When should symptoms go away? And other diagnoses

[Elisec5678]

I was diagnosed with celiac disease 6 weeks ago (and have been gluten free for 6 weeks) and my symptoms (bloating primarily) have not gone away. I am wondering if it is taking longer because I had near total villous atrophy?

I also have done several blood and urine tests to try to determine if there are other issues besides celiac causing these symptoms. I have done two 24 hour urine tests and for each one, I had 6000 ml of urine (normal amounts are between 800-2000 ml). I do drink about 230 oz of water a day, so that is consistent, but are these symptoms of celiac as well? 

[knitty kitty]

@Elisec5678, hello!

Why are drinking so much water?  Are you on diuretics?  Diabetic?  

What do you include in your diet?  Keeping a food journal can help pinpoint problematic foods.  

Mast Cell Activation Syndrome and Histamine Intolerance frequently occur in Celiac Disease.  

Have you been checked for vitamin and mineral deficiencies?  Are you taking any supplements? 

Do you still consume dairy products?  

Have you been checked for Small Intestinal Bacterial Overgrowth (SIBO)?

 

[Scott Adams]

Many celiacs have additional food intolerance issues that may eventually go away after their guts heal, for example I had around 5-6 foods I had to avoid for a couple of years, including casein/cow's milk, corn, chicken eggs, tomatoes, etc. I think @knitty kitty is right, you should be keeping a food diary to see if there is a link with certain foods. Also, are you sure your diet is 100% gluten-free?

 

[Megawisdumb]

Elisec5678, I can certainly relate as I'm in waiting mode as well.  I think Scott is spot on regarding other foods that are problematic during the 1st year healing phase that may be OK in the long term but wise to identify and avoid in short term.  For those of us that don't experience some immediate relief from gluten-free it seems the 6mth-12mth might offer some hope that as our body heals we gain some traction back to our normal waypoints....or at least that's what I tell myself everyday in this itchy groundhog day movie.