I get very cold very easily

[Seethefacts]

I'm still trying to figure out if I have Celiac or not. I get very cold very easily even with extra clothes on. Does anyone else experience that?

[Scott Adams]

Although there are many reported symptoms of celiac disease, getting cold easily would not be a common one, however, because celiac disease causes many vitamin and mineral deficiencies it still could be related. Are you supplementing with a good multi-vitamin/mineral complex?

[Seethefacts]

2 hours ago, Scott Adams said:

Although there are many reported symptoms of celiac disease, getting cold easily would not be a common one, however, because celiac disease causes many vitamin and mineral deficiencies it still could be related. Are you supplementing with a good multi-vitamin/mineral complex?

Not at this time, as I had several blood tests done and they showed all my vitamin levels were normal.

[Scott Adams]

Did you get a blood panel done for celiac disease? If not, this would be your first step:

 

[Seethefacts]

8 hours ago, Scott Adams said:

Did you get a blood panel done for celiac disease? If not, this would be your first step:

 

Not yet, I wanted to get some opinions before going back. I've been to 4 different doctors, so I wanted to have some suggestions to run past them the next time. I really appreciate it Scott!

[Charliexxx]

On 1/3/2023 at 11:43 PM, Doctorsknownothing said:

I'm still trying to figure out if I have Celiac or not. I get very cold very easily even with extra clothes on. Does anyone else experience that?

Hi, 

I love your name !!
So, I’ve had Raynaud’s phenomenon since aged 12, cold hands, feet that change colour, painful, numb. It is visible as lots of our symptoms are not. Recently, I read about the link between low magnesium and Raynaud’s. I have always been cold, I find winters too harsh, wear layers of thermal clothing, hot water bottles etc.
Like Scott said, celiac testing and the deficiencies that accompany it can  be the problem. 

[Seethefacts]

Thanks! Yes, it makes it so hard to find the cause when it makes you show so many symptoms. Doctors just choose one symptom to treat instead of finding the root of the problem. I'm not as sensitive as you with the cold, though. I don't show visible signs; I just start to shake like it's way colder than it really is.

[knitty kitty]

@Seethefacts,

If you were taking vitamins at the time you had your vitamin levels checked, your blood tests would not be accurate.  Your blood tests would have picked up on the vitamins you were taking.

Blood levels for vitamins are not an accurate measurement of the amount of vitamins stored inside cells.  Blood levels can reflect how much of that vitamin you've eaten in the past 24-48 hours.  

You should not be taking vitamins eight weeks before testing.  

Iron deficiency, B12 deficiency, and Thiamine Vitamin B 1 deficiency can cause you to feel cold.  Thiamine especially is needed to regulate and maintain body temperature.  

https://www.hormonesmatter.com/functional-dysautonomia-peripheral-circulation/

 

[Seethefacts]

18 hours ago, knitty kitty said:

@Seethefacts,

If you were taking vitamins at the time you had your vitamin levels checked, your blood tests would not be accurate.  Your blood tests would have picked up on the vitamins you were taking.

Blood levels for vitamins are not an accurate measurement of the amount of vitamins stored inside cells.  Blood levels can reflect how much of that vitamin you've eaten in the past 24-48 hours.  

You should not be taking vitamins eight weeks before testing.  

Iron deficiency, B12 deficiency, and Thiamine Vitamin B 1 deficiency can cause you to feel cold.  Thiamine especially is needed to regulate and maintain body temperature.  

https://www.hormonesmatter.com/functional-dysautonomia-peripheral-circulation/

 

Unfortunately, I wasn't taking any vitamins, so I wouldn't be deficient in those. Vitamin and iron deficiencies were one of my first thoughts.

[Scott Adams]

19 hours ago, knitty kitty said:

You should not be taking vitamins eight weeks before testing. 

I've not heard of this before, and my doctor never mentioned it when I last had certain levels checked. Where did you get this info?

[knitty kitty]

Something I learned at university.  

[Scott Adams]

Another testing protocol, like the blood tests for celiac disease, that many doctors, unfortunately, don't seem to know about. I should probably get my doctor to retest me and follow the protocol, as last time I was taking my full regimen up to the test. 

[LaLeoLoca]

I get cold (and hot) very very easily. You can also get cold if you don’t have a lot of fat on you. Mine is caused by dysautonomia, a co occurring celiac issue. It is already getting a little easier sometimes with better supplements, per the angels on this stellar forum. Bloodwork may be normal because it could be detecting what you ate, not accurately measuring the true number (also learned here on the forum).

Many things can be present many places in the body. Bloodwork just measures blood. It’s not nothing, but far from everything. Many with MECFS show toxins and other problems deep in muscle samples, but their bloodwork is fine. I have MECFS too, that’s why I know. But hey, nothing wrong with the bloodwork, though we’re crippled! Keep getting educated, listen to truly smart people, then advocate. That is how I am still alive.

PS, I saw 36 doctors in less than three years. Integrative medicine has been the only productive type for me, they are MDs but also look at the bigger picture, do more testing, can actually talk about vitamins. My MD has helped me keep going because she really listens, too.