Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did my old endoscopy even check for celiac?!

hazy gem
 Share

Recommended Posts

hazy gem Newbie
hazy gem
Posted

Hi there, 

I had an endoscopy several years ago, with (what was communicated to me) the express purpose to check for celiac. (Neither of my first or second GI's did blood tests- were those around in 2017?).

Cut to now, blood test results from a neurologist. Deamid/Gliadin AB IGA 101.2 (Ref value <15.0) and Deamid/Gliadin AB IGG 20 (ref value <15).

So I go straight to a new GI and I get the old endoscopy results sent to him. He says there is no indication that they specifically looked at celiac. Look, I know celiac might have developed later. But my issues literally started when I started eating gluten after not eating it for about a year (I was ahead of the curve on the whole paleo-diet thing) and yes hindsight is 2020 but I had a lot of mental health other issues I was battling so once I found out I wasn't celiac I could never commit to gluten free after that. Also, I would go to doctor after doctor and tell them celiac was ruled out. 

This is from the old endoscopy: Diagnosis & Interpretation: Stomach, Biopsy ANTRAL MUCOSA WITH MILD CHRONIC GASTRITIS AND REACTIVE CHANGE. UNREMARKABLE GASTRIC BODY TYPE MUCOSA. NO INTENSTINAL METAPLASIA DYSPLASIA OR MALIGNANCY. APPROPRIATELY CONTROLLED IMMUNOSTAIN IS NEGATIVE FOR H>PYLORI. Gross Description: Stomach, Biopsy - Labeled as: "Gastric" Received in formalin are 4 fragments of pink-tan soft tissue ranging from 0.2 to 0.4 cm. The specimen is submitted entirely in a single cassette. 

So what are your thoughts? Did they skip the celiac analysis? Why would they do that? What is going on!?

Thank you in advance for any thoughts! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Looks like they only examined and biopsied the stomach. Celiac disease affects the small bowel.

Scott Adams Grand Master
Scott Adams
Posted

I agree, it looks like they did not take samples in the small bowel for celiac disease. This is rather strange if they told you they were looking to see if you had celiac disease.

Since your blood test results are such a high positive, you will need to decide whether to do another endoscopy, and this article may be helpful:

https://www.celiac.com/celiac-disease/celiac-disease-blood-antibody-tests-r32/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,210
    • Most Online (within 30 mins)
      7,748
    Sharon Camden
    Newest Member
    Sharon Camden
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Chissers
      Could this be Celiac disease?

      By Chissers · Posted

      Thank you for your prompt reply. Have others experienced LUQ and L sided back pain when on gluten? Could gluten be irritating the pancreas to cause the slight rise in lipase?
    • Rogol72
      Medicinal mushrooms 🍄

      By Rogol72 · Posted

      Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form. 
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      There is dextrose in table salt?
    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      Medicinal mushrooms 🍄

      By Liquid lunch · Posted

      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
×
×
  • Create New...