Stomach discomfort while lying down

[Rosanne Pawl]

I was diagnosed with celiac last year. I haven’t been completely gluten-free and it didn’t seem to be a problem until now. These past two months I’ve noticed more bloat, gas, watery stool and stomach discomfort so I changed to following a gluten-free diet. I’ve noticed bloat, gas, indigestion and stomach pain while lying down flat or side to side. It’s the pain and discomfort that concerns me the most. Have any of you had issues like this while lying down. 

[trents]

Welcome to the forum, Rosanne!

Some common health conditions that accrue from unattended celiac disease are GERD and SIBO. For the GERD, you might try elevating the head of your bed at least 15 degrees and sleeping more on your back. SIBO would likely require an antibiotic.

Also, it sounds like you re new to the gluten-free diet. It's easy to eliminate major sources of gluten but much more difficult to truly eat gluten free. Eating truly gluten-free would require educating yourself to the myriad of ways gluten is hidden in the food supply by the food industry and also giving attention to cross contamination. Eating out is probably the biggest threat to the gluten free diet as you have not control over cross contamination back in the kitchen. In restaurants you may order something that is labeled gluten free on the diet by it may be cooked in the same pots and pans and on the same grills and handled with the same utensils as is the gluten stuff.

This might be helpful:

Pills and supplements and oral hygiene products must all be scrutinized. Wheat starch is sometimes used in pills and supplements as a filler.

Wheat and barley (e.g. malt flavoring) is used in processed food items you would never expect such as canned tomato soup and soy sauce, some pork and bean products. You will need to become a a careful label reader of everything you buy in the store that is not labeled gluten free.

May we ask your age? Are you taking any vitamin and mineral supplements to compensate for the nutrient malabsorption that almost always accrues from unattended celiac disease?

[Rosanne Pawl]

1 hour ago, trents said:

Welcome to the forum, Rosanne!

Some common health conditions that accrue from unattended celiac disease are GERD and SIBO. For the GERD, you might try elevating the head of your bed at least 15 degrees and sleeping more on your back. SIBO would likely require an antibiotic.

Also, it sounds like you re new to the gluten-free diet. It's easy to eliminate major sources of gluten but much more difficult to truly eat gluten free. Eating truly gluten-free would require educating yourself to the myriad of ways gluten is hidden in the food supply by the food industry and also giving attention to cross contamination. Eating out is probably the biggest threat to the gluten free diet as you have not control over cross contamination back in the kitchen. In restaurants you may order something that is labeled gluten free on the diet by it may be cooked in the same pots and pans and on the same grills and handled with the same utensils as is the gluten stuff.

This might be helpful:

Pills and supplements and oral hygiene products must all be scrutinized. Wheat starch is sometimes used in pills and supplements as a filler.

Wheat and barley (e.g. malt flavoring) is used in processed food items you would never expect such as canned tomato soup and soy sauce, some pork and bean products. You will need to become a a careful label reader of everything you buy in the store that is not labeled gluten free.

May we ask your age? Are you taking any vitamin and mineral supplements to compensate for the nutrient malabsorption that almost always accrues from unattended celiac disease?

I’m 76. Have no other health issues and taking no medicines. Not feeling good is new to me. I do take Juice Plus gummies fruit and vegetables. Vitamin D3

[trents]

Have you screened the vitamin and supplements you take for gluten?

[Rosanne Pawl]

1 minute ago, trents said:

Have you screened the vitamin and supplements you take for gluten?

 

1 minute ago, trents said:

Have you screened the vitamin and supplements you take for gluten?

 

1 minute ago, trents said:

Have you screened the vitamin and supplements you take for gluten?

No. Will certainly check labels now! 

[trents]

6 minutes ago, Rosanne Pawl said:

 

 

No. Will certainly check labels now! 

Vitamins and supplements are not required to report that kind of information so I wouldn't rely on the labels. Better to get vitamin and supplement products that specifically say they are gluten free. Costco's Kirkland Signature and Nature Made lines will say on the label if they are gluten free and many or most of them are.

[Rosanne Pawl]

26 minutes ago, trents said:

Vitamins and supplements are not required to report that kind of information so I wouldn't rely on the labels. Better to get vitamin and supplement products that specifically say they are gluten free. Costco's Kirkland Signature and Nature Made lines will say on the label if they are gluten free and many or most of them are.

 

27 minutes ago, trents said:

Vitamins and supplements are not required to report that kind of information so I wouldn't rely on the labels. Better to get vitamin and supplement products that specifically say they are gluten free. Costco's Kirkland Signature and Nature Made lines will say on the label if they are gluten free and many or most of them are.

Just checked the website. They are gluten-free. 

[trents]

So, I would suggest trying to elevate the head of the bed.

Were you diagnosed with celiac disease by blood antibody testing only or did you also have an endoscopy/biopsy performed? Sounds like with your symptoms you should have an upper GI scoping done if you have not done so.

Takes around two years or so for complete healing of the small bowel villi once a truly gluten free diet is begun and adhered to. Are you living in a household where others are still consuming gluten foods?

[Rosanne Pawl]

54 minutes ago, trents said:

So, I would suggest trying to elevate the head of the bed.

Were you diagnosed with celiac disease by blood antibody testing only or did you also have an endoscopy/biopsy performed? Sounds like with your symptoms you should have an upper GI scoping done if you have not done so.

Takes around two years or so for complete healing of the small bowel villi once a truly gluten free diet is begun and adhered to. Are you living in a household where others are still consuming gluten foods?

Had both test. Will mention upper GI scope. Researching SIBO now and will discuss all this with my doctor. Yep!  Gluten is consumed by my husband and everywhere I go. Never gave it the attention I should have since after good health for so many years this happened so suddenly. I have to give it my full attention. Seeing the doctor soon with all my notes. 

[knitty kitty]

Ask your doctor about Mast Cell Activation Syndrome.

Coeliac Disease and Mast Cells

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6678566/#!po=40.1515

[Rosanne Pawl]

4 hours ago, knitty kitty said:

Ask your doctor about Mast Cell Activation Syndrome.

Coeliac Disease and Mast Cells

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6678566/#!po=40.1515

Thank you for this. I will bring this up at my visit. 

[Rosanne Pawl]

3 minutes ago, Rosanne Pawl said:

Thank you for this. I will bring this up at my visit. 

I wish there was a specialist near me.