How does one cope?

[wildwitchnz]

How do y'all cope with the 'gluten poops' ? And the 'gluten farts' 🤭 sorry gross question but I had to ask. I have found that my number 2's have a very distinctive smell compared to normal number 2's, and it also looks different (yes I've looked lol) I don't know if anyone else has done this, but mine seems to have this greasy/oily kind of look to it, and it's pale and can sometimes look almost yellowish in colour, but the worst has got to be the foul smell, like, even I can't stand the smell and it's coming out of me lol and the wind is just as bad, the smell after passing wind(farting) is horrendous and just seems to linger for ages. I find this part of being 'glutenend' really embarrassing and in the beginning, I barely left my house. Now, I'm almost a year diagnosed and getting so much better at choosing the right food, but when those 'mistakes' happen, boy, I feel so sorry for everyone else in my household that has to deal with that smell 😐 

Has anyone found an air freshener or anything that helps to get rid of that smell fast? I'd be very keen to know of anything that would work! 

[Scott Adams]

Were you diagnosed with celiac disease, and if so, how long have you been gluten-free? I ask because greasy floating stools are a common issue with the malabsorption that is cased by the flattened villi. It can take a year or two for your gut to fully heal.

[wildwitchnz]

I was only diagnosed in March 2021 so I'm still finding my way thru

[Scott Adams]

There may be ways to speed up gut healing, for example taking supplements like the amino acid glutamine and/or collagen. Just make sure they say "gluten-free" on their labels.

[knitty kitty]

My grandmother always said to light a match.  There was frequently a candle burning in her bathroom.

[RMJ]

You could try a product like Poo-Pourri.  I haven’t used it but it gets good reviews. You spray in the toilet before use and it is supposed to create a film on the top of the water that traps the odor. It wouldn’t help with wind though.

[Marimarston]

On 11/4/2022 at 7:35 PM, wildwitchnz said:

How do y'all cope with the 'gluten poops' ? And the 'gluten farts' 🤭 sorry gross question but I had to ask. I have found that my number 2's have a very distinctive smell compared to normal number 2's, and it also looks different (yes I've looked lol) I don't know if anyone else has done this, but mine seems to have this greasy/oily kind of look to it, and it's pale and can sometimes look almost yellowish in colour, but the worst has got to be the foul smell, like, even I can't stand the smell and it's coming out of me lol and the wind is just as bad, the smell after passing wind(farting) is horrendous and just seems to linger for ages. I find this part of being 'glutenend' really embarrassing and in the beginning, I barely left my house. Now, I'm almost a year diagnosed and getting so much better at choosing the right food, but when those 'mistakes' happen, boy, I feel so sorry for everyone else in my household that has to deal with that smell 😐 

Has anyone found an air freshener or anything that helps to get rid of that smell fast? I'd be very keen to know of anything that would work! 

Oh dear I’ve been there! Yes, the oily/greasy residue is normal after gluten as is a very distinctive smell, at least it was to me. But this continued for quite a while into my GFD. I think it takes time for your bowels to settle down and heal after years of gluten damage. I used to fly regularly between New York and London, and it was a huge embarrassment on the flights! Eventually the smell gets so bad people can actually identify it’s coming from you from rows away! The most effective thing I found was striking a match in the bathroom after, or lighting a candle (doesn’t have to be fragranced) helps. Overnight, scattering some bicarbonate of soda in your loo can help suppress lingering smells. However, sadly none of these are an option on an aeroplane, so if you figure that one out, let me know! 

[Rhonda Hildreth]

Try a product called MedChoice - a biological odor eliminator. I have a 2 ounce spray bottle and it is distributed by Owens and Minor, Mechanicsville, VA 23116. Made in USA. Also, there is a product called Medi-aire  by C.R. Bard, Inc. in Covington, GA 30014. Phone 1-800-526-4455.  These products should be available through medical supply stores. 

[Ginger38]

On 11/4/2022 at 3:35 PM, wildwitchnz said:

How do y'all cope with the 'gluten poops' ? And the 'gluten farts' 🤭 sorry gross question but I had to ask. I have found that my number 2's have a very distinctive smell compared to normal number 2's, and it also looks different (yes I've looked lol) I don't know if anyone else has done this, but mine seems to have this greasy/oily kind of look to it, and it's pale and can sometimes look almost yellowish in colour, but the worst has got to be the foul smell, like, even I can't stand the smell and it's coming out of me lol and the wind is just as bad, the smell after passing wind(farting) is horrendous and just seems to linger for ages. I find this part of being 'glutenend' really embarrassing and in the beginning, I barely left my house. Now, I'm almost a year diagnosed and getting so much better at choosing the right food, but when those 'mistakes' happen, boy, I feel so sorry for everyone else in my household that has to deal with that smell 😐 

Has anyone found an air freshener or anything that helps to get rid of that smell fast? I'd be very keen to know of anything that would work! 

Man I can totally relate to this!! For this reason when I go certain places , like my significant others house, I eat very little.. if anything. It’s embarrassing for sure and when I have to go I have to go and it’s very loud 😳 I have looked at my stools as well, and if gluten is involved they are just as you described. At one point into my gluten free diet I asked my mom what normal poo looks like bc mine was not normal To me but apparently what I was seeing was actually “normal” unfortunately that was short lived for me, I have really been messing up on my diet and not being careful enough 🤦🏼‍♀️ the smell is very bad…. Bad enough that my daughter calls it gluten poop. There are times she is like mom have you had gluten bc it smells like it 😳😂 I use candles and sprays but idk how much it helps. I tried that poo-pouri stuff once but I wasn’t that impressed for the price and to be honest sometimes I don’t have the extra time to spray before.  Also if I have really bad gas I take gas ex and I’ve done some yoga poses I found online to help relieve the trapped gas

[Linda Hannibal]

I completely relate to this topic and have tried pre and probiotics. I find that bone broth has helped. Your gut is compromised because of Celiac and leaky gut. I developed an intolerance to soy which causes similar symptoms to a gluten exposure. Try the elimination diet and add foods back in and see if dairy or soys could also be the culprit. You could also getting exposure to gluten via cross contamination. My vitamin D is low and I get muscle spasms. Celiac is a pain in my derrière

Good luck

[Lisa A. Pickering]

I'd ask your Dr. re: oily stools. Pancreas issues are sometimes related to that. Keep your fiber and fluids up daily.  Good Luck! 

[wildwitchnz]

3 hours ago, Linda Hannibal said:

I completely relate to this topic and have tried pre and probiotics. I find that bone broth has helped. Your gut is compromised because of Celiac and leaky gut. I developed an intolerance to soy which causes similar symptoms to a gluten exposure. Try the elimination diet and add foods back in and see if dairy or soys could also be the culprit. You could also getting exposure to gluten via cross contamination. My vitamin D is low and I get muscle spasms. Celiac is a pain in my derrière

Good luck

I am also lactose intolerant, and I  haven't had any dairy since being a small child and my mum found out and put me on soy milk. I try so very hard to eat exclusively on my own and I use a separate shelf/utensils/toaster/bread board etc it's so very frustrating