Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic duodenitis and gastritis post diagnose

Onemoreceliac

By Onemoreceliac
in Related Issues & Disorders

 Share

Recommended Posts

Onemoreceliac Apprentice
Onemoreceliac
Posted

Hello. 

Female, 24 y

I have been diagnosed with celiac disease one year ago by endoscopy, along with bile in my stomach, antral gastritis because of bile, low vitamin D and iron deficiency.

As treatment, I followed a gluten free diet, along with supplements for vitamins deficiency, I couldn't keep a 100% low inflammatory diet for gastritis. 

Second endoscopy: my villi came back to normal 100%, so the diet worked, but my gastroenterologist still found gastritis, no more bile and now- chronic duodenitis. 

My pain is mostly on the left side of the upper abdomen, sometimes I can't even sleep at night and my life is miserable. I don't know what to do anymore, why duodenitis if I had a strict gluten free diet and  why it's so hard to treat. 

My gastroenterologist recommend me a CT scan of my abdomen and pelvis to see if it's something more, but I don't want to be exposed to radiation a second time in a year( I have done before a CT scan without dye, due to a panick attack).

I don't know what to do anymore and try anymore. Please, do you have some tips or advice? Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Are you still consuming dairy and oats?

Have you been checked for SIBO?

trents Grand Master
trents
Posted
(edited)

By the way, CT scans don't use radiation. Neither do MRIs This was incorrect.

Edited by trents
RMJ Mentor
RMJ
Posted
1 hour ago, trents said:

By the way, CT scans don't use radiation. Neither do MRIs

CT scans DO use radiation.  MRIs don’t.

trents Grand Master
trents
Posted

Yes, you are correct RMJ. As soon as I posted that I thought to look it up and saw that I was incorrect. I thought I deleted it but I guess I failed in that.

Onemoreceliac Apprentice
Onemoreceliac
Posted
  • Author
3 hours ago, trents said:

Are you still consuming dairy and oats?

Have you been checked for SIBO?

Yes, I am consuming dairy and gluten free oats. I did not get checked for SIBO..

trents Grand Master
trents
Posted
(edited)

Even though your oats are gluten free, cross contamination with wheat may no be the issue. About 10% of celiacs cannot tolerate the main protein in oats, avenin, which causes them to react in the same way as they do to gluten in wheat.

Also, it is very common for celiacs to be dairy intolerant. It can be caused by the sugar in milk (lactose) or a protein in milk (casein). Casein is known to blunt villi just like gluten for some celiacs.

SIBO is pretty common in celiacs.

Edited by trents
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Onemoreceliac Apprentice
Onemoreceliac
Posted
  • Author
6 minutes ago, trents said:

Even though your oats are gluten free, cross contamination with wheat may no be the issue. About 10% of celiacs cannot tolerate the main protein in oats, avenin, which causes them to react in the same way as they do to gluten in wheat.

Also, it is very common for celiacs to be dairy intolerant. It can be caused by the sugar in milk (lactose) or a protein in milk (casein). Casein is known to blunt villi just like gluten for some celiacs.

SIBO is pretty common in celiacs.

Ok, thank you for your answer. I will get tested for lactose intolerance and Sibo and maybe one of them is the cause for my bile reflux. 

trents Grand Master
trents
Posted

It might be more practical and less expensive to just trial elimination of oats and dairy for a period of time and see if your symptoms improve. SIBO, however, would likely call for antibiotics in the short term and dietary adjustments in the long run.

Onemoreceliac Apprentice
Onemoreceliac
Posted
  • Author
1 minute ago, trents said:

It might be more practical and less expensive to just trial elimination of oats and dairy for a period of time and see if your symptoms improve. SIBO, however, would likely call for antibiotics in the short term and dietary adjustments in the long run.

Ok, I ll try it. 

trents Grand Master
trents
Posted

By the way, are you on some kind of acid blocking medication?

Onemoreceliac Apprentice
Onemoreceliac
Posted
  • Author
1 minute ago, trents said:

By the way, are you on some kind of acid blocking medication?

Yes, I took them because my Dr recommend it, but not even a bit of improvement and I stopped them. I don't know if my stomach has too much acid or to little. Nothing seems to work. Also, on the internet are a lot of contradictory information regarding the diet for bile reflux and gastritis-duodenitis (eg: apple is good for binding bile out of the stomach, but bat for gastritis). Regarding the oats, I took them for about 1-2 months because it says it's helpful for binding the bile.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

trents Grand Master
trents
Posted

https://www.mayoclinic.org/diseases-conditions/bile-reflux/diagnosis-treatment/drc-20370121

Lifestyle and home remedies

Unlike acid reflux, bile reflux seems unrelated to lifestyle factors. But because many people experience both acid reflux and bile reflux, your symptoms may be eased by lifestyle changes:

Stop smoking. Smoking increases the production of stomach acid and dries up saliva, which helps protect the esophagus.

Eat smaller meals. Eating smaller, more-frequent meals reduces pressure on the lower esophageal sphincter, helping to prevent the valve from opening at the wrong time.

Stay upright after eating. After a meal, waiting two to three hours before lying down allows time for your stomach to empty.

Limit fatty foods. High-fat meals relax the lower esophageal sphincter and slow the rate at which food leaves your stomach.

Avoid problem foods and beverages. Some foods increase the production of stomach acid and may relax the lower esophageal sphincter. Foods to avoid include caffeinated and carbonated drinks, chocolate, citrus foods and juices, vinegar-based dressings, onions, tomato-based foods, spicy foods, and mint.

Limit or avoid alcohol. Drinking alcohol relaxes the lower esophageal sphincter and irritates the esophagus.

Lose excess weight. Heartburn and acid reflux are more likely to occur when excess weight puts added pressure on your stomach.

Raise your bed. Sleeping with your upper body raised 4 to 6 inches (10 to 15 centimeters) may help prevent reflux symptoms. Raising the head of your bed with blocks or sleeping on a foam wedge is more effective than is using extra pillows.

Relax. When you're under stress, digestion slows, possibly worsening reflux symptoms. Relaxation techniques, such as deep breathing, meditation or yoga, may help.

Onemoreceliac Apprentice
Onemoreceliac
Posted
  • Author

Thank you so much.

Posterboy Mentor
Posterboy
Posted

Onemoreceliac,

Your symptom's can be explained by Low/NO Stomach Acid being misdiagnosed.

Low Iron can be caued by Low/NO Stomach Acid and it is often overlooked.

See this article entitled "Is achlorhydria a cause of iron deficiency anemia?"

The answer was a resounding yes! it could be and it (IDA) is being caused by too low a stomach acid!

https://academic.oup.com/ajcn/article/102/1/9/4564242

The

On 9/4/2022 at 3:39 AM, Onemoreceliac said:

My pain is mostly on the left side of the upper abdomen, sometimes I can't even sleep at night and my life is miserable

Could be from an Ulcer.....

Here is a nice article that will give you other options if you don't think it could be an ucler....

https://patient.info/signs-symptoms/left-upper-quadrant-pain-leaflet

Howard Hughe Medical Institute aka HHMI did a nice article about why Ulcers develop from Low Stomach Acid instead of the High Stomach Acid you often hear about...

https://www.hhmi.org/news/excessive-growth-bacteria-may-also-be-major-cause-stomach-ulcers

Sleeping your left side might help your Heartburn/GERD.

Here is a  nice article about it......called advances in GERD.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2886414/

I hope this is helpful but it is not medical advice.

I wrote Posterboy blog post about why and how some low/NO stomach acid can be confused for NCGS and/or Celiac disease it might help you to read it.

Good luck on your continued journeys in life!

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

Onemoreceliac Apprentice
Onemoreceliac
Posted
  • Author
5 hours ago, Posterboy said:

Onemoreceliac,

Your symptom's can be explained by Low/NO Stomach Acid being misdiagnosed.

Low Iron can be caued by Low/NO Stomach Acid and it is often overlooked.

See this article entitled "Is achlorhydria a cause of iron deficiency anemia?"

The answer was a resounding yes! it could be and it (IDA) is being caused by too low a stomach acid!

https://academic.oup.com/ajcn/article/102/1/9/4564242

The

Could be from an Ulcer.....

Here is a nice article that will give you other options if you don't think it could be an ucler....

https://patient.info/signs-symptoms/left-upper-quadrant-pain-leaflet

Howard Hughe Medical Institute aka HHMI did a nice article about why Ulcers develop from Low Stomach Acid instead of the High Stomach Acid you often hear about...

https://www.hhmi.org/news/excessive-growth-bacteria-may-also-be-major-cause-stomach-ulcers

Sleeping your left side might help your Heartburn/GERD.

Here is a  nice article about it......called advances in GERD.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2886414/

I hope this is helpful but it is not medical advice.

I wrote Posterboy blog post about why and how some low/NO stomach acid can be confused for NCGS and/or Celiac disease it might help you to read it.

Good luck on your continued journeys in life!

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

Thank you. How can I test my stomach acid levels? In my country I never heard about a test like that. I heard about a test at home with baking soda and water, but it is accurate or safe?

 

 

trents Grand Master
trents
Posted

Yes, try the home test with baking soda and water. It is not precise but will be "in the ballpark" (an American expression) and tell you basically what you need to know. Yes, it is safe to do occasionally. Lots of sodium so you don't want to do it frequently.

  • 2 years later...
Barcino Rookie
Barcino
Posted
On 9/4/2022 at 3:39 AM, Onemoreceliac said:

Hello. 

Female, 24 y

I have been diagnosed with celiac disease one year ago by endoscopy, along with bile in my stomach, antral gastritis because of bile, low vitamin D and iron deficiency.

As treatment, I followed a gluten free diet, along with supplements for vitamins deficiency, I couldn't keep a 100% low inflammatory diet for gastritis. 

Second endoscopy: my villi came back to normal 100%, so the diet worked, but my gastroenterologist still found gastritis, no more bile and now- chronic duodenitis. 

My pain is mostly on the left side of the upper abdomen, sometimes I can't even sleep at night and my life is miserable. I don't know what to do anymore, why duodenitis if I had a strict gluten free diet and  why it's so hard to treat. 

My gastroenterologist recommend me a CT scan of my abdomen and pelvis to see if it's something more, but I don't want to be exposed to radiation a second time in a year( I have done before a CT scan without dye, due to a panick attack).

I don't know what to do anymore and try anymore. Please, do you have some tips or advice? Thank you.

I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,499
    • Most Online (within 30 mins)
      7,748
    TRobinP
    Newest Member
    TRobinP
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Having a RAVENOUS appetite (or conversely no appetite at all - anorexia) and unintended weight loss are symptoms of early thiamine deficiency.   People who are physically active, athletes, physical laborers, those who exercise outside regularly have a higher metabolic need for thiamine.  Exercising outside regularly can cause more thiamine loss because sunlight breaks down thiamine.  (This is why people with heat stroke are administered thiamine.)  More thiamine is lost through the kidneys in those who exercise regularly.  Because blood tests for thiamine deficiency is so inaccurate, the World Health Organization suggests, if thiamine deficiency is suspected, give thiamine and look for health improvement.   Do not take Thiamine Mononitrate as this form is not well absorbed nor utilized in the body.  It is frequently found in foods, and multivitamins and B1 supplements because it will not break down with exposure to light while sitting on a shelf at the store.  Thiamine Mononitrate is shelf stable - it won't break down with light exposure - and this makes it not bioavailable.  The body only absorbs about 30% and utilizes less than that because it's so hard to break down.   Benfotiamine and the form of thiamine called TTFD (Tetrahydrofurfuryl Disulfide) and thiamine hydrochloride are wonderful forms to take.   I'm familiar with these symptoms because I dropped sixty pounds in a month because I had developed thiamine deficiency.  I ate well, exercised, and took a multivitamin (with thiamine Mononitrate), but the metabolic needs of my body demanded more.  The years of poor absorption due to undiagnosed Celiac disease had depleted my stores of thiamine.  My doctors did not recognize thiamine deficiency symptoms, even when they progressed to Wernicke's Encephalopathy.  They said I was making things up and sent me home. With nothing else to lose (I could feel myself dying), I took high dose thiamine hydrochloride as the WHO suggested and had improvement within the hour.   I also tried Benfotiamine and TTFD in the months that followed and had even more significant health improvement. Please don't wait until your brain starts malfunctioning or other organs start failing.  Please take thiamine soon.  It's nontoxic and safe even in high doses.  Thiamine works with other B vitamins, especially Riboflavin and Pyridoxine, so supplementing with a B Complex is essential as well.  Magnesium is needed as well to make life sustaining enzymes. There's no harm, no foul in trying Thiamine.  If for no other reason than to prove it is not thiamine deficiency.   P. S.  Thiamine is needed to turn on Vitamin D, turning it into its active form.  Otherwise  Vitamin D can't be utilized and just builds up in the system.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      In fact, funny idea, my partner suggested I shld model for the over 50s section, and do it now b4 I start piling on the pounds - if only that would happen! It is over a year now... I am 48kg and should be 54-55, that was my wooonderful Perfect weight before....:( Nothing lasts for ever, as the song goes... To those out there who have a little more rather then less fat on them - celebrate it! Is Healthy!  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Oh and yes, thanks, other than being permanently RAVENOUS and not yet putting on weight, I am feeling pretty good. I jog, do yoga, today cycled 12km to a food market then to another place to get my fish, then my gluten-free bread... My life is All about food!;( But I shld prob. be less active as obv is keeping the pounds off... And having some muscle makes me feel less depressed with my skeletal appearance.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      A big Thank you! To all who replied. V informative and interesting. Re VitD, mine was always good, between 60 and 70. Then on the Bone Support Supplements by Natures Plus it jumped to 90, 110 and then over that! I was getting to be VitD toxic... As the supps had 25mcg VitD, which was obviously enough to tip me over... I always go out with shorts whwnever the sun pops out to make sure I get it naturally. They say the activated form of D3 ie. Cholecalciferol is used as the strongest rat poison that exists! I also only eat wild caught salmon, only organic, no sugar, bad fats etc etc.... In fact I am 50 yet people think am 35 and am sure is partly genetic but mostly diet(!). But is Not helpful when I need my GP to take my issues seriously.  Interesting about the oestrogen theory! Will research further, thanks! And thank you to you who suggested the thiamine B1 deficiency, it is only a small possibility as I have Loads of B1 in my diet, but is an interesting theory and thiaminase is smthg I will look into! Also thank you to the London person who sent me a VitA test link. I was told these home kits are not worth thr money;( In fact I plan to go abroad where you get every micro and macronutrient as well as all minerals and vita checked for 350euros! Is absolutely crazy London has nothing like that. I did a hair mineral test here, which was interesting, and even that they send off to a lab in Florida!
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      @Celiac50, Other than finding foods that make your tummy happy, are you feeling well?  No other symptoms?  That's great progress! You don't mention vitamin D status.  Vitamin D deficiency in the UK has been estimated to be as high as 60% of the population. Celiac Disease causes depleted oral vitamin D from malabsorption.  Most people do not get enough UV light to activate skin creation of vitamin D. Vitamin D supplementation in the United Kingdom: time for change Vitamin D Is Not as Toxic as Was Once Thought It looks like you are going to have to try changing out food by food, until you find the one.  Start with the supplements.      Wild caught vs. farm raised?  Sometimes it is just a subtIe change that can do it. I know that switching to grass fed milk has been good for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.