Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lymph nodes


Gary Hamilton
Go to solution Solved by Scott Adams,

Recommended Posts

Gary Hamilton Apprentice

Having pain in most all lymph nodes. Does that mean cancer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tracy414 Explorer
  On 12/3/2022 at 4:03 AM, Gary Hamilton said:

Having pain in most all limp nodes. Does that mean cancer?

Expand Quote  

Lymph nodes can be enlarged and tender for multiple reasons, included viral or bacterial infection. You did not provide much information, but either way, if you’re concerned, see a provider for work up. 

Gary Hamilton Apprentice

I went and had blood work done. I was having pain in most of them. And had that dermatitis herpaformas rash. Still do. But she said my white blood count and stuff was good. But one side on my neck got bigger. Plus night sweats and stuff. But she did give me some attibotics  to see if it would go down. I think it has some and on day 3. Does ciliac disease make your hurt all over in stomach back and limp nodes? Thank you for replying.

Scott Adams Grand Master

Others have reported this symptom:

https://www.celiac.com/search/?q=lymph nodes&quick=1

be sure to discuss it with your doctor, and high dose thiamine may help:

 

  • 2 weeks later...
Gary Hamilton Apprentice

Does anyone have know energy and limp nodes hurting in certain places? One on neck gets notice able then goes down and back. Then in groin mostly pains around neck. I have the rash DH but just eating gluten free hasn’t cleared up all the way. Been buying gluten free frozen foods but shure it got salt in it. I wake up a lot in morning are night sick at stomach. Was having night sweats but they have stopped. Had my blood work done. Everything checked out good. So gave me some peace of mind on cancer. Only thing that gets rid of neasea is promethazine. Was bloated a lot and the xfaxin stopped that. Still wounding about shortness of breath and weight loss. Waiting to get in to a gastroenterologist to be scoped. Any answers will be helpful 

  • Solution
Scott Adams Grand Master

So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this.

You lymph nodes could be swollen for many reasons, and you should discuss this with your doctor to eliminate anything like cancer or lymphoma, but did you read the link above and start taking Benfotiamine (thiamine B3) yet? It might help with your shortness of breath and other symptoms. A good vitamin B complex would be a good idea. 

Gary Hamilton Apprentice

Thank you for the advice. Yes the b3 thiamin helped with limp nodes and my dry eyes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gary Hamilton Apprentice
  On 12/15/2022 at 10:50 PM, Scott Adams said:

So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this.

You lymph nodes could be swollen for many reasons, and you should discuss this with your doctor to eliminate anything like cancer or lymphoma, but did you read the link above and start taking Benfotiamine (thiamine B3) yet? It might help with your shortness of breath and other symptoms. A good vitamin B complex would be a good idea. 

Expand Quote  

Yes the b3 did help. But still having pain every now in again in limp nodes. The night sweats got better to. But did have one last night. I go to doctor in 3 days. I did already have blood work at my regular doctor. And everything looked good. But I know that don’t tell you everything. Now just trusting the lord. But still on gluten free diet. I’ll see what gastroenterologist says Wednesday 

  • 2 weeks later...
MADMOM Community Regular
  On 12/25/2022 at 10:47 PM, Gary Hamilton said:

Yes the b3 did help. But still having pain every now in again in limp nodes. The night sweats got better to. But did have one last night. I go to doctor in 3 days. I did already have blood work at my regular doctor. And everything looked good. But I know that don’t tell you everything. Now just trusting the lord. But still on gluten free diet. I’ll see what gastroenterologist says Wednesday 

Expand Quote  

have you any updates on the lymph node pain?  i would assume it could be from gluten reaction and your body fighting it 

hoping eating clean fixed it 

please keep us posted 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,535
    • Most Online (within 30 mins)
      7,748

    Nattific
    Newest Member
    Nattific
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • leahsch
      I was diagnosed in 2003 with celiac. The rosacea in my eye started one year ago.
    • trents
      Welcome to the forum, @Nattific! First, let's deal with terminology which can be very confusing because there is a great deal of inconsistency in how the terms associated with gluten disorders are used by lay people and even in the medical/scientific literature as well. Having said that, it is probably more accurate to use the term "gluten intolerance" as a general term referring to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). The term "gluten sensitive", therefore, is probably best used to refer to NCGS. Celiac disease is not an allergy. It is an autoimmune disorder whereby the consumption of gluten causes an immune system response in the lining of the...
    • Scott Adams
      It sounds like you’ve been through an incredibly difficult journey with your health, and it’s understandable to want clarity about whether you have celiac disease. While your doctor hasn’t officially diagnosed you with celiac (due to avoiding the gluten challenge), her decision to label it as a "severe gluten allergy" in your chart strongly suggests she believes gluten is causing systemic harm—consistent with celiac. Your family history, symptom improvement on a gluten-free diet, and current lab results (elevated lipase, liver enzymes, nutrient deficiencies) all point in that direction. Many doctors prioritize patient well-being over diagnostic formalities when reintroducing gluten could be...
    • KimMS
      I'm sorry I have been inactive here for awhile - a lot going on! I started IVIg in Oct 2024 and because of a blip with insurance, I have only had seven cycles (interrupted with two months off). I tolerated the medication well (Octagam), but didn't see much improvement until the last cycle. My vision and ataxia symptoms were noticeably better afterwards. The plan is to continue monthly for 6-12 months to see if it helps over time. Unfortunately, I have had phlebitis in my veins after the treatment the past two times, so we are trying to figure out how I can continue to receive the infusions. I am also working hard to be more strict with my gluten-free diet. As I mentioned in my...
    • Scott Adams
      It's great to hear that you have a handle on things now, and a combination of allergies and DH makes sense. 
×
×
  • Create New...