Biopsy results

[pikauchu]

1. Duodenum, Biopsy: Small bowel mucosa with

A. Normal intact villous surface.

B. No significant inflammation, no granulomas.

😄 No viral inclusions or other organisms on routinely stained sections.

 

2. Stomach, Random Biopsies:

A. Benign gastric mucosa without diagnostic abnormality.

 

so if I’m reading this right, it looks like I’m negative for Celiacs disease despite the positive DPG IGG. But I am not sure I understand the results for the stomach? Is that saying I have something there? 

[RMJ]

It says your stomach is normal.

[pikauchu]

26 minutes ago, RMJ said:

It says your stomach is normal.

Yeah, that’s what I thought lol but wasn’t sure why they would put benign. Is it doesn’t look like they gave me a Marsh score at all. So it would be 0 by this? 

[Scott Adams]

Were you eating at least two slices of wheat bread daily for at least 2 weeks before your endoscopy? If not then this could skew your results.

It looks like a negative biopsy for celiac disease, but to be sure ask your gastro about these results. This does not rule out non-celiac gluten sensitivity, so if you have symptoms your next step might be a gluten-free diet to see if it helps.

[pikauchu]

1 hour ago, Scott Adams said:

Were you eating at least two slices of wheat bread daily for at least 2 weeks before your endoscopy? If not then this could skew your results.

It looks like a negative biopsy for celiac disease, but to be sure ask your gastro about these results. This does not rule out non-celiac gluten sensitivity, so if you have symptoms your next step might be a gluten-free diet to see if it helps.

I am going to make a post about what happened today when I tried to get a second opinion,  but basically his office didn’t call or speak with me at all with any information. I called and they told me he basically is sending me off to a general surgeon for my gullbladder and as far as he’s concerned there’s no issue in regards to celiacs disease or any other part of gluten issues. 
 

I tried to talk with them about maybe doing a couple more tests, the genetic test, some anemia testing, maybe redoing the celiac tests to see if the numbers are going up. Instead, I was basically shamed by the nurse, told to wait until October to see a different doctor and a bunch of other stuff I’ll save for my test and that I’m being referred to a general surgeon for my gallbladder. The one that’s been tested and they’ve said is fine but want to remove anyway for no reason. 

[pikauchu]

2 hours ago, Scott Adams said:

Were you eating at least two slices of wheat bread daily for at least 2 weeks before your endoscopy? If not then this could skew your results.

It looks like a negative biopsy for celiac disease, but to be sure ask your gastro about these results. This does not rule out non-celiac gluten sensitivity, so if you have symptoms your next step might be a gluten-free diet to see if it helps.

I ate a lot of gluten, but I wouldn’t say I ate 2 slices of bread every day for 2 weeks. 

[Scott Adams]

Since you had a positive blood test for celiac disease perhaps try a gluten-free diet to see if it helps with your symptoms (if so, likely non-celiac gluten sensitivity). It's unfortunate that your doctors are dismissing you, and it may be time to seek a different doctor.

[pikauchu]

1 hour ago, Scott Adams said:

Since you had a positive blood test for celiac disease perhaps try a gluten-free diet to see if it helps with your symptoms (if so, likely non-celiac gluten sensitivity). It's unfortunate that your doctors are dismissing you, and it may be time to seek a different doctor.

I’m looking for a second opinion currently. What makes me more worried is that my PCP hasn’t been checking my Graves’ disease either, and no one else seems to concern that I was genetic tested positive for familial Mediterranean fever when I was pregnant with my son. Either way, I see a different doctor in June as a second opinion and I’m wondering whether or not I should go into my primary care doctor and see if they can do a work up on a bunch of stuff, like anemia and thyroid and normal stuff you should check occasionally.

 

I got my genetic diagnosis in another state that’s refusing to give s9me of my medical records. And that isn’t helping matters. 

[Scott Adams]

If you plan to get further tests for celiac disease keep in mind that you need to be eating gluten daily for 6-8 weeks before blood tests, and 2 weeks before a biopsy. 

 

[Guest 648]

On 5/23/2023 at 4:46 PM, pikauchu said:

"II got my genetic diagnosis in another state that’s refusing to give s9me of my medical records. And that isn’t helping matters. "

Threaten them that you will file a HIPAA complaint if they DO NOT COMPLY in giving you copies of your records.  Of course is any copying, mailing  fee's etc. are implied you will have to pay them. 

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