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Biopsy results

pikauchu
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pikauchu Apprentice
pikauchu
Posted

1. Duodenum, Biopsy: Small bowel mucosa with

A. Normal intact villous surface.

B. No significant inflammation, no granulomas.

šŸ˜„ No viral inclusions or other organisms on routinely stained sections.

Ā 

2. Stomach, Random Biopsies:

A. Benign gastric mucosa without diagnostic abnormality.


Ā 

so if Iā€™m reading this right, it looks like Iā€™m negative for Celiacs disease despite the positive DPG IGG. But I am not sure I understand the results for the stomach? Is that saying I have something there?Ā 

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RMJ Mentor
RMJ
Posted

It says your stomach is normal.

pikauchu Apprentice
pikauchu
Posted
  • Author
26 minutes ago, RMJ said:

It says your stomach is normal.

Yeah, thatā€™s what I thought lol but wasnā€™t sure why they would put benign. Is it doesnā€™t look like they gave me a Marsh score at all. So it would be 0 by this?Ā 

Scott Adams Grand Master
Scott Adams
Posted

Were you eating at least two slices of wheat bread daily for at least 2 weeks before your endoscopy? If not then this could skew your results.

It looks like a negative biopsy for celiac disease, but to be sure ask your gastro about these results. This does not rule out non-celiac gluten sensitivity, so if you have symptoms your next step might be a gluten-free diet to see if it helps.

pikauchu Apprentice
pikauchu
Posted
  • Author
1 hour ago, Scott Adams said:

Were you eating at least two slices of wheat bread daily for at least 2 weeks before your endoscopy? If not then this could skew your results.

It looks like a negative biopsy for celiac disease, but to be sure ask your gastro about these results. This does not rule out non-celiac gluten sensitivity, so if you have symptoms your next step might be a gluten-free diet to see if it helps.

I am going to make a post about what happened today when I tried to get a second opinion, Ā but basically his office didnā€™t call or speak with me at all with any information. I called and they told me he basically is sending me off to a general surgeon for my gullbladder and as far as heā€™s concerned thereā€™s no issue in regards to celiacs disease or any other part of gluten issues.Ā 
Ā 

I tried to talk with them about maybe doing a couple more tests, the genetic test, some anemia testing, maybe redoing the celiac tests to see if the numbers are going up. Instead, I was basically shamed by the nurse, told to wait until October to see a different doctor and a bunch of other stuff Iā€™ll save for my test and that Iā€™m being referred to a general surgeon for my gallbladder. The one thatā€™s been tested and theyā€™ve said is fine but want to remove anyway for no reason.Ā 

pikauchu Apprentice
pikauchu
Posted
  • Author
2 hours ago, Scott Adams said:

Were you eating at least two slices of wheat bread daily for at least 2 weeks before your endoscopy? If not then this could skew your results.

It looks like a negative biopsy for celiac disease, but to be sure ask your gastro about these results. This does not rule out non-celiac gluten sensitivity, so if you have symptoms your next step might be a gluten-free diet to see if it helps.

I ate a lot of gluten, but I wouldnā€™t say I ate 2 slices of bread every day for 2 weeks.Ā 

Scott Adams Grand Master
Scott Adams
Posted

Since you had a positive blood test for celiac disease perhaps try a gluten-free diet to see if it helps with your symptoms (if so, likely non-celiac gluten sensitivity). It's unfortunate that your doctors are dismissing you, and it may be time to seek a different doctor.

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pikauchu Apprentice
pikauchu
Posted
  • Author
1 hour ago, Scott Adams said:

Since you had a positive blood test for celiac disease perhaps try a gluten-free diet to see if it helps with your symptoms (if so, likely non-celiac gluten sensitivity). It's unfortunate that your doctors are dismissing you, and it may be time to seek a different doctor.

Iā€™m looking for a second opinion currently. What makes me more worried is that my PCP hasnā€™t been checking my Gravesā€™ disease either, and no one else seems to concern that I was genetic tested positive for familial Mediterranean fever when I was pregnant with my son. Either way, I see a different doctor in June as a second opinion and Iā€™m wondering whether or not I should go into my primary care doctor and see if they can do a work up on a bunch of stuff, like anemia and thyroid and normal stuff you should check occasionally.

Ā 

I got my genetic diagnosis in another state thatā€™s refusing to give s9me of my medical records. And that isnā€™t helping matters.Ā 

Scott Adams Grand Master
Scott Adams
Posted

If you plan to get further tests for celiac disease keep in mind that you need to be eating gluten daily for 6-8 weeks before blood tests, and 2 weeks before a biopsy.Ā 

Ā 

Guest 648
Guest 648
Posted
On 5/23/2023 at 4:46 PM, pikauchu said:

"II got my genetic diagnosis in another state thatā€™s refusing to give s9me of my medical records. And that isnā€™t helping matters. "

Threaten them that you will file a HIPAA complaint if they DO NOT COMPLY in giving you copies of your records.Ā  Of course is any copying, mailingĀ  fee's etc. are implied you will have to pay them.Ā 

Your Health Information Rights HIPAA

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