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I hate being allergic to gluten


glutenfreeoreo11

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glutenfreeoreo11 Newbie

for context, i was diagnosed with autism and adhd at 4, and was recently diagnosed with non celiac gluten sensitivity. all of the foods that were comfortable for me sensory wise are gone. no gluten free instant ramen is even remotely close to the real thing. all the bread feels like if a punch drunk boxer described bread to an alien and said extraterrestrial tried to make it. I keep relapsing on gluten, getting the worst stomach ache of my life, and learning nothing. the only way to make gluten free food tolerable is to add giant amounts of sugar. gluten based foods made me want to eat, and if i can't have those, then what's the point in eating, if not to survive. part of me just wants to shut off my appetite  and eat only pure nutrients packed into almond flour so i survive. 


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trents Grand Master

Do you have good support systems in place? Like family, good friends, mental health counselor, spouse or partner? I sense there is more going on than just food issues, not to minimize your autism and ADHD.

Scott Adams Grand Master

I can help solve at least one of your issues...Costco sells excellent millet-buckwheat ramen noodles at a good price:

https://www.costco.com/lotus-foods-organic-millet-%26-brown-rice-ramen%2C-2.5-oz%2C-12-count.product.100485555.html 

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    • Suze046
      Hey! I’m recently gluten free and yes I really struggle with alcohol now. I haven’t really drank in 2 months as it just made me feel awful the next day in terms of stomach ache mainly. I’ve had a couple of glasses of white wine here and there (mainly low sulphate) but every time it gives me a gut ache. I think it’s because but guy is so damaged from my journey to discovering my gluten intolerance and hopefully this will improve but honestly I’m just not bothered about having a drink now. I can’t even touch Prosecco or champagne I think the bubbles really upset me! 
    • Suze046
      That is helpful thank you I hadn’t thought of that! 
    • Awol cast iron stomach
      I just wanted to share my support for you. Rant away. We all know that, and have experiences like that at some point. I am sorry for that very unpleasant, and emotionally isolating reminder of your medical condition. Which always is exacerbated by the hunger. I will admit many of my family friends, and coworkers found it easier to exclude me than to accommodate me. I also have to be very strict with cross contamination so in hindsight they did me a favor.  The sting however can often still be unearthed when I read experiences like yours.  I am sorry you had that occur. I hope you, and the coworkers can find the easy more accommodating experiences again after this unfortunate incident. Best wishes. 
    • Awol cast iron stomach
      "...hemorrhoids, constipation and diarrhea" . Heard of indeed. Experienced too. In hindsight, I can remember from age 2 having, and trying to convey my issues. I went 38 years misdiagnosed. So yes one can have these issues. I did have to go back on gluten for a gluten challenge. I failed that challenge and 6 days in they give me permission to stop, and I proceed with my scopes as scheduled. Post those 6 days I had gained 13 intolerances. I had to remove many foods, and reintroduce them back in. Nine years later I have two that remain gluten, and corn. I found it helpful to follow a whole foods diet. I also found autoimmune (AIP) protocol diet/recipes, and Paleo diet/recipes helpful. I still enjoy many of those homemade version recipes. I still continue to make my own salad dressings even if I can find a gluten-free store bought version. Fresh taste best to this palate now.  I did give up many grains I was off many and reverted to coconut flour and almond flour as work arounds .  I still remember the first time my gut experienced the reintroduction of quinoa. It wasn't sure if it wanted to flare or not. In 30 minutes it reported back ok this will pass. Many foods were removed post gluten challenge for me for 2 years and 4 months. At the 2 year 4 month mark is when my body said ok let's eat again, but don't ever feed me gluten again! I wish you the best.   
    • Scott Adams
      if you have already learned that Gluten is the cause of your symptoms, of course there is no need to add it back into your diet— your decision could save you a lot of needless suffering. One thing to consider is that if you do have celiac disease, your first- degree relatives may also need to get screened for it, because, like diabetes the disease is genetic, although many of its triggers seem to be environmental factors. You may want to consider getting a genetic test for celiac disease, so you can at least warn your relatives if it turns out that you do carry a celiac gene.
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