't understand why I was nodding out at my desk at work. I woke up with a headache (thinking: damn maybe it wasn't the gluten)... Constipation... nausea. I even had nausea pills (didn't help)..cold chills. Then the next day diarrhea... Found out... There's such a thing as gluten withdrawals.!!?!!?! 

But I couldn't just slowly come off gluten... So was cold turkey worth it? Heck yes! They would have to give me morphine for my migraines and that would only take away half of the pain. The withdrawal headache is one I can take Excedrin and it goes away! Stomach issues? I've dealt with when on dairy..the worst is the chronic fatigue... I've slept 22 hours in the last 50! and I am still tired. 

I am hoping this is just some temporary issues to finally gain normalness if not...even better than "normal"! 

I don't believe you have to get tested... With he more I read... Gluten free is a better way of life for all.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TWilson1120 Newbie
TWilson1120
Posted
  • Author
1 hour ago, TWilson1120 said:

Been suffering with chronic debilitating migraines for years. Thought they were sinus related... Had balloon sinuplasty and still had migraines. My sister stopped gluten for migraines 4 years ago... Never did I suspect the same thing for me. 

I had to stop eating dairy...(not just lactose)6 months ago due to my intolerance from childhood back in full force. 

Now migraines...headaches that last days..weeks ...months... Going from a scale of 3-10+++ and not knowing what was causing them. 

I started looking up gluten/wheat allergies... I am already, on a scale from 1-4,  a 4 allergic to all grasses. Why not wheat grass? I've had eczema my entire life as well as asthma... On top of the dairy intolerance... Stopping gluten just made sense. 

So instead of wasting money on test results... I jumped in head first and just went cold turkey. 

2-3 days later... I couldn't understand why I was nodding out at my desk at work. I woke up with a headache (thinking: damn maybe it wasn't the gluten)... Constipation... nausea. I even had nausea pills (didn't help)..cold chills. Then the next day diarrhea... Found out... There's such a thing as gluten withdrawals.!!?!!?! 

But I couldn't just slowly come off gluten... So was cold turkey worth it? Heck yes! They would have to give me morphine for my migraines and that would only take away half of the pain. The withdrawal headache is one I can take Excedrin and it goes away! Stomach issues? I've dealt with when on dairy..the worst is the chronic fatigue... I've slept 22 hours in the last 50! and I am still tired. 

I am hoping this is just some temporary issues to finally gain normalness if not...even better than "normal"! 

I don't believe you have to get tested... With he more I read... Gluten free is a better way of life for all.

 

Oooh my... After more research finding that cysts are linked. I had 3lbs of non-cancerous fibrotic cysts(tumors) removed from my pelvic region 3 years ago and have had problems with cysts and ruptures my whole adult life! Nothing seemed to help. I couldn't do birth control. Birth control would reverse everything. 3 weeks bleeding 1ish week off. Wasn't worth it. I have a feeling getting past the withdrawals of gluten is worth every aliment I've lived with my whole life! Does anyone else have these same symptoms? Or am I just crazy?

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! Migraine headaches are definitely linked to untreated celiac disease and or gluten sensitivity, and this category has quite a few articles about this connection:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/ 

Since your sister has celiac disease and you have found relief from going Gluten-Free, it is likely that you may be sensitive to gluten as well, but the only way to be sure would have been to get tested before you went Gluten-Free, but given how bad your headaches were it’s probably best to just stay the course.

There is a lot of hidden gluten out there, so please read this article:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748
    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      Violent reaction to gluten after going gluten-free?

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • Scott Adams
      Seeking advice on potential gluten challenge

      By Scott Adams · Posted

      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      Violent reaction to gluten after going gluten-free?

      By Greymo · Posted

      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.