Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lymph nodes

Gary Hamilton
 Share
Go to solution Solved by Scott Adams,

Recommended Posts

Gary Hamilton Apprentice
Gary Hamilton
Posted

Having pain in most all lymph nodes. Does that mean cancer?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tracy414 Explorer
Tracy414
Posted
On 12/2/2022 at 10:03 PM, Gary Hamilton said:

Having pain in most all limp nodes. Does that mean cancer?

Lymph nodes can be enlarged and tender for multiple reasons, included viral or bacterial infection. You did not provide much information, but either way, if you’re concerned, see a provider for work up. 

Gary Hamilton Apprentice
Gary Hamilton
Posted
  • Author

I went and had blood work done. I was having pain in most of them. And had that dermatitis herpaformas rash. Still do. But she said my white blood count and stuff was good. But one side on my neck got bigger. Plus night sweats and stuff. But she did give me some attibotics  to see if it would go down. I think it has some and on day 3. Does ciliac disease make your hurt all over in stomach back and limp nodes? Thank you for replying.

Scott Adams Grand Master
Scott Adams
Posted

Others have reported this symptom:

https://www.celiac.com/search/?q=lymph nodes&quick=1

be sure to discuss it with your doctor, and high dose thiamine may help:

 

  • 2 weeks later...
Gary Hamilton Apprentice
Gary Hamilton
Posted
  • Author

Does anyone have know energy and limp nodes hurting in certain places? One on neck gets notice able then goes down and back. Then in groin mostly pains around neck. I have the rash DH but just eating gluten free hasn’t cleared up all the way. Been buying gluten free frozen foods but shure it got salt in it. I wake up a lot in morning are night sick at stomach. Was having night sweats but they have stopped. Had my blood work done. Everything checked out good. So gave me some peace of mind on cancer. Only thing that gets rid of neasea is promethazine. Was bloated a lot and the xfaxin stopped that. Still wounding about shortness of breath and weight loss. Waiting to get in to a gastroenterologist to be scoped. Any answers will be helpful 

  • Solution
Scott Adams Grand Master
Scott Adams
Posted
  • Solution

So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this.

You lymph nodes could be swollen for many reasons, and you should discuss this with your doctor to eliminate anything like cancer or lymphoma, but did you read the link above and start taking Benfotiamine (thiamine B3) yet? It might help with your shortness of breath and other symptoms. A good vitamin B complex would be a good idea. 

Gary Hamilton Apprentice
Gary Hamilton
Posted
  • Author

Thank you for the advice. Yes the b3 thiamin helped with limp nodes and my dry eyes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gary Hamilton Apprentice
Gary Hamilton
Posted
  • Author
On 12/15/2022 at 4:50 PM, Scott Adams said:

So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this.

You lymph nodes could be swollen for many reasons, and you should discuss this with your doctor to eliminate anything like cancer or lymphoma, but did you read the link above and start taking Benfotiamine (thiamine B3) yet? It might help with your shortness of breath and other symptoms. A good vitamin B complex would be a good idea. 

Yes the b3 did help. But still having pain every now in again in limp nodes. The night sweats got better to. But did have one last night. I go to doctor in 3 days. I did already have blood work at my regular doctor. And everything looked good. But I know that don’t tell you everything. Now just trusting the lord. But still on gluten free diet. I’ll see what gastroenterologist says Wednesday 

  • 2 weeks later...
MADMOM Community Regular
MADMOM
Posted
On 12/25/2022 at 5:47 PM, Gary Hamilton said:

Yes the b3 did help. But still having pain every now in again in limp nodes. The night sweats got better to. But did have one last night. I go to doctor in 3 days. I did already have blood work at my regular doctor. And everything looked good. But I know that don’t tell you everything. Now just trusting the lord. But still on gluten free diet. I’ll see what gastroenterologist says Wednesday 

have you any updates on the lymph node pain?  i would assume it could be from gluten reaction and your body fighting it 

hoping eating clean fixed it 

please keep us posted 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748
    Kazwal
    Newest Member
    Kazwal
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Help I’m cross contaminating myself,

      By Wheatwacked · Posted

      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Bitters for digestion?

      By Wheatwacked · Posted

      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.