Celiac & AID

[BJO]

I have autoimmune disease. In 2007 I was hospitalized with autoimmune hepatitis and near death. I over came that. I am in my elder years now and have been dealing with a lot of bloating, gas and left side pain for over a year. I have not been diagnosed with celiac disease simply because I can't afford it. I have been doing a lot of researching. I had a good feeling that there was something wrong. The only health problem I have had in my life was the AIH. I had a feeling that it was something to do with AID. I could never find anything about the left side pain only the bloating and gas. The left side pain can put me down for 1-3 days. I went on a clear liquid diet and then next day nothing with bread, cereal and stayed away from gassy vegetables and did low fiber. I felt good. Tonight I had tuna fish sandwich and bloating and left pain came back in less than 30 minutes. I started more research and Finally, I found you all with the same or similar symptoms. I am so relieved to know I was not crazy. I have cried so much and my poor husband he doesn't know what to do. I getting really moody and testy at times when pain get bad. I want to thank you all for your posts. I am going to go on a gluten free diet immediately. I have checked and the food is quite expensive. I will figure this out. The joy of knowing I am not alone has brought me to tears. Is there any way I can share these post with my older sister? She also aid (RA) and complains about her stomach to.  I am so grateful and thankful for this site.

[BJO]

I read many of them and the ones that mentioned the left side pain is when I knew I had found the information I was looking for. Thank you

[BJO]

I will do. I'm not sure how to get back to them but will try right now. Not very good with websites or electronics in general. 

[trents]

Welcome to the forum, BJO!

If you would like your sister to see your posts, the best way would be for her to join this forum like you did.

On 2/25/2023 at 6:56 PM, BJO said:

I will do. I'm not sure how to get back to them but will try right now. Not very good with websites or electronics in general. 

 

Get back to who? It seems like you are replying to someone but we can't see that person's post.

[Scott Adams]

Hello @BJO,

If you cannot afford testing for celiac disease simply try a gluten-free diet for a couple of months to see if your symptoms improve:

 

[Wheatwacked]

On 2/25/2023 at 9:52 PM, BJO said:

I have autoimmune disease.

If you haven't been tested, blood plasma vitamin D tests are fairly inexpensive and accurate. The medical boards promote that anything above 29 ng/ml (nanogram per milliliter) is sufficient but the real benefits are in the 70-90 ng/ml, and even at 10,000 IU a day it can take years to get there. The fear of too much vitamin D is way over stressed. There are few cases reported, while autoimmune disease is on the rise.

"Ekwaru et al16 recently reported on more than 17,000 healthy adult volunteers participating in a preventative health program and taking varying doses of vitamin D up to 20,000 IU/d. These patients did not demonstrate any toxicity"   https://www.mayoclinicproceedings.org/article/S0025-6196(15)00244-X/pdf

 

Quote

The Implication of Vitamin D and Autoimmunity: a Comprehensive Review  "Historically, vitamin D has been associated with the regulation of bone metabolism. However, increasing evidence demonstrates a strong association between vitamin D signaling and many biological processes that regulate immune responses. The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases." 

 

[Paula Daubach]

To: BJD, I've had celiac disease for over 2 yrs now. I have also been diagnosed with RA, however Dr. is thinking it may be PSA now( also arthritis/ autoimmune disease). They say if I have 1autoimmune disease that I will probably end up with at least 3. I have my 3:thyroid, RA or PSA & Celiac. The food is very expensive. I made a Hugh mistake not knowing better at 1st. I spent a lot of money buying all different types of flours , starches, yeast, etc to cook & eat celiac. Do yourself a favor it's easier than that..  I have learned that u can buy the gluten free flour ready to use. Much cheaper & easier. Bobs Red Mill is a good flour & there is 2 basic ones to buy : All purpose or 1:1 flour. And there are plenty of gluten-free  free recipes online. I believe u will definitely be able to figure out by following the diet. I have studied it a lot. There is guten in this u would never believe it's in. Envelope glue, toilet paper & paper towel ends & begginimgs of the rolls(glue). I thought I was crazy having issues with my privates...until I read an article on it. I now use Charmin toilet paper because they don't use gluten to glue the paper on the rolls. Made a Hugh difference. I had celiac bad ..the rash (DH- for short). I had2 skin biopsy 's, & a blood test all were negative. Hope this helps. The hardest thing is eating out. Good luck