Please could I have some advice

[Wheatwacked]

Whether you are determined to be cllinically deficient in Thiamine or not, there is not a limit to how much you can safely take. I take 500 mg of thiamine hcl a day but started with 2000 mg a day to build up reserves quickly. I also take 500 mg of B3 nicotinic acid (I got used to the flush from B3 Nicotinic Acid. It is not considered a health risk. While other B3's are "flush free" they are not as effective), B5 pantothenic acid, 1000 mg of B12, a B-complex for the other B's and 840 mg of phosphotidyl choline. In all since starting these at the beginning of the summer I have lost 15 pounds of belly fat. Its a pain taking so many tablets, but being sick is worse. These are the guys responsible for converting carbs and fats into ATP, our cellular energy batteries. They are all absorbed in the small intestine, so affected by the malabsorption aspect of Celiac Disease.

4 hours ago, knitty kitty said:

Thiamine Hydrochloride is great, but there are other forms of Thiamine that work wonderfully.

I found that prednisone worked better for my pain than tramadol. I have been on it for 10 years now, but that is because it took two years before I started gluten free and the delay caused me adrenal insufficiency. It turns off pain at the source instead of blocking it. It starts to work in a few hours and by the next day I was functioning without pain meds. My dosage went from 30 mg prednisone a day to 5 mg a day with GFD. Most of your pains will go away on a Gluten Free Diet so you will only need the pred for a short course.  It is worth trying instead of opiods. Talk to your doctor. To me a life on prednisolone is better than a life on opiods. I believe had I started GFD first the need for prednisone would have been nil. Another case of living with the mistake of misdiagnosis. I have no side effects.

Meantime, while waiting on the doctor, try to choose foods with low omega 6 and high omega 3 fatty acids to reduce inflammation. It helps. There are websites that can give the omega 6 content of foods.

 

 

 

[Moomooandme13]

55 minutes ago, Wheatwacked said:

Whether you are determined to be cllinically deficient in Thiamine or not, there is not a limit to how much you can safely take. I take 500 mg of thiamine hcl a day but started with 2000 mg a day to build up reserves quickly. I also take 500 mg of B3 nicotinic acid (I got used to the flush from B3 Nicotinic Acid. It is not considered a health risk. While other B3's are "flush free" they are not as effective), B5 pantothenic acid, 1000 mg of B12, a B-complex for the other B's and 840 mg of phosphotidyl choline. In all since starting these at the beginning of the summer I have lost 15 pounds of belly fat. Its a pain taking so many tablets, but being sick is worse. These are the guys responsible for converting carbs and fats into ATP, our cellular energy batteries. They are all absorbed in the small intestine, so affected by the malabsorption aspect of Celiac Disease.

I found that prednisone worked better for my pain than tramadol. I have been on it for 10 years now, but that is because it took two years before I started gluten free and the delay caused me adrenal insufficiency. It turns off pain at the source instead of blocking it. It starts to work in a few hours and by the next day I was functioning without pain meds. My dosage went from 30 mg prednisone a day to 5 mg a day with GFD. Most of your pains will go away on a Gluten Free Diet so you will only need the pred for a short course.  It is worth trying instead of opiods. Talk to your doctor. To me a life on prednisolone is better than a life on opiods. I believe had I started GFD first the need for prednisone would have been nil. Another case of living with the mistake of misdiagnosis. I have no side effects.

Meantime, while waiting on the doctor, try to choose foods with low omega 6 and high omega 3 fatty acids to reduce inflammation. It helps. There are websites that can give the omega 6 content of foods.

 

Thank you