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how to do a gluten challenge?

fran03
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fran03 Newbie
fran03
Posted

I'm in a rough spot at the moment - my GP sent my blood off for tests for coeliac in November, then I got very very ill over Christmas so made the choice to cut gluten from my diet to see if it would help (it did). I've been gluten free for 2 months now.

I phoned my GP every week asking for results only for them to tell me last week that they've "lost" my blood. I was fuming about the setback but mostly that if I want more tests I have to go back on a gluten diet. The GP said if my symptoms have improved then I don't have to do the tests, but I'd rather know whether it's coeliac or NCGS. She said I'd need to be eating gluten for four weeks.

If anyone's done a gluten challenge, how much gluten were you eating (in how many meals) and how did you manage your symptoms? I'm two days in and already tired & nauseous; I'd forgotten how bad I used to feel all the time and I'm dreading the next month. I'd appreciate any advice! 😊

 

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trents Grand Master
trents
Posted

The Mayo clinic guidelines for a pretest gluten challenge is two slices of wheat bread (or the gluten equivalent) daily for 6-8 weeks leading up to the blood antibody test and for two weeks leading up to an endoscopy/biopsy. So, maybe you should push for the latter. If the scheduling puts it way out there. Start the gluten challenge two weeks before the date.

Scott Adams Grand Master
Scott Adams
Posted

It's terrible that they lost your blood sample!

Here is some more info on this:

 

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