Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching

jenski

By jenski
in Dermatitis Herpetiformis

 Share

Recommended Posts

jenski Newbie
jenski
Posted

I have extreme itching at night, is anyone else having that symptom?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Have you been officially diagnosed with DH or if not, are you trying to figure out if your symptoms indicate DH?

jenski Newbie
jenski
Posted
  • Author

Hello Trents,

I have not been officially diagnosed. But from everything I have read it is probably what I have. It started back in October and was told it is just contact dermatitis. I have changed all the soaps and detergents and still no relief.  On March 4th I gave up gluten and things are getting better or at least not getting worse. Have itchy bumps mostly on the back of my head, hips, buttocks, lower back, upper back and neck. With flare ups in other places in small amounts. Go to the dermatologist this morning, will see what they say. From everything I have heard it may take awhile to get an official diagnosis. I also have one of the genetic markers for Celiac.   

trents Grand Master
trents
Posted

DH has a characteristic appearance with little blisters or pustules tin the center of the bumps according to my understanding. It is also important to get a skin biopsy done when you are having a fresh outbreak and the biopsy should be taken from between the bumps not on the bumps. That's what I have discerned from this forum. I do not suffer DH myself.

jenski Newbie
jenski
Posted
  • Author

Thank you Trents. The dermatologist still believes it is contact dermatitis. I let them know it is aggravated by wheat but just told me to stop eating it, which I have about a week ago. Probably won’t go back to that dermatologist and just continue to not eat gluten. I just won’t have a formal diagnosis. 

USF1970 Apprentice
USF1970
Posted

It took FOUR years of severe itching b4 being diagnosed with celiac disease and the allergist who found DH, said he had seen similarities in textbooks. As a result, I don’t put a lot of faith in dermatologists. And it took well over 6 months on a strict gluten-free diet for my skin to calm down.

  • 1 month later...
Guest 648
Guest 648
Posted
On 3/13/2023 at 11:16 AM, trents said:

DH has a characteristic appearance with little blisters or pustules tin the center of the bumps according to my understanding. It is also important to get a skin biopsy done when you are having a fresh outbreak and the biopsy should be taken from between the bumps not on the bumps. That's what I have discerned from this forum. I do not suffer DH myself.

I think trents is 100% over the target on this one.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,482
    • Most Online (within 30 mins)
      7,748
    pousson
    Newest Member
    pousson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      A year and a half of test confusion...

      By trents · Posted

      I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing celiac disease as an adult. I think there is also this misconception that if you have NCGS, gluten is not harmful, it just creates discomfort and inconvenience.
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I am actually in the middle of this article currently already!   Thank you.  This website is extraordinarily helpful.
    • Scott Adams
      A year and a half of test confusion...

      By Scott Adams · Posted

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      Gotcha.  I'll give 100% gluten-free a whirl after my testing concludes.  I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to be on the very early end, I think.
    • Scott Adams
      A year and a half of test confusion...

      By Scott Adams · Posted

      Given your long list of symptoms it would make sense to see if a 100% gluten-free diet helps relieve them, especially the anemia, and if so, it would make sense to just stay 100% gluten-free. Also, capsule endoscopy is not ideal for diagnosing celiac disease, as subtle villi damage cannot be detect by it.
×
×
  • Create New...