Possible Symptoms of Celiac?

[Seethefacts]

1. Frequent raised blood pressure

2. Digestion issues

3. Constipation

4. Feeling faint and dizzy

5. Hard to control vision with stinging eyes

6. Fatigue

7. Shortness of breath

8. Chest pain and burning that moves around, but is mostly on left chest.

9. Stuttering that is getting worse. I feel like I can barely talk anymore!

10. I feel really bad after a heavy meal.

 

It all started May 2021 and has gotten worse. I first went to urgent care that May and they said to go to the ER, because they didn't know. The ER thought they saw signs of pericarditis and said that my gastro issues probably came from something I ate that day(Really??). They sent me to a cardiologist, but he said I didn't have that. Blood work was fine. I do have chest pain, but it has been alongside gas and gastro issues since the start.

After eating lunch one day this October (and other certain times) it felt like my blood pressure and heart rate went up. Then, about 30 minutes afterwards, there was a stabbing pain under left rib when I breathed for a few minutes. After that I could still feel it if I took a deep breath. This happens every once in a while, but not often. Sometimes I get a burning/squeezing feeling around both of my ribs.

Blood pressure seems to go up the worst after eating. Not sure if it's allergies, diabetes, heart issues, digestion, or gastro problems. Constant gas that is sometimes painful. Stool is always a different consistency and smell. Very sensitive to cold temperatures and I start shaking. Taking a proton pump inhibitor did not seem to help my problem and I believe I felt worse taking it.

Has anyone experienced these symptoms? My mother's sister has Celiac, so I've recently been suspecting that. I've tried so many things and I am at the end of my rope. Please help!

[plumbago]

Hi there, I'm a nurse, and not crazy about your handle! but let me offer you a few generalities that may or may not help. It sounds like you have a lot going on. The coldness could be thyroid issues - you would need to get lab tested for that. You should probably be checking your blood pressure every day or every other day. From what you describe, it could be one of any number of things, including GERD, possibly Celiac, unfortunately there's just no way to know. You need to be extensively worked up to get to the bottom of your issues, and begin to put the pieces together in a coherent way that you can understand and work with. I hope you can find your way to a competent doctor or practitioner who will take the time to do a thorough hands on assessment, especially of your abdomen, take time to understand your vital signs, listen to you as you give a history of your current issues, and then thoughtfully direct you to the appropriate lab and other tests. There are many lab tests you can order on your own (including Celiac), but you will likely have to pay for those out of pocket.

Plumbago

[Seethefacts]

37 minutes ago, plumbago said:

Hi there, I'm a nurse, and not crazy about your handle! but let me offer you a few generalities that may or may not help. It sounds like you have a lot going on. The coldness could be thyroid issues - you would need to get lab tested for that. You should probably be checking your blood pressure every day or every other day. From what you describe, it could be one of any number of things, including GERD, possibly Celiac, unfortunately there's just no way to know. You need to be extensively worked up to get to the bottom of your issues, and begin to put the pieces together in a coherent way that you can understand and work with. I hope you can find your way to a competent doctor or practitioner who will take the time to do a thorough hands on assessment, especially of your abdomen, take time to understand your vital signs, listen to you as you give a history of your current issues, and then thoughtfully direct you to the appropriate lab and other tests. There are many lab tests you can order on your own (including Celiac), but you will likely have to pay for those out of pocket.

Plumbago

Thanks for the reply. Yeah, it's just about finding the right doctor. Most of them just choose one symptom and try to treat that instead of finding the cause of all of them. My doctor suspected GERD before, and the medicine made me feel worse. I read online that antacid medicine makes celiac worse. Could it really be my thyroid? My weight really hasn't changed really and I have had blood tests come back as normal. Is there a certain thyroid blood test? Thank you so much!

Just now, Doctorsknownothing said:

Thanks for the reply. Yeah, it's just about finding the right doctor. Most of them just choose one symptom and try to treat that instead of finding the cause of all of them. My doctor suspected GERD before, and the medicine made me feel worse. I read online that antacid medicine makes celiac worse. Could it really be my thyroid? My weight really hasn't changed really and I have had blood tests come back as normal. Is there a certain thyroid blood test? Thank you so much!

Also, in my experience, the nurses know more than the doctors!

[trents]

Doctorsknownothing, if your mother has celiac disease, recent studies done in the past two years indicate there is very close to a 50% chance that you have or will develop active celiac disease.

Have you suggested to any of your doctors that you would like to be tested for celiac disease. The first stage of testing involves a simple blood draw to check for celiac antibodies. Don't wait for them to come up with the idea. Take the bull by the horns.

Celiac disease has many symptoms that extend beyond GI distress. Many doctors do not know this. You do have some GI health issues that could be caused by celiac disease and you also have other non-GI symptoms that could be related to celiac disease either directly or indirectly. There are many non-GI health issues that can accrue for celiac disease.

But I agree with plumbago, you may have a number of health issues going on at the same time by now that all need eventual attention. However, you need to start somewhere and getting tested for celiac disease might turn out to be the key to unlocking some other health issues.

 

[Seethefacts]

1 hour ago, trents said:

Doctorsknownothing, if your mother has celiac disease, recent studies done in the past two years indicate there is very close to a 50% chance that you have or will develop active celiac disease.

Have you suggested to any of your doctors that you would like to be tested for celiac disease. The first stage of testing involves a simple blood draw to check for celiac antibodies. Don't wait for them to come up with the idea. Take the bull by the horns.

Celiac disease has many symptoms that extend beyond GI distress. Many doctors do not know this. You do have some GI health issues that could be caused by celiac disease and you also have other non-GI symptoms that could be related to celiac disease either directly or indirectly. There are many non-GI health issues that can accrue for celiac disease.

But I agree with plumbago, you may have a number of health issues going on at the same time by now that all need eventual attention. However, you need to start somewhere and getting tested for celiac disease might turn out to be the key to unlocking some other health issues.

 

Thanks Trents, that seems like a good idea. I've been struggling with this for almost 2 years now and I think it's stemming off and causing other issues. I haven't suggested to my doctor yet, as I just recently started to realize celiac could be possible.

[Wheatwacked]

16 hours ago, Doctorsknownothing said:

Very sensitive to cold temperatures and I start shaking.

I thought I was unique. For a long time I would turn on the heat at 78 fahrenheit. A long hot shower was the only thing that really worked. A lot of vitamins has gotten me to tolerate colder temperatures. Last week I was sitting outside and comfortably at 66 degrees. Even as a teen I would turn on the heat (if Dad wasn't home)

Stinky poo: Choline. Less than 10% on a western diet eat the RDA.  Low iodine will cause hypothyroid that is treated with thyroxine instead of iodine.  In the US iodine comsumption is down by half and cancer doubled since 1970. Low vitamin D is very common autoimmune diseases. PPI's with allow overgrowth and invasion into the stomach of bad bacteria like H. Pylori. Gerd, IBS symptoms can all be related to Celiac also.

What worked for me: 10,000 IU vitamin D, 500 Thiamin, 500 Nicotinamide, 500 Pantothenic Acid, 1000 B12, 840 phosphotidly choline, and a sheet of Nori (for iodine) every day.

Malnutrition from Celiac malabsoption syndrome. 

[Seethefacts]

11 hours ago, Wheatwacked said:

I thought I was unique. For a long time I would turn on the heat at 78 fahrenheit. A long hot shower was the only thing that really worked. A lot of vitamins has gotten me to tolerate colder temperatures. Last week I was sitting outside and comfortably at 66 degrees. Even as a teen I would turn on the heat (if Dad wasn't home)

Stinky poo: Choline. Less than 10% on a western diet eat the RDA.  Low iodine will cause hypothyroid that is treated with thyroxine instead of iodine.  In the US iodine comsumption is down by half and cancer doubled since 1970. Low vitamin D is very common autoimmune diseases. PPI's with allow overgrowth and invasion into the stomach of bad bacteria like H. Pylori. Gerd, IBS symptoms can all be related to Celiac also.

What worked for me: 10,000 IU vitamin D, 500 Thiamin, 500 Nicotinamide, 500 Pantothenic Acid, 1000 B12, 840 phosphotidly choline, and a sheet of Nori (for iodine) every day.

Malnutrition from Celiac malabsoption syndrome. 

Hey Wheatwacked, that seems possible too. So many different things to test (haven't even heard about an iodine possibility) and none of these things are tested on standard bloodwork. Only thing for me is that my vitamin D has always been plenty high enough, because I drink milk everyday.

[LCAnacortes]

11 hours ago, Wheatwacked said:

I thought I was unique. For a long time I would turn on the heat at 78 fahrenheit. A long hot shower was the only thing that really worked. A lot of vitamins has gotten me to tolerate colder temperatures. Last week I was sitting outside and comfortably at 66 degrees. Even as a teen I would turn on the heat (if Dad wasn't home)

Stinky poo: Choline. Less than 10% on a western diet eat the RDA.  Low iodine will cause hypothyroid that is treated with thyroxine instead of iodine.  In the US iodine comsumption is down by half and cancer doubled since 1970. Low vitamin D is very common autoimmune diseases. PPI's with allow overgrowth and invasion into the stomach of bad bacteria like H. Pylori. Gerd, IBS symptoms can all be related to Celiac also.

What worked for me: 10,000 IU vitamin D, 500 Thiamin, 500 Nicotinamide, 500 Pantothenic Acid, 1000 B12, 840 phosphotidly choline, and a sheet of Nori (for iodine) every day.

Malnutrition from Celiac malabsoption syndrome. 

It just crossed my mind - in the 70's we were told to stop eating salt and a lot of folks had iodized salt. They didn't bother to tell us how to supplement the iodine!  😃

[Seethefacts]

9 hours ago, LCAnacortes said:

It just crossed my mind - in the 70's we were told to stop eating salt and a lot of folks had iodized salt. They didn't bother to tell us how to supplement the iodine!  😃

So, I should get an iodine test first before a thyroid test? That way I could supplement iodine instead of thyroid medication if iodine was the problem?

[Seethefacts]

Turns out my doctor actually did do a thyroid-stimulating hormone blood test. I found the results on my online portal. Unfortunately, they were normal. I guess I can cross my thyroid off of the list of possibilities.

[Wheatwacked]

A low normal TSH is only part of that story. You need to look at T3, T4, and reverse T3 and T4.  Or do what I did and eat one or two sheets of Nori a day. It is 100th or less of the iodine in other seaweeds so impossible to overdo. In a week I felt the muscle tone in my upper body improve. The RDA 150 mcg and the upper safe limit is 1100 mcg. The iodine content in nori varies between 16–43 mcg per gram, or about 11–29% of the daily value. 

Yeah. In the 70' and 80's we lost 3 iodine sources. Stopped using iodine in commercial baked goods as a dough conditioner and went back to one (bromide) that is banned in Europe (double whammy), Stop using salt to adjust salt/potassium ratio (DASH diet). There goes iodine source number 2. General depletion of iodine in our fertilized farmland. They tried to find something to replace iodine for sterilization in dairies but did not succeed.

Wolff and Chaikoff did their research for the department of defense at UC Berkeley. Their first paper forgot to mention that the effect was transitory and that spelled the end of iodine as medicine. At the same time it was realized that iodine can protect from radiation poisoning and the government started stockpiling. They even tried to replace the use of tinture of iodine with mecurichrome which contains mercury! Putting mercury on an open wound, yikes.

"The acute Wolff-Chaikoff effect lasts for few a days and then, through the so-called "escape" phenomenon, the organification of intrathyroidal iodide resumes and the normal synthesis of thyroxine (T4) and triiodothyronine (T3) returns." https://pubmed.ncbi.nlm.nih.gov/11396709/#:~:text=The Wolff-Chaikoff effect is,large quantities of thyroid hormones.

Also a good read: Iodine Fact Sheet for Health Professionals. It has the tests for iodine described.

The correct answer for potassium, an FDA ruling from 2016 finally came into effect in 2020. Food labels sold in the US now must show potassium and the 100% DV is 4700 mg. The RDA is still around 3000 mg in the US and Europe. Since our food supply is loaded with salt I think they figure 2300 mg sodium upper limit is less than half 4700 mg potassium eqals two to one ratio. Good for blood pressure.

Brownstien is a leader in iodine.  Interview with Thyroid Expert and Speaker David Brownstein, MD

I am suppositioning here but I think the reaction people with DH have with iodine is because it is attacking the DH, even if it is sleeping. One of iodines jobs is apoptosis, killing off defective cells.

[MiriamW]

@Wheatwacked, have you heard of Metabolics Iodine 11? Apparently it can be used as follows: 

Apply 1-2 drops Iodine 11 to one wrist and rub both wrists together so it spreads over the skin to make a yellow stain. If this disappears within 6 hours, then repeat the next day. Keep on applying each day until the iodine patch remains for over 6 hours. Stop once it stays on the skin for more than 6 hours. Typically, this is within 3 weeks but may take longer. Avoid washing off the iodine skin patch so ideally done after a morning shower or bedtime bath. https://naturedoc.shop/product/metabolics-iodine-11/

[knitty kitty]

That's what I do, too, @MiriamW!

I use J. Crow's Lugol's Solution of Iodine 5% 1 oz Bottle.  

Since it's being absorbed through the skin into the surrounding tissues, I rub a few drops of iodine on my neck in the thyroid area.  

[MiriamW]

That's great to know @knitty kitty! Do you take any other supplements for your thyroid? 

[Rogol72]

4 hours ago, knitty kitty said:

That's what I do, too, @MiriamW!

I use J. Crow's Lugol's Solution of Iodine 5% 1 oz Bottle.  

Since it's being absorbed through the skin into the surrounding tissues, I rub a few drops of iodine on my neck in the thyroid area.  

Does getting iodine this way affect your DH in any way?

[knitty kitty]

@Rogol72,

Strangely enough, no.  I've not had a DH outbreak where I applied the iodine.  I've not noticed any new breakouts after.  

[knitty kitty]

8 hours ago, MiriamW said:

That's great to know @knitty kitty! Do you take any other supplements for your thyroid? 

Yes, I take high dose Thiamine and B Complex, magnesium and Vitamin D.

https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/

[Wheatwacked]

This sounds like a good idea, especially for DH. Iodine is not optional, it is essential. Any way, I am going to stick with my nori wrapped around an ounce of Nova lox

7 hours ago, knitty kitty said:

I've not had a DH outbreak where I applied the iodine.  I've not noticed any new breakouts after.  

👍

[MiriamW]

Thank you @knitty kitty, that's most helpful and the link is very informative!

Last month I tried taking Thyroid Complex by Nutri Advanced (first 3 or 4 days just one tablet a day and then half a tablet a day for less than a week). Soon after starting the supplement my eyes were all itchy and achy, but I didn't link it to the supplement at first. Then on day 5 the skin all around my eyes changed pigment to dark brown!!! I didn't know what was happening but eventually figured our that it had to be the supplement as I hadn't changed anything else in my diet. I stopped taking it immediately but the discoloration hasn't gone away. Would anyone have any idea what could have caused it? Could it be iodine or vitamin A? @Wheatwackedyou are clued up on liver and chemistry, do you have any thoughts? 

[Seethefacts]

On 1/8/2023 at 3:43 PM, Wheatwacked said:

A low normal TSH is only part of that story. You need to look at T3, T4, and reverse T3 and T4.  Or do what I did and eat one or two sheets of Nori a day. It is 100th or less of the iodine in other seaweeds so impossible to overdo. In a week I felt the muscle tone in my upper body improve. The RDA 150 mcg and the upper safe limit is 1100 mcg. The iodine content in nori varies between 16–43 mcg per gram, or about 11–29% of the daily value. 

Yeah. In the 70' and 80's we lost 3 iodine sources. Stopped using iodine in commercial baked goods as a dough conditioner and went back to one (bromide) that is banned in Europe (double whammy), Stop using salt to adjust salt/potassium ratio (DASH diet). There goes iodine source number 2. General depletion of iodine in our fertilized farmland. They tried to find something to replace iodine for sterilization in dairies but did not succeed.

Wolff and Chaikoff did their research for the department of defense at UC Berkeley. Their first paper forgot to mention that the effect was transitory and that spelled the end of iodine as medicine. At the same time it was realized that iodine can protect from radiation poisoning and the government started stockpiling. They even tried to replace the use of tinture of iodine with mecurichrome which contains mercury! Putting mercury on an open wound, yikes.

"The acute Wolff-Chaikoff effect lasts for few a days and then, through the so-called "escape" phenomenon, the organification of intrathyroidal iodide resumes and the normal synthesis of thyroxine (T4) and triiodothyronine (T3) returns." https://pubmed.ncbi.nlm.nih.gov/11396709/#:~:text=The Wolff-Chaikoff effect is,large quantities of thyroid hormones.

Also a good read: Iodine Fact Sheet for Health Professionals. It has the tests for iodine described.

The correct answer for potassium, an FDA ruling from 2016 finally came into effect in 2020. Food labels sold in the US now must show potassium and the 100% DV is 4700 mg. The RDA is still around 3000 mg in the US and Europe. Since our food supply is loaded with salt I think they figure 2300 mg sodium upper limit is less than half 4700 mg potassium eqals two to one ratio. Good for blood pressure.

Brownstien is a leader in iodine.  Interview with Thyroid Expert and Speaker David Brownstein, MD

I am suppositioning here but I think the reaction people with DH have with iodine is because it is attacking the DH, even if it is sleeping. One of iodines jobs is apoptosis, killing off defective cells.

That is interesting info. Could you explain what happened when you started using Nori, which brand, and what the results were afterwards?

[Wheatwacked]

Iodine was actually the first mineral I identified as a deficiency. I tried some expensive supplement brand but it didn't seem to do anything but lighten my pocket. The first thing I noticed was my upper chest and arms felt more toned. One sheet weighs 2.5 grams.

ONE ORGANIC’s roasted seaweed (yaki nori) is 100% natural and certified USDA organic.

The Wolff-Chaikoff Effect: Crying Wolf?

The Health Benefits of Selenium & Its Relationship with Iodine

Quote

The iodine content surveyed for nori was 29.3–45.8 mg/kg, for wakame 93.9–185.1 mg/kg, and for kombu 241–4921 mg/kg. Kombu has the highest average iodine content 2523.5 mg/kg, followed by wakame (139.7 mg/kg) and nori (36.9 mg/kg). https://www.sciencedirect.com/science/article/pii/S1021949814000155