Finally diagnosed

[Katerific]

Long journey to get positive diagnosis.  I suspected Celiac for 15 years because my Mom was diagnosed and I had the same symptoms.  I didn't purse it medically, but just went gluten-free.  I followed the gluten-free diet faithfully until last year when I started eating out a lot more and cross-contaminating myself baking gluten cookies and cakes for my family.  I didn't eat any of it, but was just contaminated the heck out of my kitchen.  I had watery diarrhea (10+ times a day) for months.  My primary care doctor wouldn't do the celiac blood test since I wasn't eating gluten.  I went to Quest and got my own test, which was positive for Celiac.  In the meantime, I was scheduled for upper and lower GI and while waiting started eating 2 slices of bread a day for 2 weeks prior to the test.  I suffered horrible nausea every day and the diarrhea continued during the 2 week gluten challenge.  The lower GI biopsy showed Collagenous Microscopic Colitis.  The upper GI biopsy for Celiac was negative.  I started taking Budesonide to calm down the MC and went back to a gluten-free diet.  I am very careful to avoid gluten and cross contamination.  Today I went in for a follow-up with my GI doctor.  We discussed my celiac biopsy.  There was no flattening of the villi, but there were lymphocytes present.  Based on my positive TTG, the lymphocytes and that I was only eating bread for 2 weeks, he said he would diagnose me with Celiac.  He said if I had been eating bread for more weeks, he thinks the villi would have flattened.   Eating the 2 slices of bread made me terribly ill every day but it wasn't enough to flatten the villi.  MC and Celiac can be associated and without pursuing my own answers, I wouldn't know for sure about having Celiac.  So now I have the Celiac diagnosis.  Nothing has changed, other than knowing my diagnosis and strengthening my resolve to be vigilant about gluten.  I wanted to put this out there to say that 2 weeks of eating bread was barely enough to confirm diagnosis.  

[Scott Adams]

It's better a late diagnosis than to never have one, so now you can go gluten-free, and hopefully stay that way. Due to the fact that your mother has it as well put you at a high risk for it, and here is an article we published on this:

 Also, this may also be helpful: