Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Fuelling exercise -corn and other gluten free grains


Gilly M

Recommended Posts

knitty kitty Grand Master
(edited)

Hello, @Gilly M,

I'm so sorry you are having such a difficult time.  My doctors told me my symptoms were extreme anxiety, but high dose Thiamine actually relieved the anxiety.  

In my book, anxiety is the body's way of saying something is wrong.  We're Thiamine Contingent.  If we don't get sufficient Thiamine, our mitochondria and cells cannot function.  Thiamine may make us more mentally alert, but it also helps the brain function better and the anxiety goes away, and sleep can then occur.  

Breathing issues, peripheral neuropathy (burning arms), nausea, migraines and high anxiety are all symptoms of Thiamine deficiency.  I had them as well, and Thiamine improved them.  

Taking a whole B Complex and 500 mg Thiamine will help.  Thiamine is safe and nontoxic even in high doses.  

I would sit beside you and hold your hand if I could.  I just know from my personal experience with severe anxiety that high dose Thiamine is worth trying.  

P.S.  Did you tell your doctors that you have been drinking heavily over the holidays?

Doctors are given more training in prescribing pharmaceuticals than in recognizing nutritional deficiencies.  My doctors didn't recognize my deficiency symptoms either.  

I hope you take the 500 mg of Thiamine just to rule it out.  You said you felt better last year when you were taking Benfotiamine.  You already know it helps.

Edited by knitty kitty
Added post script

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 78
  • Created
  • Last Reply

Top Posters In This Topic

  • Gilly M

    40

  • knitty kitty

    27

  • Scott Adams

    5

  • Russ H

    3

Top Posters In This Topic

  • Gilly M

    Gilly M 40 posts

  • knitty kitty

    knitty kitty 27 posts

  • Scott Adams

    Scott Adams 5 posts

  • Russ H

    Russ H 3 posts

Gilly M Explorer
On 3/2/2024 at 11:58 AM, knitty kitty said:

Hello, @Gilly M,

I'm so sorry you are having such a difficult time.  My doctors told me my symptoms were extreme anxiety, but high dose Thiamine actually relieved the anxiety.  

In my book, anxiety is the body's way of saying something is wrong.  We're Thiamine Contingent.  If we don't get sufficient Thiamine, our mitochondria and cells cannot function.  Thiamine may make us more mentally alert, but it also helps the brain function better and the anxiety goes away, and sleep can then occur.  

Breathing issues, peripheral neuropathy (burning arms), nausea, migraines and high anxiety are all symptoms of Thiamine deficiency.  I had them as well, and Thiamine improved them.  

Taking a whole B Complex and 500 mg Thiamine will help.  Thiamine is safe and nontoxic even in high doses.  

I would sit beside you and hold your hand if I could.  I just know from my personal experience with severe anxiety that high dose Thiamine is worth trying.  

P.S.  Did you tell your doctors that you have been drinking heavily over the holidays?

Doctors are given more training in prescribing pharmaceuticals than in recognizing nutritional deficiencies.  My doctors didn't recognize my deficiency symptoms either.  

I hope you take the 500 mg of Thiamine just to rule it out.  You said you felt better last year when you were taking Benfotiamine.  You already know it helps.

I've taken 1/3 B complex so far and 250mg Thiamine HCl.  I'll take more in an hour.

Last week I took 500mg, it made me feel worse the next day ...it massively increased dumping. I am fearing this again....so maybe I can prepare myself my taking more Mg(400mg) and more K food/drink in day perhaps with K citrate supplement added.

knitty kitty Grand Master

@Gilly M,

Have you tried taking a whole capsule of B Complex for several days before starting the additional thiamine?

We can use personal messaging through the forum.

knitty kitty Grand Master

Came across this article....

Mild metabolic hyperoxaluria and its response to pyridoxine

https://pubmed.ncbi.nlm.nih.gov/3811039/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    2. - Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Digestive symptoms yet negative celiac screening

    3. - Scott Adams replied to Stegosaurus's topic in Super Sensitive People
      2

      trehalose intolerance

    4. - Scott Adams replied to JennMitchell79's topic in Traveling with Celiac Disease
      1

      Dreams Macao Beach in Punta Cana DR

    5. - Scott Adams replied to glucel's topic in Super Sensitive People
      15

      iron digestibility


  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,994
    • Most Online (within 30 mins)
      10,442

    WheatlessWonderWoman
    Newest Member
    WheatlessWonderWoman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Scott Adams
      @Stegosaurus, that is really interesting, and it sounds like you have done a lot of careful digging into what might be driving your symptoms. The connection between dysbiosis, food reactions, and specific additives or sugars is clearly complicated, but your point about hidden ingredients and individual tolerance makes a lot of sense. It is also encouraging that you found something, like the fermented Florastor approach, that seems to help you tolerate certain foods better. Posts like this are helpful because they remind people that sometimes the reaction is not just about the obvious ingredient on the label.
    • Scott Adams
      I've not been there before, but it looks fabulous! In general, 5 star resorts like this are typically very good at handling gluten-free needs, so I believe you'll be in good hands. I would still pay close attention of the foods offered, and ask the staff questions if something looks off.
    • Scott Adams
      That all sounds reasonable, especially with kidney concerns in the picture, and it makes sense that you would be cautious about increasing anything too aggressively. It is encouraging that the gluten-free diet seems to have helped with the microscopic blood in your urine, even if other kidney issues are still ongoing. Your meal pattern also stands out, because if you are eating a lot of bread and cereals at night, adding a bit more protein or something more filling may very well help with appetite and overall balance. It sounds like you are thinking this through carefully, and given everything you are managing, that seems like a very sensible approach.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.